#NewbornScreening (NBS) is one of the most successful public health programs of all time, yet current limitations create a significant #equity challenge nationwide. It is unacceptable for a baby’s health outcomes to depend on their birth state. Political intervention is crucial to ensure equitable access to screening for all newborns. Lisa Kahlman, Executive Director of Public Policy and Public Affairs, calls on Congress to pass the Precision Medicine Answers for Kids Today Act to improve health outcomes for people living with rare and ultrarare diseases. Discover the potential impact of this policy in our blog: https://lnkd.in/epphMJFv
Heart disease is the #1 killer in the world, yet we don’t have universal screening in newborns for familial hypercholesterolemia.
Interesting insight on the importance of equitable newborn screening. How does the proposed act address this issue?
Patient & Market Access Leader, Advisor and Coach | Access2Health CEO |Empowering organizations to accelerate PEOPLE access to healthCARE.
8moNBS is one of the most effective and efficient interventions : early diagnosis allows for early treatment which in rare genetic disorders such as SMA (spinal muscular athropy) makes the difference between a normal life and death or severe disability.