Cystic Fibrosis Canada / Fibrose kystique Canada

Cystic Fibrosis Canada / Fibrose kystique Canada

Non-profit Organizations

Toronto, Ontario 11,838 followers

About us

Cystic Fibrosis Canada is a national not-for-profit corporation and one of the world’s top three charitable organizations committed to improving and lengthening the lives of people living with cystic fibrosis. In our 60 year history, we have advanced cystic fibrosis research and care that has more than doubled life expectancy for Canadians living with cystic fibrosis. We’ve contributed to the global body of CF knowledge, funding research achievements such as mapping the gene that causes cystic fibrosis, in 1989. And we’ve advanced access to life-changing CF medicines in Canada through relentless advocacy and government relations work. Today, CF Canada is a leading organization with a central role engaging people living with cystic fibrosis, parents and caregivers, volunteers, researchers and healthcare professionals, government and donors. We work together to change lives through treatments, research, information and support. * Fibrose kystique Canada sommes un organisme de bienfaisance national à but non lucratif et l’un des trois principaux organismes de bienfaisance au monde voués à l’amélioration et au prolongement de la vie des personnes fibro-kystiques. Au cours de nos 60 ans d’histoire, nos avancées dans les domaines de la recherche et des soins ont plus que doublé l’espérance de vie des Canadiens fibro-kystiques. Nous avons contribué à l’ensemble des connaissances mondiales sur la FK et financé des réalisations en recherche, notamment la cartographie du gène responsable de la fibrose kystique en 1989. Nous avons également fait progresser l’accès aux médicaments révolutionnaires contre la FK au Canada, grâce à notre travail constant de défense des droits et de relations avec les gouvernements. Aujourd’hui, FK Canada est un leader quant à l’engagement des personnes touchées par la maladie : celles qui vivent avec la maladie, les parents, les aidants, les bénévoles, les chercheurs et les professionnels de la santé, les gouvernements et les donateu

Website
http://www.cysticfibrosis.ca
Industry
Non-profit Organizations
Company size
51-200 employees
Headquarters
Toronto, Ontario
Type
Nonprofit
Founded
1960

Locations

Employees at Cystic Fibrosis Canada / Fibrose kystique Canada

Updates

  • Learn more about the benefits of Donor Advised Funds below!

    View profile for Kate White, CFRE, graphic

    Director, Philanthropy & Corporate Partnerships | Development Strategist

    October 10 is DAF Day!   Donor Advised Funds are enormously popular charitable giving vehicles—known for their ease and flexibility. Through a Donor Advised Fund, individuals can make a charitable contribution, receive an immediate tax deduction, and then recommend grants from the fund over time. Many donors have established Donor Advised Funds to streamline their giving and maximize their impact to Cystic Fibrosis Canada.   Donor Advised Funds are for individuals at every stage of their charitable giving journey—whether you’re just getting started in philanthropy, looking to expand your giving, or creating a legacy gift.   Learn more about the benefits of Donor Advised Funds below. Connect with me to discuss making a gift to Cystic Fibrosis Canada / Fibrose kystique Canada through your fund.

  • Last year, your support helped us provide updated clinical guidance to cystic fibrosis specialists, so that patients can receive the best possible care as the CF landscape evolves. Learn more and discover other examples of the difference you make: https://bit.ly/3JK5Z8m ------ L’année dernière, votre soutien nous a permis de fournir des mises à jour aux lignes directrices cliniques dédiées aux spécialistes de la fibrose kystique, afin que les patients puissent recevoir les meilleurs soins alors que le profil de la maladie évolue. Pour en savoir plus et découvrir des exemples de la différence que vous faites : https://bit.ly/3UEpSnA

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  • We are thrilled to welcome Huda Al-Saedy to Cystic Fibrosis Canada as our Chief Development Officer. Based in Vancouver, with great experience in the national charity space, we are looking forward to Huda’s leadership and innovative, collaborative fundraising approach. Welcome, Huda!

