Video Journal of Dementia (VJDementia) reposted this
At the 18th Annual Congress on Controversies in Neurology (CONy 2024) ADI CEO Paola Barbarino discussed with Video Journal of Dementia (VJDementia) about investment in #dementia and Alzheimer's disease therapeutics. She also expressed concerns that patients are being denied their human right to make informed decisions about their treatment options due to access issues. As populations age, dementia is set to become an even more significant health challenge and is currently the 7th leading cause of death globally. #DementiaTreatments #TimeToActOnDementia #WhatsYourPlan #ADI
In the second extract from the interview I talked about in my post yesterday, I raise concerns about the awareness, accessibility, and affordability of new disease-modifying therapies. High costs may prevent reimbursement for those who could benefit. Even before considering treatment costs, global diagnostic capabilities represent a huge barrier, with many healthcare systems lacking the resources and trained clinicians for accurate and timely diagnosis. I also highlight the scarcity of medical professionals who recognize dementia as a disease, citing the 2019 World Alzheimer’s Report where 62% of respondents did not view dementia as a disease, but a normal part of aging. The lack of understanding extends beyond the general public, affecting medical communities and contributing to the stigma surrounding dementia. This interview took place at the 18th Annual Congress on Controversies in Neurology (CONy 2024) in London, UK and is referring to a broader lecture I gave on the subject. https://lnkd.in/eeqci9CA
