Valeria Gigante’s Post

📣 Are you attending the 2024 Health Technology Assessment international (HTAi) Annual Meeting (in-person or virtually)? Be sure to check out the presentations and activities CaPPRe is participating in:   🔷 Sunday 16 June, 1:30-5pm - WS22 Patient And Citizen Involvement In Health Technology Assessment: Networks For Sustainability And Innovation. During this workshop, Simon Fifer and Catherine Koola Fischer will be leading a discussion group on patient preferences in HTA.   🔷 Tuesday, 18 June 2:35 – 3:35pm - Presentation session 32: Healthcare Innovations: Outcomes, Diagnostics, and Safety Insights ➡OP80 Generating Patient Preference Evidence For HTA: A Sustainable Roadmap ➡OP81 Experience Matters: A Discrete Choice Experiment Exploring Patient Preferences For Heart Valve Procedures.   🔷 On-demand viewing on conference platform: OD03 Quantifying The Value of Knowing: Measuring Patient Community Preferences For Genomic Testing in Rare Diseases. This is a pre-recorded presentation on an exciting co-designed project in partnership with Nicole Millis, Falak Helwani, Sarah Norris, Deborah A Marshall, Gillian Mason, Jack Nunn.   💡 Want to learn more about patient preference research? Simon Fifer will also be hanging around the HTAi Patient & Citizen Involvement in HTA Interest Group booth and distributing some materials developed by PCIG's patient preference project subcommittee. #patientvoice #patientpreferences #HTAi2024Seville  

Mark your calendars for the highly anticipated virtual global summit on May 1st where key industry leaders across the globe will share in an open panel discussion the proposed recommendations to address the economic and operational gaps limiting the advancement of precision medicine. In 2023, a multi-stakeholder Forum was established to urgently address the specific economic gaps limiting the advancement of precision testing as identified in Diaceutics’ widely cited Clinical Practice Gaps paper published JCO in 2022. Sarah Hersey, Vice President and Head of Precision Medicine at Bristol-Myers Squibb and Forum member expressed: "This forum will serve as a healthy discourse to address the root complexities surrounding precision medicine and economic barriers. Together, the precision medicine community can identify possible solutions to close the clinical care gaps and help increase access to effective treatments for patients in need." Attendees will have the opportunity to contribute to a white paper of recommendations for industry and policy makers, playing a critical role in shaping the future of precision medicine. Register for free today: https://lnkd.in/edPcGVNX #PrecisionMedicine #HealthcareInnovation

#AntimicrobialResistance (#AMR) is among the main challenges to global health and development. It is considered as a tragedy of the commons => we are all affected, we can all contribute to the solution. The Multi stakeholder Hearing for 2024 #UNGA HLM on AMR that will be held in NY on 15th May 2024 is now OPEN. Registration by 24 April 2024: https://lnkd.in/djWKky4j 3 Proposed discussion Panels 💸 Panel 1: Adequate, predictable, and sustainable financing of and investments in the AMR response to support country-level implementation. •Optimizing domestic resources for sustainable impact across sectors: •Transforming international financing options for AMR 🔬 Panel 2: Addressing antimicrobial access, research and development (R&D), and innovation. •Enabling access and appropriate use of antimicrobials and accelerating R&D to address AM •Cross-sectoral system transformation for prevention, diagnosis, and treatment of AM 💡 Panel 3: Effective governance, leadership, and coordination of the AMR response at the national, regional and global levels •Strengthening national, regional and global leadership and coordination •Revitalizing the Global Action Plan on AMR 👉 #FAO #UNEP #WHO #WOAH #Quadripartite #UNGA24 #OneHealth

Happy to be participating in this important panel discussion on the value of innovative medicines. In this session, I will focus on: 💎 The 3 layers of value: value for patients, value for healthcare systems and value for society. Also see our earlier report on Demonstrating the power of innovation in Europe: https://lnkd.in/eE6rcBn9 🔎 The need to broaden the perspective on spending on innovative medicines over time and across budget silos to acknowledge that spending on medicines is an investment and not a cost. Also see our earlier report Broadening the Perspective: https://lnkd.in/eKT_92sD Vintura, EFPIA - European Federation of Pharmaceutical Industries and Associations

🌟 𝗠𝗮𝗷𝗼𝗿 𝗟𝗲𝗮𝗽 𝗶𝗻 𝗦𝗷𝗼̈𝗴𝗿𝗲𝗻'𝘀 𝗗𝗶𝘀𝗲𝗮𝘀𝗲 𝗥𝗲𝘀𝗲𝗮𝗿𝗰𝗵 𝗮𝘁 𝗢𝗠𝗘𝗥𝗔𝗖𝗧 𝟮𝟬𝟮𝟯 🌟 🧑⚕️ Thrilled to share a significant breakthrough from the OMERACT 2023 meeting, where the Sjögren's Disease Working Group, including Dr. Raouf Hajji, MD, PhD., co-founder of International Medical Community (IMC) and its Medical Lead, made crucial strides towards defining core domains for Sjögren's Disease. 📊 Sjögren's, known for its systemic impact and symptom heterogeneity, has long presented challenges in treatment development. This meeting marked a pivotal moment, with over 145 global experts pooling their multidisciplinary insights to refine and agree on a set of standardized core domains. This effort aims to accurately reflect the disease's diverse manifestations and incorporate the patient perspective more fully. 🩺 The group's methodology involved an extensive literature review and collaborative discussions, highlighting the importance of evolving current assessment tools to encompass the full patient experience. This collaborative push under the OMERACT framework signifies a shared commitment to enhancing clinical research and ultimately, patient care for those living with Sjögren's. 🤝 Let's celebrate this step forward in creating a more nuanced understanding of Sjögren's and stay tuned for more updates on this inspiring journey towards innovative treatments and improved quality of life for patients worldwide. Read more here: https://lnkd.in/dreavhWg #SjögrensDisease #OMERACT2023 #HealthcareInnovation #MedicalResearch #Collaboration #PatientCare

REGISTER: https://lnkd.in/gaNa9BFx As this year's ESMO Congress comes to a close, our expert panel in Sydney is ready to share the key updates from the event. Join them live or in-person as they discuss the impact of these updates on Australian clinical practice. #ESMO2023 #ESMO23

Let’s talk about pharmaceutical #innovation and the revolution our medicines bring to Society and Economy!

ISCR and its role in capacity building and policy shaping in clinical research

Traditional Medicine Data - joining the digital health revolution Next week Heather will be the keynote speaker at the International Conference for Global Cooperation in Traditional Medicine. Interoperability is a key focus for digital health around the world, and the movement towards more standardised information models, such as openEHR and terminologies standards (SNOMED-CT) and information exchange standards (HL7) in conjunction with best practice procedures documented by ISO is an opportunity for those who practice traditional medicine to have their data join the digital health revolution. Imagine our existing digital health infrastructure extended to include traditional medicines.  The benefits include safer practice - as it would be easier to identify potential contraindications for care, research into effectiveness could be undertaken in a more wholistic way. Heather will present the opportunities to help the traditional medicine global community to cooperate more effectively to be included, particularly through engagement with existing standards and processes. This conference is being held from September 19 - 21 at the World Traditional Medicine and Anti-aging EXPO in Sancheong, Donguibogam Village, South Korea - hoping to see some of you there,

During the Global Summit keynote at #ACR23, Jayasree K. Iyer, PhD, MSc, highlighted opportunities to increase access to medicines for patients around the world. Read a recap in ACR Convergence Today → https://acr.tw/3udtouF