“Many people have experienced psychological trauma, as children, as adults, or in connection with healthcare experiences. This means that sometimes recounting experiences or contributing to research as a patient and public involvement partner or talking with healthcare professionals, can be distressing and can trigger memories from the original experience.” FINALLY a paper about how patient engagement can cause harm. We need a thoughtful + respectful approach to engagement (and dare I say, more peer support in the process). Kudos to co-authors Catherine White and Dr Julie Highfield. NIHR (National Institute for Health and Care Research) https://lnkd.in/g3frdrv4
Sue Robins We need to be talking about this more 🔥
So needed Sue.
Strategic Lead, Patient Partnerships at Dr. Christine Chambers #IDHTH Research Lab
5moThank you so much for posting this - I’ve only had a quick scan so far but it really aligns with my philosophy and has practical info that can be used when partnering with patients!