Stephanie-Roxanne Blanco’s Post

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Senior Lecturer in Neuropsychology at BGU 🧠 Current PhD student (FND) @NTU 🤓 Vice Chair & Lead of Medical Advisory board @FND DIMENSIONS

10 things I've learnt in 10 years of patient support and advocay for #FND 🥳 (I missed the milestone as my decade anniversary was actually in May but I was busy submitting that PhD): 1) I've learnt so much about myself, my illness and my personal development. I've learnt to accept myself and turn my lived experiences into something that matters. 2) I've achieved things I never thought I'd be capable of and how to be resourceful and creative. Operating large scale projects on limited resources because there's often little funding in this environment 3) There is power in community. Collaborations with others are taking my work to new heights and I have loved the opportunity to engage with so many different people, professionals and communities throughout this time and continue to build the communities I am part of. 4) creating a safe space for those with #longterm conditions is the most powerful and moving thing you can do 5) #hiddenillness deserves and warrants societal attention!! It's everyone's responsibility to create a safe space and a safe society 6) If you have a story, share it proudly. Inspiring others is not a sign of vanity. Advocacy is so crucial in raising awareness and securing resources. 7) There is nothing like connecting with someone who understands you because of your shared experience of a condition that few understand 8) There is so much stigma in society against those with long term and hidden conditions. 9) Health Matters. Brain health Matters in both health and illness. This doesn't need to be clinical and often happens in the most creative ways. 10) education comes in many forms. Empowering people to manage symptoms, building skills so volunteers can have meaning & impact, promoting social inclusion and peer support activities are all necessary. As is education for health care professionals and policy makers here's to the next 10 years!

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Rebecca Mullin

Founding Neuro Physiotherapist at Upton Neuro Physio

4mo

She's baaack! 👏🏻👏🏻👏🏻

Nada L.

Driving Transformational Success with SaaS Expertise ⭐ Advocate for Functional Neurological Disorder (FND)🫶

4mo

Incredibly inspiring 👏 💫 amazing 💚

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