Scottish Huntington's Association

Are you looking for a role where you can make a real difference in the lives of families in your community? One that allows you to work differently, grow your knowledge and skills, and feel valued by clients, colleagues, and the organisation you work for? We’re hiring Huntington’s Disease Specialists to work with families in the West of Scotland ✅ Suited to professionals from a medical, health or social care background, you will join our nationwide nationwide network providing care management, specialist assessments, and emotional support to individuals and families. We offer a flexible and supportive working environment, a contributory pension scheme, generous holiday entitlement, and annual pay increments up to the top of the designated salary scale. As a values-driven organisation, founded by families for families, we are recognised nationally and internationally for our expertise. In addition to our Huntington’s Disease Specialists, our dedicated team also includes Specialist Youth Advisors and a Financial Wellbeing Service. Learn more and apply: https://ow.ly/YO2b50UMIJZ #Vacancies #NowHiring #Recruitment #HybridJobs #ThirdSectorJobs

We are recruiting for a Specialist Youth Advisor (24 hours per week – Fixed Term until July 2026). We offer a flexible working environment, contributory pension scheme, generous holiday entitlement, and annual incremental pay increases to top of designated salary scale. You will find a values-driven organisation, founded by families for families and recognised at national and international levels for its expertise and support. Our services are delivered through a nationwide network of Huntington’s Disease Specialists, Specialist Youth Advisors and Financial Wellbeing Officers. To find out more visit https://ow.ly/r3Vs50UkCbJ #Vacancies #Hiring #Recruitment #HybridWorking #ThirdSectorJobs

Applications are open for our Short Breaks Fund 2025/26 for people impacted by Huntington’s to enjoy some relaxing time away. Whether a seaside escape, a countryside retreat, or simply a chance to recharge, we’re here to help make it happen. 💷 Grants of up to £500 are available for: • People living with Huntington’s disease • Those at risk of inheriting the faulty gene • Carers and family members impacted by Huntington’s disease 🗓️ Key Dates: • Application deadline: 7 February 2025 • Outcome notifications: 7 March 2025 • Plan your break for: 1 April 2025 – 31 March 2026 *Please remember that recipients from our 2024/25 funding round are not eligible for this year’s programme. 🔗 https://ow.ly/Wm8O50UHzpB

🚨 Last chance! Our survey closes tomorrow - share your feedback now! We’re incredibly grateful to the 100+ people who have already responded. Your input is critical to help secure the funding needed to provide essential services for people impacted by Huntington’s disease. Every voice counts and we need yours - together we can ensure the Huntington’s community continues to remain at the very heart of all we do. So don’t wait - please take a few minutes to have your say. Questions? Contact us at sha-admin@hdscotland.org. 🔗 Link in bio

Great news! We have received £4000 from Scottish Children's Lottery Trust to support the work of our Youth Service. 🤝 This funding will help us to reach young people in the Scottish Highlands to ensure they have access to the support they need. Youth Service Lead Grant Walker said: “It will have a profound impact on young people in rural areas, enabling us to deliver vital services and create opportunities that might otherwise be out of reach. We’re so grateful to the Scottish Children’s Lottery for helping to make this possible.” Please join us in thanking Scottish Children’s Lottery for its support. #WhatAreTheChances #YouthSupport #ScottishHighlands #ThankYou #MakingADifference #ScottishChildrensLottery

We are grateful to The Scotsman for covering a letter from our CEO Alistair Haw supporting the call by First Minister John Swinney, SCVO (Scottish Council for Voluntary Organisations) and others for charities to be exempt from National Insurance increases. “By listening to those at the coalface, acknowledging an honest mistake and correcting it before the inevitable damage is inflicted, Prime Minister Keir Starmer and his Chancellor Rt Hon Rachel Reeves can be the positive change they promised to be. @labourparty has nothing to lose, and everything to gain, by righting this wrong before it comes into force. If it doesn’t do so – and soon – even more essential charities will have to cut services or fold, and lives will be lost. None can be wished back into existence. The time to do the right thing is, therefore, now.” Read the full letter at: https://lnkd.in/esA62MzA Kemi Badenoch; Andrew Bowie; Russell Findlay; Stephen Flynn MP; Edward Davey MP; Wendy Chamberlain; Alex Cole-Hamilton; Scottish Trades Union Congress (STUC); COSLA 

Closing Sunday 5 January! 📢 We are recruiting for a Community and Events Fundraising Officer (West of Scotland) and a Senior Central Admin and HR Officer. We offer a flexible working environment, contributory pension scheme, generous holiday entitlement, and annual incremental pay increases to top of designated salary scale. You will find a values-driven organisation, founded by families for families and recognised at national and international levels for its expertise and support. Our services are delivered through a nationwide network of Huntington’s Disease Specialists, Specialist Youth Advisors and Financial Wellbeing Officers. To find out more visit https://ow.ly/r3Vs50UkCbJ #Vacancies #Hiring #Recruitment #HybridWorking #ThirdSectorJobs

A huge thank you to everyone who has completed our survey – we’ve had more than 100 responses so far. Please join them by taking a few minutes to share your feedback about our services. Your experiences are vital if we are to secure the funding we need to continue providing essential support for families impacted by Huntington’s disease. In an increasingly challenging financial environment, it will also help us to report back to funders and strengthen the case for improved specialist services. Get in touch at sha-admin@hdscotland.org if you have any questions. 🔗 https://ow.ly/SQLy50UbMpc #MakeYourVoiceCount

*Lauren ends 2024 on a fundraising high* Champion fundraiser Lauren Boag rounds off an incredible year by smashing through her £40,000 target - and setting herself a new fundraising goal for 2025. Lauren hosted her annual gala ball in Insch last month, boosting her total by another £4000. That means the busy mum of two has raised over £43,000 for Scottish Huntington’s Association so far. No wonder her outstanding contribution was recognised earlier this year at the Scottish Charity Awards with a special commendation from BBC broadcaster Sally Magnusson. With the new year just around the corner Lauren is already lining up her 2025 events, including gathering supporters together for a nippy dip in January. A huge thank you to Lauren, her family and her friends, for all they do to support our work. We wish them, and everyone involved with Scottish Huntington’s Association, the very best for 2025.

Merry Christmas and thank you! 🎅🙌 Our best wishes to everyone involved with Scottish Huntington’s Association, including clients, staff, trustees, supporters and funding partners.