    View profile for Sandra Paquette, graphic

    CEO

    Exciting News: Huda Al-Saedy Joins Cystic Fibrosis Canada as Chief Development Officer We are thrilled to announce that Huda Al-Saedy has been appointed as the new Chief Development Officer at CF Canada. In this crucial role, Huda will spearhead CF Canada's national fundraising initiatives, overseeing a dedicated team of over 20 staff members. Her leadership will be instrumental in driving the organization's annual revenue, which is vital for achieving its mission goals for the CF Canada community. Huda brings a wealth of experience in fundraising and charitable work. Her career began in the UK, where she held several roles for a national children's charity. Following this, she made a significant impact while working with the UNHCR in Jordan. After relocating to Canada, Huda joined the Canadian Cancer Society in British Columbia as their Annual Giving Manager. In just three years, she established herself as a leader in the field before transitioning to Ecojustice Canada as the Director of Philanthropy. At Ecojustice, Huda played a pivotal role in transforming the organization from a $4 million charity into a thriving $12 million entity, all while expanding the fundraising team nationally. Her innovative approach included the development of a new mid-level program and enhancements to major giving - remarkable achievements considering that only 1% of charity dollars are directed towards environmental organizations. What truly set Huda apart during the recruitment process was her commitment to growth and her strategic mindset. Her references praised her vision and leadership, with one former boss describing her as courageous and unafraid to challenge conventional thinking. Huda's dedication to diversity and inclusion will undoubtedly enhance the CF team's efforts and foster a welcoming environment. Residing in Vancouver, Huda will not only support CF Canada's national fundraising strategy but will also focus on strengthening relationships on the West Coast. We are confident that Huda will make a lasting impact at Cystic Fibrosis Canada, and we wish her all the best in her new role. Welcome aboard, Huda! Your journey with CF Canada begins now, and we look forward to seeing the incredible things you will accomplish. Huda Al-Saedy Kelly Grover Nabila Mohammed, MBA, CPA, CMA Phoebe Dey Paul Eckford

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  • Congratulations to Louise Taylor!

    View profile for Kelly Grover, graphic

    CEO I strategist I integrator I relationship builder I culture transformer

    This past weekend, the renowned CF nurse, Louise Taylor was honoured by the Faculty of Health Sciences at the University of Western ON with the Lifetime Achievement Award. This award is so well deserved! Louise hung up her work shoes a while ago, but continues to support us as an amazing volunteer and supporter. Congrats Louise!

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  • Vous êtes invités! 📅 Participez à notre séance de discussion qui aura lieu en français le 14 novembre à midi HE/9 h HP. Kelly Grover, présidente et chef de la direction de FK Canada, vous présentera les nouveautés en matière de recherche et de soins, vous serez inspirés par les récits des membres de la communauté FK canadienne qui façonnent un avenir sans limites, et vous apprendrez comment vous pouvez aider. De plus, le Dr Theo Moraes, pneumologue en pédiatrie, chercheur principal au Hospital for Sick Children (Sick Kids) de Toronto et lauréat du Prix Impact de la recherche Cathleen Morrison de FK Canada, parlera de ses travaux de recherche fascinants et avant-gardistes sur les cellules épithéliales des voies respiratoires humaines - cellules qui tapissent les voies respiratoires des poumons – et de la façon dont elles pourraient révolutionner les traitements offerts aux personnes atteintes de FK. https://bit.ly/47z3rVO

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  • You’re invited! 📅 Join our Community Townhall Meeting on Wednesday, November 6, 12:00PM EST/ 9:00 AM PST. You will hear from CF Canada’s President and CEO Kelly Grover on the latest updates in CF research and care, be inspired by stories of how Canadians CF community members are shaping a future without limits and learn how you can help. You will hear from CF Canada’s Cathleen Morrison Award Winner and pediatric respirologist and senior scientist at SickKids (Toronto), Dr. Theo Moraes. He will speak on his fascinating and groundbreaking research into human airway epithelial cells - cells that line the airways of our lungs and how it could be transformational for treating people with CF. https://bit.ly/3XOnzQp

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  • Joignez-vous à Amélie, directrice de la division Québec dans notre mission pressante pour faire progresser la recherche sur la fibrose kystique (FK). 🌟 Nous visons à recueillir 40 000 $ pour financer la recherche et des essais cliniques essentiels qui pourraient transformer des vies. Votre soutien aujourd’hui est synonyme d’espoir et d’innovation pour les personnes atteintes de FK. N’attendez pas; aidez-nous dès aujourd’hui à atteindre notre objectif! https://bit.ly/47L6MRW

  • Les candidatures pour les prix communautaires 2024 doivent être reçues d’ici lundi prochain, le 30 septembre 🌟 Ne manquez pas l’occasion de soumettre la candidature d’une personne, d’un groupe ou d’une entreprise ou société qui s’est surpassé(e) et qui a eu un impact significatif sur la communauté fibro-kystique. 💝 Soumettez votre mise en candidature dès maintenant! https://bit.ly/3GPc9AU

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