The ALS Association’s Post

This is not a 🚨 drill The NHS is rolling out a game-changing treatment for Sickle Cell Disease! Meet Voxelotor, a daily pill that reduces blood transfusion needs for eligible patients, giving them fewer hospital visits and more freedom. Here’s why this is HUGE: 💃 More time for life- Fewer hospital visits = more time enjoying life.. duh! 🧠 Mental health boost for the UK Black community: Sickle cell disease disproportionately affects Black patients, and this breakthrough can improve mental health across the community. 🩻 A blueprint for future breakthroughs- This development could pave the way for even more treatments for sickle cell disease. 💷 Reducing NHS costs- Sickle cell disease currently costs the NHS around £18.8 million. This treatment could help alleviate that burden. So, how can YOU participate in life-changing Clinical Research like this? 🤔 The truth is, ANYONE can! No prior knowledge/experience is needed, just a keen willingness to contribute to revolutionary medical innovation. PROBr™ makes it easy to find and sign up for studies all in one place. From medical device trials to drug testing and surveys, we’ve got it all! 🙌 Your participation could support anything from university student research to charity or hospital studies. That’s pretty cool, right? 😎 👉 Participants: Ready to sign up to groundbreaking research from all over? Sign up on PROBr and get notified about new studies to join! https://lnkd.in/ePmsjTai 👉 Researchers: Want your studies to reach diverse communities and make an impact? Let’s partner up! DM me, email us at info@probr.co, or visit: https://lnkd.in/eYSNbYbQ Together, we can create a healthier, more inclusive future! 🌍✨ #ClinicalResearch #SickleCell #Voxelotor #HealthInnovation #HealthEquity #PROBr #ResearchForAll Sickle cell health care organisation Sickle Cell Society Saumu Lwembe, DrPH AMAPH INITIATIVE AFRICA

Happy New Year Clinical Trials Peeps! ACRP - Association of Clinical Research Professionals is looking to hear from all of you about the future of our industry. If you have 15 minutes between now and January 15th, please take their survey! The survey will bring YOUR voice to the discussion about how clinical trials are conducted and will capture YOUR perceptions on: 1. The state of clinical research—today and tomorrow? 2. How the industry may change in the next five to ten years? 3. What solutions will finally break down persistent barriers? https://lnkd.in/eHn_T4W4

📢 Exciting News! A new article by Annalisa Landi, Viviana Giannuzzi, and Adriana Ceci explores how to overcome challenges in pediatric clinical studies, turning them into opportunities for science! 👉 Read more: https://lnkd.in/duixQUaq

Clinical Trials Day, celebrated on May 20th, recognizes the contributions of the clinical research professionals who work tirelessly to advance medical science. It’s also a day to honor those who conduct and participate in clinical trials, which are vital for developing new treatments and improving outcomes for our patients. Read on to learn about the many ways our FINISHCANCER team is helping to shape the future of healthcare. https://lnkd.in/giHkjc8N #ClinicalTrialsDay #NationalCancerResearchMonth

Clinical Trials Day, celebrated on May 20th, recognizes the contributions of the clinical research professionals who work tirelessly to advance medical science. It’s also a day to honor those who conduct and participate in clinical trials, which are vital for developing new treatments and improving outcomes for our patients. Read on to learn about the many ways our FINISHCANCER team is helping to shape the future of healthcare. https://lnkd.in/giHkjc8N #ClinicalTrialsDay #NationalCancerResearchMonth

In their new Forefront article, Esther Krofah, Morgan Hanger, Sally Okun, and Barbara E. Bierer from the Milken Institute, The National Academies of Sciences, Engineering, and Medicine, and Brigham and Women's Hospital argue that the time is now to align on a shared plan of action as a country to achieve diversity, equity, inclusion, and access in US clinical trials. "This lack of representativeness in clinical trials limits our scientific knowledge of the safety and efficacy of medical products and interventions for certain populations. Furthermore, low trial participation by underrepresented patient groups limits access to the latest scientific advances for these groups, as clinical trials are increasingly part of clinical care, particularly for oncology. The discrepancy in trial participation thus further widens existing gaps in quality of care. In this article, we explain the need for a national action plan to improve diversity, equity, and inclusion in US clinical trials. We outline such a plan, and we issue a call to action to all stakeholders to make progress on the goals and action steps presented below." Read the full article here: https://bit.ly/3UBmIRi

We are excited to announce the launch of the 'CTSC Spotlight Series', a brand-new webinar initiative designed to highlight the resources, services, and collaborative opportunities available through the Clinical and Translational Science Collaborative of Northern Ohio. This series will provide an in-depth look at the various support and tools offered by the CTSC, designed to help researchers, clinicians, and teams advance their work. Facilitated by members of the CTSC team, each session will focus on the topics that generate the most questions from our members, helping you better understand how to leverage our services for success. We are kicking off our series with Sara Serritella, Director of Communications at the Institute for Translational Medicine. She will present on the science of communication: "Break Through the Noise and Become Known: Accelerate your Career with these Science Communication Skills" 📅 Tuesday, February 11, 2025 ⏰ 11:00AM - 12:00PM 📍 Virtual via Zoom 🔗 https://lnkd.in/gjWdNRB3 CTSA CCOS Center; National Center for Advancing Translational Sciences (NCATS); The National Institutes of Health; Case Western Reserve University; Cleveland Clinic; The MetroHealth System (Cleveland, OH); University Hospitals; Northeast Ohio Medical University (NEOMED); The University of Toledo; VA Northeast Ohio Healthcare System

Diversity in clinical trials goes beyond regulatory requirements—it’s a cornerstone of ethical research and scientific integrity. Ryan Brown, H1’s Regional VP of Sales, shares about the critical need for diverse populations in clinical studies in this Xtalks Spotlight with Vera Kovacevic. She explores how clinical research teams can use data-driven approaches to foster diversity in research. Watch now: https://hubs.la/Q02_7P5_0 #clinicaltrialdiversity #healthequity #patientdiversity #equitableresearch

Improving #IBD care is also done by sharing best practice and improving IBD research units. BIRD - Belgian Inflammatory Bowel Disease Research and Development

Metrics are vital signposts on the road of clinical research for precision and objectivity. Learn more about the value of metrics and their impact on the success of clinical research. https://lnkd.in/eChPKkqf #clinicalresearch #metrics