Cambridge Rare Disease Network (CamRARE)

What does the new Rare Disease Research Network (RDRN) launching in November at #RAREfest24 believe in?

Hi Sponsor #RARFest24 and out your company in front of thousands! We’re looking for 4 more sponsors. Can you help? YOUR sponsorship = THEIR spotlight What do companies like yours find unique and compelling about being a #RAREfest24? ❤️ Share your commitment to improving outcomes for those affected by rare conditions 🤝 Put your organisation in front of rare disease stakeholders, find your next collaborator and make your perfect match 🌎 Build your network through our global network 💡 Enable us to create a free public facing event to spread awareness about rare and inspire the next generation of scientists and innovators! 🎟️ Receive complimentary membership of CamRARE’s Companies Forum for gold sponsors To download the range of sponsorship packages available, visit our RAREfest24 webpages or drop our MD jo@camraredisease.org a line. https://lnkd.in/e4Uy6fjj A huge thank you to RAREfest exhibition sponsors Healx Kyowa Kirin Co., Ltd. Evolution Education Trust LifeArc Alexion Pharmaceuticals, Inc. #RAREfest24 #RAREfest #RareDisease #RareConditions #Sponsorship #CorporateSocialResponsibility

What’s on at #RAREfest24 in Cambridge – Sat 23 Nov? 🚀 Step into the Powerhouse of Genomics Testing with NHS East Genomics! Have you ever wondered how your DNA can unlock the secrets to your health? At RAREfest24, NHS East Genomics is bringing you up close to the cutting-edge world of Whole Genome Sequencing—a game changer for diagnosing rare diseases faster and more accurately than ever before. 🔬 Ever thought about what happens after you give a DNA sample? Dive into the journey your DNA takes from a simple tube in the clinic to a high-tech genomic diagnosis in the lab. It’s like a detective story happening at the microscopic level! 🎮 Get hands-on with fun games and activities! Test your skills and learn about the steps involved in diagnosing genetic conditions. Plus, explore awesome career paths in the fascinating field of #genomics. Whether you're into science or just curious, there's something for everyone. Don’t miss out on the chance to explore, play, and discover at this one-of-a-kind festival! For curious minds of all ages, for FREE🌟 Grab your tickets now at https://lnkd.in/evQ8CPkY #RAREfest #Genomics #DNA #WholeGenomeSequencing NHS England University of Cambridge Ian Kingsbury

Cambridge Rare Disease Network (CamRARE)'s #CompaniesForum: Can we collaborate to collect health-related quality-of-life data that has the minimum impact on the patient community and the maximum impact with Payers?

A HUGE thank you to some of our fabulous #RAREfest24 media partners... Cuttsy+Cuttsy® patientworthy.com Cambridge Rare Disease Society The Children's Hyperinsulinism Charity Medics 4 Rare Diseases ... for helping to spread the word about our educational, inclusive event, our work and theirs! Check out what all of these brilliant organisations are doing to raise awareness, support people living with rare conditions and drive research and development of treatments. Want to become a media partner too? Sign up here: To find out more and get your FREE ticket to attend #RAREfest live in Cambridge this year on Sat 23 November click here: bit.ly/RAREfest24_Home (live link in bio)

Why attend RAREfest24? Become inspired like Jenny! After attending RAREfest22, medical student Jenny Yang was inspired to found Cambridge Rare Disease Society (CamRDS)! This flourishing new student society aims to raise awareness about rare diseases, particularly among medical students, while fostering a supportive community for those living with rare conditions. "I’m so glad I decided to attend [RAREfest22]! As a preclinical medical student at the time, I was eager to learn about the ongoing scientific research. However, what truly surprised me was discovering the collective prevalence of rare diseases (1 in 17) and hearing the powerful stories of patients. Learning about their diagnostic journeys and the profound impact healthcare professionals can have when they #daretothinkrare left a lasting impression on me. The human experiences, rather than the science, resonated most deeply with me that day." Read more in Jenny's blog here... https://lnkd.in/eSfBwsUK University of Cambridge

Welcoming recent Healx as bronze sponsor of #RAREfest24 Cambridge based Healx develop AI-powered, patient-inspired treatments for rare diseases (of which only 5% of over 10,000 have an approved treatment). Winners of the recent Life Science AI award at the 34th #BusinessWeeklyAwards! This award reflects their team's dedication to revolutionising #raredisease treatment through cutting-edge AI-driven drug discovery. By using #AI and other frontier technologies to redevelop, combine and enhance known treatments, Healx are building a pipeline of new and effective therapies for rare disease patients. To find out more about rare disease and the amazing innovations in health science and technology come along to RAREfest on 23 November: bit.ly/RAREfest24_Home Business Weekly newspaper Tim Guilliams David Brown

Can you help spread the word about #RAREfest24 ? 📣 Become a media partner for our unique event celebrating everything RARE in the heart of Cambridge on 22 & 23 November 2024! We’ll provide graphics and content for you to share and as a thank you will help put your organisation or advocacy in the spotlight too! Sign up and find more information here: https://lnkd.in/eWXW7YRA

A HUGE thank you to some of our fabulous #RAREfest24 media partners... TANGO2 Research Foundation Flutters and Strutters NCBRS Worldwide Foundation United Advocacy Australia CHAMP1 UK ... for helping to spread the word about our educational, inclusive event, our work and theirs! Check out what all of these brilliant organisations are doing to raise awareness, support people living with rare conditions and drive research and development of treatments and give them a follow. Want to become a media partner too? Sign up here: https://lnkd.in/eWXW7YRA To find out more and get your FREE ticket to attend #RAREfest live in Cambridge on Sat 23 November click here: bit.ly/RAREfest24_Home #RareConditions #RareDisease #RaiseAwareness #CambridgeEvent

📣 Announcing Wellcome Connecting Science Engagement and Society as a Saturday Exhibitor at #RAREfest24 Sequencing DNA to Understand How our Bodies Work DNA is the instruction book for our bodies. But how do we read it? And how is our growing understanding of DNA changing medicine? Wellcome Genome Campus are on a mission to enable everyone to explore genomic science and its impact on research, health and society. Drawing on the ground-breaking research taking place on the Wellcome Genome Campus, Connecting Science inspires new thinking, sparks conversation, supports learning, and measures and understands global attitudes and perspectives. https://lnkd.in/eGTtJQqr Join us at RAREfest24 in Cambridge on 23 November, where the Wellcome Genome Campus team will be exploring DNA sequencing practically with real-world examples. “We can’t wait for RAREfest – speaking with people at this festival sparks so many ideas and emotions. It really opens up what DNA science means for them and that changes what it means for us.” To find out more and get your tickets, head over to our website: https://lnkd.in/eWw2X4uf