TrialHub’s Post

SAIA's very own Sharan K. had the privilege of attending and speaking at Patients as Partners Europe (#PatientsEU2024) a few weeks ago in London, England! She shares her experience below:   "The day was packed with insightful sessions that highlighted the importance of integrating patient engagement early in research, understanding patient preferences, and leveraging innovative solutions to reduce patient burdens. These discussions were not only informative but also inspiring, showcasing how a collaborative effort can shape a more inclusive and efficient future for clinical trials. It was an honour for me to take part in an important session on 'Debunking Myths to Advance Diversity, Equity & Inclusion in Clinical Trials'. Our incredible panel of patients & professionals underlined the crucial role of diversity in clinical trials, emphasizing how diverse populations can help accelerate medicine development and significantly improve access, inclusivity, and health equity for all patients.    This experience reinforced the vital role that patient advocacy plays in advancing healthcare. By turning patient insights into actionable strategies, we can ensure that clinical research is more representative and beneficial for all communities. A huge thank you to COUCH Health, The Conference Forum, and SAIA for providing me with this incredible opportunity to connect with industry leaders and fellow advocates. Together, we are paving the way for a more patient-centric approach to healthcare."    🏷 #PatientAdvocacy #Diversity #ClinicalTrials #PatientsAsPartners #InclusiveResearch #HealthEquity #IBDesis #SouthAsianIBDAlliance #ClinicalResearch #PatientEngagement #LogKyaKahenge #Crohns #UlcerativeColitis #IBD #Desi

🌟 Get Ready to Dive Deeper! Join Us Every Tuesday for Our Q&A Clinic Sessions! 🤓🔬 Are you curious about clinical trials? Do you want to understand the fascinating world of clinical research? Well, you're in the right place! Starting this Tuesday, we're bringing you Q&A Clinic Sessions where you can ask all your burning questions and uncover the fundamentals of clinical trials. 👩🏾🦱👩🏾Meet the dynamic duo: two clinical trial professionals with a combined experience of 15 years in the industry. We're here to break it down, demystify the jargon, and guide you through some clinical research topics. But, here's the deal – these sessions aren't about medical advice; they're about understanding the research process, having an informal yet informative discussion, and gaining insights you won't find in textbooks. 😉 So, mark your calendars, set those reminders, and get ready to be part of a community passionate about knowledge. Join us every Tuesday, because the more you know, the more empowered you become. See you there! 🚀💡 #ClinicalTrialsQandA #EmpowerHealth #HealthEquity #ClinicalResearch #RepresentationMatters #DiverseHealthcare #InclusivityInResearch #EmpowerHealth #HealthJustice #CommunityHealth #ResearchForAll #BlackHealthMatters #HealthcareEquality #PatientEmpowerment #ResearchAwareness #breakingbarriers

Recap alert! Earlier this year, the Praxis team rocked the #SCOPE2024 conference with an inspiring panel on building trust through patient and community insights. Dive into the highlights on the blog and learn how we're enhancing clinical trial participation across diverse populations: https://bit.ly/3VGhtQ3 #clinicaltrials #diversity #communityinsights

🌟 Join Circuit Clinical's enlightening webinar to gain insights into how to reach patients through community healthcare and community-based research. 🔍 The expert speakers will explore enhancing access to hashtag#clinicalresearch for research-naïve patients within community-based research settings. Here's what we'll be covering: 💡 Operationalizing clinical research within communities with a focus on the patient 💡 Educating patients new to research: How can the healthcare industry help? 💡 Overcoming challenges faced by clinical trial participants 💡 Strategies for engaging with new research participants and improving access 💡 Enhancing access for underrepresented patient groups REGISTER HERE: https://buff.ly/3U7A4EZ 🌟 Expert speakers: Margaret Scott Melissa Harris Lisa C. #ClinicalTrials #DrugDevelopment #PatientCentricity #PatientRecruitment #PatientEngagement

Samuel Whitaker is the most recent guest on Trials with Maya Z. He is a Founder and CEO of Mural Health, a tech company on a mission to make it easy to participate in clinical research. Mural Health was founded in 2022 as Sam’s effort to evolve the product he invented, the ClinCard, when he founded Greenphire in 2008. Maya and Sam explore how one-third of Americans are excluded from participating in clinical trials due to financial constraints and eligibility for welfare programs. See all the pressing topics from this episode. 00:36 Introducing Sam Whitaker: A Clinical Research Innovator 02:18 The Reimbursement Dilemma: How It Affects Patient Diversity in Clinical Trials 30:21 Exploring Solutions: Legislative Efforts and Centralized Reimbursement Models 45:51 Empowering Change: How You Can Support and The Ideal World for Clinical Trials Find a link to the episode in a comment. #clinicaltrials #patientreimbursement

