Did you know that fundraising isn’t the only way you can do your bit to improve the lives of those affected by a brain tumour diagnosis? You can help us to make sure that the brain tumour community can easily access the information they need when coming to our website. If you can, spare just 10 minutes of your day to complete this simple sorting exercise, and help ensure that our website is accessible for anyone who visits: https://bit.ly/3STDT0s #LivingLongerandBetter #BrainTumours #BrainTumourInformation
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Some decisions are tough, but a National Brain Tumour Strategy is a No Brainer. We're calling for: 🔬Pioneering research into brain tumours. 🏥Access to new and better treatments. ⏰ Faster, more efficient diagnosis. 👩⚕️Essential care and support. Sign our open letter so we can show the government that waiting is no longer an option 👉 https://bit.ly/3wK8unO #ItsANoBrainer #BrainTumourAwarenessMonth
#ItsANoBrainer, We Need a National Brain Tumour Strategy
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This #Fundraising Friday, we’re celebrating Fran Bowman and her fabulous group of nearly 100 friends and family who completed the Yorkshire Three Peaks last weekend. Fran and her team took strides for her daughter Alissa who was diagnosed with a rare unnamed brain tumour last Christmas when she was just 15 years old. The fantastic efforts of this team have raised £21,848.61 to date which is amazing, thank you!
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Whether it’s your own or a loved one’s, a brain tumour diagnosis can have a devastating impact on mental health. On #WorldMentalHealthDay, we want to highlight our incredible counselling service, available to anyone affected by a brain tumour. Having delivered over 6,000 sessions to date, visit the link to learn more about our counselling service and how it can support you. Head to the link to find out more. https://bit.ly/3U2Vx1o
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We need better, kinder treatments for glioblastoma. Dr Emily Bates has been awarded our Future Leaders grant for her work developing “smart viruses” to offer new treatments for glioblastoma. These “smart viruses” can target and kill cancer cells, while sparing healthy brain cells. They can also deliver immunotherapies to boost the immune system, aiming to reduce side effects and improve treatment. https://bit.ly/3U1Jrpm
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“It’s very important to me to know that the charity will be there in the future to bring much-needed support and to carry on the research so that more brain tumours can be treated and cured.” Claire was devastated when her husband Peter passed away just 7 months after his glioblastoma diagnosis. Grateful for the support she received from The Charity, Claire held a Twilight Walk in his memory and has now made the incredible decision to leave a gift in her Will. This #FreeWillsMonth, did you know you can make your Will for free using our Will-writing providers? Once you’ve provided for your loved ones, leaving a gift in your Will, like Claire, can help us accelerate progress towards a cure for everyone who will face a brain tumour in the future. You can read Claire’s heartfelt blog post and find out more about gifts in Wills by visiting the link in our bio. https://bit.ly/3NiX6Ey
Claire's Story - Guest post by Claire Watling
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Our second new Future Leader is Dr Mathew Clement, who is working on new ways to treat glioblastoma. Mathew is investigating how glioblastoma may avoid the immune system, with early findings suggesting that a protein called IL-10 could help cancer growth by blocking immune attacks. His research will develop ways to block IL-10 with antibodies and improve their delivery to the brain. This could offer new approaches to treating glioblastoma. https://bit.ly/4eB9LyW
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"I am encouraged by the work being done by The Brain Tumour Charity and Dxcover to advance the early diagnosis of brain tumours. The development of innovative technologies, such as Dxcover's liquid biopsy, demonstrates Scotland’s potential to lead the way in improving diagnostic pathways for complex diseases like brain cancer. “We are working collaboratively with all partners to ensure advancements are integrated into our healthcare system to benefit patients across Scotland." Health Secretary Neil Gray. Today, the Cabinet Secretary for Health and Social Care, Neil Gray, met with us and Dxcover, a Glasgow-based company developing tools to improve brain tumour diagnosis. We discussed how using new technology could help improve the brain tumour diagnosis pathway in Scotland. The team at Dxcover has developed a novel test using AI to analyse blood samples for biomarkers that may indicate a brain tumour. For the 1000 people in Scotland diagnosed with a brain tumour each year, we know there is an urgent need for prioritisation and innovation to ensure a faster and earlier diagnosis can be achieved, so we are pleased to be part of these decisions. https://bit.ly/3NcsuVq
Cabinet Secretary for Health in Scotland meets to discuss achieving faster brain tumour diagnosis
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This #FundraisingFriday, we’re saying a massive thank you to the App Team at Hastings Direct, who challenged themselves to a 7k walk around London with a fantastic dare challenge menu. Raising over £740 for The Charity, thank you so much for helping to improve the lives of those affected by a brain tumour diagnosis.
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This #NationalPoetryDay, we’re sharing a powerful poem written by Mike about his experience living with a brain tumour. Diagnosed with a Grade 2 astrocytoma 3 1/2 years ago, Mike underwent surgery to remove part of the tumour, followed by 18 months of radiotherapy and chemotherapy. Since his diagnosis and treatment, Mike has suffered from insomnia, and this poem was composed during one of his sleepless nights. Thank you so much to Mike for sharing his story and poem with us. ❤️
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“Brain surgery is a massive operation and a long recovery. There needs to be more research into understanding these types of tumours, why they grow, and what could be done to treat them other than invasive surgery and radiotherapy. The 8 June is a day that Emma will never forget. After months of several trips to her GP, eye clinics and A&E, Emma was finally diagnosed multiple meningiomas. The mum of three had surgery to remove the tumour that was pressing on her optic nerve. But surgeons couldn't remove all of the tumours, so Emma is on “watch and wait”, with scans every year. Emma’s treatment and the side effects of her diagnosis mean that she lives with fatigue and unanswered questions. Although meningiomas are the most common brain tumours in adults, there is still little known about them. Researchers like Dr Charlotte Eaton are addressing this by understanding the origin of meningiomas and trying to find better treatments, as part of our Future Leaders programme. After a long recovery, Emma is now back at work, and navigating her way back to normal with her family and three children. https://lnkd.in/e6Yiru8e
“Research into other ways of treating meningiomas could make a massive difference to people like me.”
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