Tatiana Tims’ Post

Come Walk With Us! On May 4th, A3Access Advisors will be joining the Moving Day Walk in San Francisco to show our support for the Parkinson’s Foundation and those patients and caregivers impacted by Parkinson’s disease. Parkinson’s is very personal to me. Twenty-five years ago, my father passed after a two-decade battle with this horrible disease. It’s severely debilitating with no known cause, cure, or prevention. Impacting nearly one million Americans and 10 million people worldwide, Parkinson’s is second only to Alzheimer’s as the most prevalent neurodegenerative disease. While there is great science focused on treating and hopefully one day curing Parkinson’s, we are not there yet. We must do more to accelerate our efforts to identify treatment alternatives. The Parkinson’s Foundation is committed to making the lives better for those at risk and suffering from Parkinson’s by advancing research, improving access to care, and funding community programs. Their efforts on behalf of Parkinson’s families deserve our support! I’m hoping you will join us in making a difference. If you would like to join our team, or show your support, you can learn more here https://lnkd.in/ghP2QGA7.  

Curious about Osteogenesis Imperfecta aka Brittle Bone Disease? To clear up some common questions: 1) Yes, it hurts. Every time. There is nothing wrong with our nervous system. Pain tells us there is something wrong. 2) No, we never, ever get used to it. We sometimes pretend, but it's an act. 3) We might be considered disabled, but it doesn't disable us. We are accountants, actors, architects, artists, doctors, engineers, financial analysts, HR professionals, lawyers, motivational speakers, musicians, teachers and so much more... Help us support out mission to improve the quality of life those living with osteogenesis imperfecta through research, education, awareness, and mutual support.

https://lnkd.in/eZWp5CHH Give this page a follow folks. Great awareness and if you want to know more about how you can make your mark, get in touch with them or I can share my story Kidney Research UK #livedonor #livingdonor #makeyourmark

🌍 How a Doctor Discovered a Transformative Childhood Health Program by Chance For just $2.50 per year, you can protect children in developing countries from blindness. But how did doctors discover this? In this video, doctor Al Sommer, Professor and Dean Emeritus of the Johns Hopkins Bloomberg School of Public Health, shares his groundbreaking discovery that even a slight deficiency in vitamin A can have severe consequences for children. Each year, 250,000 children lose their sight due to a lack of vitamin A, and tragically, half of these children die within a year. Thanks to Dr. Al Sommer's pioneering research, Helen Keller Intl has already safeguarded millions of children from blindness. 👀 Watch the video to learn more and see how you can contribute to this life-changing cause. #PublicHealth #ChildHealth #VitaminA #GlobalHealth #philanthropy #donations

May 1st marks the first day of #ALSAwarenessMonth. Amyotrophic Lateral Sclerosis, ALS, or Lou Gehrig's Disease, is a progressive neurodegenerative disease that affects cells in the brain and spinal cord, causing the brain to lose connection with muscles. As the disease progresses, a person will lose the ability to walk, talk, eat, and eventually breathe. There is currently no cure for ALS. You can learn more about #ALS from The ALS Association at https://lnkd.in/gz-W9kcd #ALSMonth #LouGehrigsDisease #Accessibility #ALSAwareness

April 5, 2024 – The Barth Syndrome Foundation (BSF), the only patient advocacy organization dedicated to Barth syndrome and saving lives around the world through education, advances in treatments and finding a cure, today recognizes the second annual Barth Syndrome Awareness Day. Barth syndrome is an ultra-rare, life-threatening, genetic disease primarily affecting males. Currently, there are no FDA-approved treatments. The FDA's recent decision to review a New Drug Application (NDA) for elamipretide in Barth syndrome represents a significant step forward in addressing the critical unmet needs of patients suffering from this devastating, progressive condition. https://lnkd.in/eKTkh7pE

Blood analysis has uncovered potential underlying causes of Long Covid. A study in Science found significant differences in the complement system, part of the innate immune system, in patients who had recovered fully from SARS-CoV-2 infection compared to those with Long Covid. Dysregulation in the circulating proteins of the complement system led to issues with blood clotting and widespread inflammation in the cardiovascular system of Long Covid patients. This research sheds light on potential interventions for clinical testing and may open avenues for treatment options for Long Covid. #LongCovid #BloodAnalysis #ComplementSystem #SARSCoV2 #ImmuneSystem #Inflammation #HealthResearch #TreatmentOptions

Have you heard of Myasthenia Gravis (MG)? First documented in 1672, MG causes the impulses from the brain which travel down nerves to be "blocked by antibodies before impulses reach muscle." At Vital Care, we treat MG intravenously as well as subcutaneously. You can read more from the article below. https://lnkd.in/ejzA7H4V

We talk to leading charities United Mitochondrial Disease Foundation and The Lily Foundation along with expert clinician and researcher Michio Hirano of Columbia University to understand the science behind our mitochondria and their role in rare inherited disorders and wider public health. They share their insights into the challenges and opportunities presented by unlocking the science, and discuss the importance of long-term funding, collaboration and data sharing to accelerate progress in the field. A field where a patient-focused approach will be fundamental to achieve personalised therapies for over 400 involved genes and known mitochondrial disorders Read here: https://lnkd.in/gPF9yfaY #Mitochondria #MitochondrialDisorders #RareDisease

Give STL Day Power Hours: What are Power Hours? During Give STL Day, there will be Power Hours every three hours, starting at 9 a.m., noon, 3 p.m., 6 p.m. and 9 p.m. During a Power Hour, every nonprofit that receives a donation during that hour will get a boost of money equally distributed. How Much Money? During the 9 a.m. and noon Power Hours, $30,000 will be equally distributed to all nonprofits who received a donation during those hours. During the 3 p.m., 6 p.m. and 9 p.m. Power Hours, $20,000 will be equally distributed to all nonprofits who received a donation during those hours. https://lnkd.in/gkiStk-g