Cambridge Rare Disease Society

A HUGE thank you to some of our fabulous #RAREfest24 media partners... Cuttsy+Cuttsy® patientworthy.com Cambridge Rare Disease Society The Children's Hyperinsulinism Charity Medics 4 Rare Diseases ... for helping to spread the word about our educational, inclusive event, our work and theirs! Check out what all of these brilliant organisations are doing to raise awareness, support people living with rare conditions and drive research and development of treatments. Want to become a media partner too? Sign up here: To find out more and get your FREE ticket to attend #RAREfest live in Cambridge this year on Sat 23 November click here: bit.ly/RAREfest24_Home (live link in bio)

RAREfest24 is coming up in November! This is a free event in Cambridge organised by Cambridge Rare Disease Network (CamRARE) Read about why our society’s founder and President Jenny Yang decided to set up CamRDS after attending RAREfest22 by following the link to the blog post! https://lnkd.in/eSfBwsUK More details and tickets (free) to attend RAREfest can be found here: https://lnkd.in/e8kZzECj

May the fourth be with you! You are invited to attend a stellar event - "Galactic Genomes - Exploring the Universe of Rare Diseases".   Cambridge University Rare Disease Society (Cam RDS) and the Cambridge University Genomic Medicine Society (CUGMS) are excited to co-host a conference on Saturday 4th May 2024, 9:30-16:00 at the School of Clinical Medicine.   Join us for a day of talks from leading researchers, poster presentations, rare disease patient voices and representation from over 15 rare disease charities. There will be great opportunities for networking, and free lunch and refreshments throughout the day will be provided! There will be presentations on multi-omic approaches to cardiovascular disease, mitochondrial diseases, imprinting disorders (Angelman Syndrome), as well as the chance to meet and talk to representatives from a wide variety of charities which will have stalls set up over lunch (e.g. Metabolic Support UK, Sickle Cell Society, Dyskeratosis Congenita / Telomere Disorders Consortium, Primary Ciliary Dyskinesia, Cardiomyopathy UK... and more!)   Sign up here for entry to the conference: https://lnkd.in/eV3NFqH8   There will also be a research poster competition, with separate categories for rare disease research and genomic medicine research - please complete this separate form to submit an abstract (more details in the form): https://lnkd.in/eSrCQwxw   Stay updated via our Facebook event page: https://fb.me/e/1UEd8ESdt If you have any questions, please feel free to contact Jenny Yang (CamRDS President 2023-24) at jjy27@cam.ac.uk Medics 4 Rare Diseases, Cambridge Rare Disease Network (CamRARE), Thiloka Ratnaike, Jenny Yang