The Voice For Epilepsy

We're thinking about starting an online support group for those living with epilepsy. We would like to know if you would be interested in joining?

Planning a trip when you have epilepsy requires a bit of extra time and preparation. The below helpful points cover everything from medication management to selecting travel insurance. Key points to remember: 💜Medication: Ensure you have enough to last your trip and understand how time zone changes might affect your dosing. 💜Medical Alert: A card or bracelet can help others know you have epilepsy in case of an emergency. 💜Travel Companions: Educate your travel buddies about epilepsy and what to do in case of a seizure. 💜Rest: Plan your itinerary with plenty of time for rest and relaxation. 💜Insurance: Make sure your travel insurance covers pre-existing medical conditions like epilepsy and contact them to ensure this is on your notes. 💜Consulting Your Doctor: Consult your doctor to ensure it is safe to travel #Travel #Epilepsyawareness #epilepsysupport #epilepsycommunity #publicawareness #Health #NHS

Having epilepsy shouldn't hold you back at work! This article provides a 10-step guide for employers to create a supportive workplace for those with epilepsy. Here are some key points: 🟣Educate yourself and your staff. Understanding epilepsy is the first step to creating a safe and inclusive environment. Learn about different seizure types, triggers, and appropriate responses. 🟣Work with your employees to identify triggers. Some common triggers include stress, lack of sleep, flashing lights, and certain medications. By understanding individual triggers, you can help create a more comfortable work environment. 🟣Develop a personalised plan together. This plan should outline what to do in the event of a seizure, how to keep the person safe, and any necessary accommodations. Follow the link to read the full 10-step guide: https://lnkd.in/gXEFfzRQ #Epilepsywarrior #EpilepsyFighter #EpilepsyStrength #epilepsy #nhs #HR #Workplace

Invisible disabilities, like epilepsy, can have a profound impact on people's lives. During #InvisibleDisabilityWeek, let's raise awareness and challenge misconceptions. Epilepsy affects millions worldwide, and it's often misunderstood. Seizures can be unpredictable and isolating, but with the right support, people with epilepsy can live full and fulfilling lives. Join us in breaking down barriers and promoting understanding. Let's create a world where everyone feels valued and supported, regardless of their invisible disability. Follow the link to learn more about epilepsy: https://lnkd.in/e_QVM-uA #Disability #InvisibleDisability #Letstalk #Epilepsyawareness #epilepsysupport #epilepsycommunity #publicawareness #Health #NHS

Meet Isabella Stefanoski, at the age of 6 she was diagnosed with absent seizures and then grand mal seizures at age 17. In 2019 Bella had a scary accident where she had a grand mal seizure and collapsed on the ground whilst curling her hair. Follow the link to learn more about Bella's story: https://lnkd.in/ecZN7AaU #Epilepsywarrior #EpilepsyFighter #EpilepsyStrength #epilepsy #Epilepsy #NHS #Health

Today is #SUDEPActionDay, a day to raise awareness about Sudden Unexpected Death in Epilepsy (SUDEP). This tragic condition affects people with epilepsy worldwide, and it's crucial to understand its risks and prevention methods. Up to 50% of epilepsy deaths are SUDEP-related. Let's honour those we've lost to SUDEP and stand with their families. Together, we can make a difference by: 💜Educating ourselves and others about SUDEP and epilepsy. 💜Promoting safe sleep practices for people with epilepsy. 💜Supporting research into SUDEP prevention. #epilepsyawareness #SUDEP #epilepsystrength #Epilepsy #Seizures #Community #NHS #Health #OurRisksOurRights

National Hate Crime Awareness Week is here! Let's stand together against all forms of discrimination and prejudice, including those experienced by people with epilepsy. 💜 Everyone deserves to feel safe and respected. If you or someone you know has experienced a hate crime, please know that you are not alone. #HateCrimeAwarenessWeek #Epilepsy #Inclusion #Support

Why is it sometimes harder for men to talk about their epilepsy? We've noticed that many women feel more comfortable discussing their epilepsy experiences. Why do you think that is? Is there anything we can do to make it easier for men to open up and discuss their experiences?

Important Update for Men Taking Sodium Valproate: The MHRA has issued a warning about the potential risks of using sodium valproate. It has been advised there is a potential small increased risk of neurodevelopmental disorders in future children of men while taking the medication. Men taking this medication should: 🟣Use contraception to reduce the risk of neurodevelopmental disorders in their children. 🟣Refrain from donating sperm for at least 3 months after stopping the medication. Head over to the BBC article for more information: https://lnkd.in/e3ztAYfh #epilepsy #sodiumvalproate #health #menshealth #familyplanning #MHRA #NHS

Research Opinions are looking for caregivers of those diagnosed with Developmental and Epileptic Encephalopathy to speak about their experiences. Interviews are running Monday 7th - Friday 18th of October and will take approximately 1 hour. Participants will receive £70 via bank transfer. Follow the link to learn more: https://lnkd.in/exCF7Bq4 #Letstalk #research #Epilepsyawareness #epilepsysupport #epilepsycommunity #publicawareness #Health #NHS