Tatton Brown Rahman Syndrome (TBRS) Community Inc.’s Post

🌟 Attention TBRS Families! 🌟 We’re excited to introduce you to Citizen—your new partner in managing medical records and contributing to TBRS research! With Citizen, you can: Store all your medical records securely in one place. Effortlessly share records with new healthcare providers. Opt to share deidentified data to help us understand TBRS better, similar to a Patient Registry! Getting started is simple: Visit https://lnkd.in/e6zVZkYA and list your healthcare providers. Citizen gathers all your records for you. Access everything through a password-protected portal, and decide if you'd like to share your data to support valuable research. Citizen is more than just a patient portal—it's a way to make a meaningful impact and support the TBRS community. 🌟 Join us and be a part of this important initiative! 🌺

  • No alternative text description for this image

To view or add a comment, sign in

Explore topics