Great Ormond Street Hospital for Children NHS Foundation Trust

Join us in the countdown to #RareDiseaseDay 2025 📅     28 February is Rare Disease Day – a global opportunity to increase awareness and advocate for those living with rare conditions.     The facts and stats:    ➡️ A disease is considered rare if it affects fewer than 1 in 2,000 people.     ➡️ Though rare conditions are individually rare, collectively they are common with 1 in 17 people being affected by a rare disease.     ➡️ 7 in 10 rare diseases affect children.    We are committed to ensuring advancements in care for rare diseases aren’t left behind:    ⭐ By carrying out cutting-edge research and innovation every day, we strive be at the forefront of new treatments and digital advancements.    ⭐ With 80% of rare diseases being genetic, our contributions to genomic testing play a vital role in supporting the rare disease community.     ⭐ While all childhood cancers are considered rare, over 5 children are being diagnosed with cancer each day. This is why we are really excited that with support from Great Ormond Street Hospital Charity, we are building a new Children’s Cancer Centre which will make a big difference to the care that we can provide.     Keep an eye out for stories and events that we will be sharing on our channels throughout the month!     Join in by sharing your stories about why caring for rare disease is so important - Remember to tag us and use the hashtag #RareDiseaseDay   Rare Disease Day, NHS North Thames Genomic Medicine Service, GOSH DRIVE

This Lunar New Year, we are celebrating the Year of the Snake! 🐍✨ In many cultures, the snake symbolise wisdom, transformation, and intuition. As we step into this new year, may it bring growth, resilience, and positive change for all. Join our patients and staff as they share what Lunar New Year means to them and how they celebrate this special occasion. Wishing everyone happiness, prosperity, and good health in the Year of the Snake! 🏮🎊

Last week we hosted our first national Gene Therapy in Paediatrics event. 💡 We were joined by over 60 clinicians from across the UK who were interested to learn more about gene therapy and how it applies to paediatric care. It was a brilliant day of talks and lively panel discussions which covered gene therapy technologies and the latest advancements in gene therapy. 🧬 We also heard from patients who have experienced gene therapy and their families. "I feel like I've been hiding under a rock. Despite requesting and seeing the results of genetic testing, I had no idea of the extent to which gene therapy was being applied, both here and globally. Thank you for this day." - Feedback from attendee We want to thank everyone who attended the day and provided their valuable feedback which will help us shape future events. The event was supported by NIHR GOSH BRC, Great Ormond Street Hospital Charity, Muscular Dystrophy UK, Orchard Therapeutics and the Batten Disease Family Association. 🤝 NIHR (National Institute for Health and Care Research) #GeneTherapyinPaediatrics2025 #GeneTherapy #Research

Supporting the mental health of young people with chronic conditions 🧠 Children with rheumatological conditions, such as Juvenile Arthritis, often face significant mental health challenges. While psychologists provide vital support, the shortage of trained professionals across the UK means access is limited. The IMPACT Study, led by Dr. Polly Livermore, NIHR (National Institute for Health and Care Research) ACAF Nursing Fellow and a team of researchers, have developed ‘Rheumbot’ a chatbot app to help families navigate these challenges. Co-designed with young people, the app offers instant, at-home mental health and well-being support, bridging the gap between hospital visits and everyday life. By providing families with accessible guidance, the aim is to ensure that mental health support is available whenever they need it, not just during hospital appointments. The IMPACT study’s Rheumbot is now live for testing and one parent said “I had a little play on the chatbot, what I have seen so far is absolutely brilliant. So much information, it’s going to be a great tool for struggling families!” We have so far recruited 300 children, young people, parents and health care professionals UK wide, but are looking for more parents and young people to take part in this important research, including siblings of those affected with paediatric rheumatological conditions. Find out more and sign up here 🔗 https://lnkd.in/eaT2fzjq #childrensmentalhealthweek #mentalhealthstudy #IMPACTStudy Klaudia Kupiec

An opportunity has arisen to join our Space and Place directorate as a Deputy Director, Children's Cancer Centre. For further information and how to apply, please visit our careers page: https://lnkd.in/exKA7mwk

Exciting news alert! 📰 We have signed the contract for the main works for the Children’s Cancer Centre with our construction partner Sisk. We are full steam ahead with deconstruction of our old frontage building about to start. We are replacing this outdated building with our fantastic new Children’s Cancer Centre meaning our facilities will match our ambitions in cancer care and research. Alongside the amazing new cancer wards and daycare spaces, the new development also means we can: ⛏️ Create a new main entrance for the whole hospital 🔧 Provide extra space for our critical care, imaging and theatres services, all of which are essential for cancer care and treatment, but will also support all specialties across GOSH. 🛠️ Have a new bigger location for the hospital school We are thrilled to have made this significant step forward in achieving our ambitions of our new centre and we are grateful to Great Ormond Street Hospital Charity and everyone who has supported the Build It Beat It appeal which is making this development possible.

An opportunity has arisen to join our Space and Place directorate as a Waste & Compliance Service Manager. For further information and how to apply, please visit our careers page: https://lnkd.in/eNDgVra4

Happy #InternationalLEGODay! Check out these amazing models on display in our Clinical Research Facility. They were made by our patients and families at the launch of the facility last year in its new home on the 8th floor of the Southwood Building. Astronaut Tim Peake joined us for the launch where he met with patients, families, staff and children from the GOSH nursery. 👩🚀 We were also joined by Steve McCarthy, the artist who designed the space themed artwork for the facility, in collaboration with patients and families. Tim and Steve ran Lego and colouring in sessions for our patients and families in the play area. The designs made on the day now form part of a permanent display in the facility. #Research #InternationalLEGODay #NationalLegoDay #LEGO

We are excited to be hosting our first national Gene Therapy in Paediatrics event today, at our Zayed Centre for Research into Rare Disease. We will be bringing together clinicians including paediatricians, paediatricians-in-training, GPs, and allied health professionals (AHPs) from across the UK who are working to improve the lives of children and young people. 🤝 We’re looking forward to a day of talks and panel discussions covering gene therapy technologies, the long-term effects and latest advancements in gene therapy and how all this applies to paediatric care. 💡 A big welcome to everyone who will be joining us today! NIHR (National Institute for Health and Care Research) #GeneTherapyinPaediatrics2025 #GeneTherapy #Research

An opportunity has arisen to join our Space and Place directorate as a Head of GOSH Arts - Commissioning. For further information and how to apply, please visit our careers page: https://lnkd.in/eQxEv9FT