Global Heart Hub

As a heart valve disease patient myself and more importantly a husband, and dad to 2 daughters, it was a priviledge to be part of this meeting today in Madrid. Thank you to all the delegates and my GHH colleagues Karen Padilla and Teresa Glynn for the vision.

We ❤️ this! Thank you Jens Naeumann

💜 Global Heart Hub, in collaboration with EngageMinds HUB hosted a thought-provoking and insightful in-person roundtable in Madrid today, focusing on improving the patient pathway for women with heart valve disease. 👥 This event was co-chaired by Jacqueline Lewis, Patient Advocate, UK and Prof. Marta Sitges, Hospital Clínic, Universitat de Barcelona, Spain, bringing together 30 international experts from 14 countries representing the heart team, patient advocates, patient organisation leaders, researchers, policymakers, and industry partners. 📢 This roundtable serves as a crucial step towards developing a consensus-driven report incorporating international expert insights to drive advocacy improvements in the patient pathway for women with HVD in different countries and settings. 🫀 We need to start thinking #HeartFirst. #ListenToYourHeart #ListenToHerHeart 🙏 A huge thank you to all who contributed—we look forward to sharing the outcomes soon!   Guendalina Graffigna Jacqueline Lewis Martha Gulati Ellen Ross Maite San Saturnino Dr Nicola Straiton Elena Gallego Díez-Canseco Jens Naeumann Callum Ferguson Sarah Early Professor Vijay Kunadian Nina Ajmone Marsan Wilbert Wesselink Natalie Papo Andresa Costa Pereira Teresa Glynn Karen Padilla Neil Johnson #WomenAndHVD #WomensHeartHealth #HeartValveDisease #CVD

📍 Global Heart Hub is in Madrid this week, bringing together 30 international experts for a full-day roundtable discussion on improving the pathway for women with Heart Valve Disease (HVD).    💬 With much to discuss, experts from the heart team, patient advocates, patient organisation leaders, researchers, policymakers, and industry partners will identify recommendations and actions to improve awareness, early detection and the care pathway for women with HVD. 📑 The report will contain tangible actions and recommendations to support patient organisations, together with key stakeholders, to advocate for improvements to the patient pathway for women with HVD worldwide.    Stay tuned for updates!    #WomenAndHVD #WomensHeartHealth #HeartValveDisease #CVD   Jacqueline Lewis Marta Sitges Andresa Costa Pereira Guendalina Graffigna Teresa Glynn Karen Padilla Neil Johnson

🫀 Did you know? Your Lp(a) level is 80-90% genetically determined! Elevated Lp(a) is an independent risk factor for cardiovascular disease, and if a parent has high Lp(a), you have a greater chance of inheriting it too. Most people with elevated Lp(a) have no symptoms and no idea they’re affected—you won’t know unless you get tested. This is why we must raise awareness of this common genetic condition, which can lead to early heart disease and stroke. Lp(a) testing and management must become a public health priority! 💜 Spread the word! #LpaAwarenessDay FH Europe Foundation 📢 For more information, visit: https://lnkd.in/exiPjhzH #knowLpa #LpaAwarenessDay #UseHeart #CVhealth

Looking forward to the first-ever Global Summit on Elevated Lp(a) taking place in Brussels, on March 24. You may never have even heard of it - but ‘Lp little a’ is a blood lipoprotein which at certain levels in your blood places you at increased risk of a heart attack, stroke & heart valve disease. High Lp(a) is an inherited condition affecting as many as 1 in 5 people across the world but less than 2% of the world’s population have been tested!

📍 We are at #DIAEurope2025 in Basel, 🇨🇭 We are honoured to be invited to #DIAEurope2025 as a patient partner for this year’s event. DIA Europe 2025 is the 37th annual European regional meeting, recognised as the largest neutral conference in the European life sciences arena, serving as a hub for professionals from science, healthcare, regulatory bodies, patient organisations, and industry to discuss and shape the future of healthcare. This year #DIAEurope2025 is collaborating for healthcare innovation, bringing together professionals from science, regulatory bodies, patient organisations, and industry to transform insights into action.   GHH EU Projects Manager Marta Bragagnolo is in attendance representing the patient perspective - helping bridge the gap between policy discussions and real-world expertise to ensure that healthcare systems are patient-centric and equitable.   Thank you for hosting us #DIAEurope #Conference #HealthcareInnovation #CVD

As a proud partner of the first Lp(a) Global Summit, Global Heart Hub is supporting the call to ensure that Lp(a) testing and management become a public health priority.  Elevated Lp(a) is an inherited cardiovascular risk factor, affecting 1 in 5 people globally—over 1.4 billion individuals. This Summit marks a turning point in global cardiovascular health #CVH advocacy. The Summit, hosted by FH Europe Foundation, is the first global event of its kind, bringing together leading international experts in Lipoprotein(a) [Lp(a)], key policymakers, and patient organisations to address one of the most overlooked yet critical issues in cardiovascular health. The key outcome of the Summit is the launch of the Brussels International Declaration on Lp(a) – a global policy framework urging governments to integrate Lp(a) testing into cardiovascular health strategies. 📍 Stay tuned for key insights, policy announcements, and ways to get involved! Together we are stronger 💜 #LpaGlobalSummit #PreventThePreventable #CardiovascularHealth #knowLpa #UseHeart #CVhealth #LpaAwarenessDay

GHH is delighted to contribute to the discussions today at #fokuspatient #futuredays in Stockholm #patientvoice #ASCVD #heartdisease

Lovely to be in Elite Palace Hotel Stockholm for the FOKUS Patient Future Days Conference 2025. Excellent discussions on the big issues impacting global health #Climate #Ageing #NCD’s #HealthSecurity #Factbased-Information. Global Heart Hub is delighted to support this great meeting #fokuspatient #futuredays