💡Clear information empowers patients. Transparency is key to building trust in clinical trials for ALL. Transparency is the cornerstone of trust in clinical trials. Patients deserve to know: 🔸The trial's purpose and goals 🔸Potential benefits and risks 🔸What to expect throughout the process Honesty Beyond the Basics: 🔹Acknowledge what's unknown: Be transparent about uncertainties and areas of ongoing research. 🔹Address community concerns: Actively listen to and address the fears and questions of diverse populations. By prioritizing transparency, we can: ✅Empower patients to make informed decisions about clinical trial participation. ✅Foster trust within all communities, leading to more inclusive research. ✅Work towards a healthcare system that serves everyone effectively. Transparent communication is essential for building trust and ensuring the success of clinical trials for all. #clinicaltrials #clinicalresearch #Diversity

My first DIA conference was a fantastic experience. I loved the variety of sessions and topics covered. It was made more fun with the opportunity to spend some time with Maria Healey! We got to catch up as friends and brainstorm some ideas for Firak Consulting Group.   Below are my top 5 takeaways from #DIA2024: 1) Instead of only focusing on how to increase diversity in clinical trials, what if as an industry we focused on running more effective studies, full stop. Making long-lasting changes to the clinical trial system will make it more inclusive. 2) DEI budgets are still lacking. Diversity is not study specific but the budgets are. How do we get more internal investment to meaningfully solve the challenges of inclusive enrollment? 3) How do we approach equity in the context of the time we live in today? How can we invest in making accessing healthcare easier for everyone, instead of just focusing on reaching underresourced communities? This was discussed during an all patient and caregiver panel, which was a first for DIA! 4) People don't screen fail. The trial isn't a match for them. Our words matter. Changing the screen fail verbiage may encourage people to find a trial that is a match for them. This was from one of my favorite sessions of the conference about how to reduce shame and blame in healthcare and clinical trial settings. 5) There is no such thing as good data without patient engagement. Conversely, there is no such thing as good patient engagement without data. How do we as patient engagement and patient advocacy professionals compliantly publish more about insights from our communities? You'll notice many of the learnings are still questions we have to answer as an industry. And I'm hopeful that every day we get a little closer to these answers! #PatientAdvocacy #PatientEngagement #ClinicalTrials #PatientInclusivity  

Are you patient INTEGRATED or just patient centred? I had an incredible time at Patients As Partners in Clinical Research Community News EU 2024. It was great to meet so many passionate people and hear the work they’re doing to advocate for patients in pharma. My main takeaway was that it’s not enough to be patient-centric. The patient perspective should be heard and acknowledged at each step of design and delivery. This is the key to producing meaningful work and outcomes. What can this look like? 1. Sending regular emails to research participants to update them on progress and share relevant news/ insights 2. Having internal patient boards that you consult on a regular, longitudinal basis 3. Have a mindset to give and not take from patients. Patients are people first and we must always remember that! Above all, we must remember to ‘mind the gap’, in the words of Xoli Belgrave . Consider barriers to participation, particularly those from under-served groups. #patientsaspartnerseu24 #patientvoice #patientadvocacy

Last day to get your conference giveaways from BCD. Grab a first-aid kit to soothe those conference walking blisters at the Diversity in Clinical Trials Summit. Continued essential conversations this morning about why representation matters to ensure health equity and how intentional collaboration promotes diverse trial participation. Honored to participate in this important event and meet the people moving the needle forward in life sciences. #clinicaltrials #lifesciences #patientengagement #patientcentricity

🌟 Elevating Clinical Trials: Simplify Recruitment with Video 🌟 Stacie Merritt advocates for a game-changing strategy in patient engagement: short, informative videos. By condensing study details into 2-3 minutes, sponsors can educate patients about the “nuts and bolts” of their study. 💡 A compelling visual narrative not only educates but also inspires patients to actively participate, driving forward the progress of vital research endeavors. 👌🏾 #PatientEducation #Innovation #scrs2024 #healthliteracy #ClinicalTrial #ClinicalResearcg