Citizen is now supporting patients affected by genetic cardiomyopathies! We are thrilled to partner with our first patient advocacy group in this area, the LMNA Cardiac Foundation. This incredible organization is spearheaded by entrepreneur Stefan Bassant, who is both an affected patient and caregiver. Our shared goals are to build a natural history dataset that can be utilized by researchers working on life-altering therapies, while sharing insights to patients to help with day-to-day care. We are fortunate to find a forward thinking and innovative foundation to begin our partnership in this new disease area. #curecardio #cardiomyopathy #lmna
Citizen Health
Technology, Information and Internet
San Mateo, California 676 followers
Working to improve the lives of the 350+ million people navigating rare and complex conditions
About us
At Citizen Health, we have a singular mission: to improve the lives of the 350+ million people navigating rare and complex conditions. We empower patients with seamless access and control over their health data that they can share across our multi-sided platform with caregivers, providers and researchers to illuminate better treatment and support options, while bringing therapies to patients faster. Led by a seasoned founding team with a history of success in healthcare and consumer startups, we are a mission driven startup team of builders, advocates, family caregivers, and researchers who have had first-hand experience across the spectrum of rare and complex diseases. We support thousands of patients, work with a rapidly growing network of patient advocacy organizations, and innovate with leading biopharma organizations to accelerate therapies, always ensuring patients remain at the center.
- Website
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https://www.citizen.health/
External link for Citizen Health
- Industry
- Technology, Information and Internet
- Company size
- 11-50 employees
- Headquarters
- San Mateo, California
- Type
- Privately Held
- Founded
- 2023
Locations
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Primary
Get directions
San Mateo, California, US
Employees at Citizen Health
Updates
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Citizen is thrilled to enter the neuromuscular space and partner with CureCMT4J/Talia Duff Foundation and Jocelyn Duff! Citizen's platform will provides CMT4J patients and researchers with the power to better understand this devastating rare disease, how to design the most optimal clinical trials, and how to select endpoints that matter to the patient community as the foundation strives to create effective and safe treatments. #RareAsOne #curecmt4j #neuromuscular #rarediseases #genetherapy
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We are at #NORDSummit and blown away by presentations from companies we partner with like Taysha Gene Therapies. In a video, we saw a 20 year old Rett syndrome patient with no control of her arms and legs and who could not sit independently, hold objects while sitting just weeks after her gene therapy treatment. These are life-altering results, only possible with genetic medicine. Congrats to the Rett Syndrome Research Trust for their efforts to build a research and patient data ecosystem that enables these transformational treatments. National Organization for Rare Disorders Lauren Flickinger #RareAsOne
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We’re thrilled to announce our partnership with the ZTTK SON-Shine Foundation! Ada Lio Nathan Guo, and Kerry Tirrell, we are honored to collaborate with such an incredible organization, dedicated to improving the lives of individuals with ZTTK syndrome and accelerating groundbreaking research. Your team’s work to raise awareness, support families, and fund cutting-edge science is truly inspiring. Together, through Citizen Health’s digital platform, ZTTK families can contribute to research from home and drive new discoveries that bring us closer to life-changing treatments. #RareDisease #ZTTK #AccelerateCures #Partnership
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Thank you Chan Zuckerberg Initiative for inviting us to speak at your incredible Science in Society meeting this week. The panel, moderated by former FDA commissioner Janet Woodcock, was an incredible way to show how innovative models to collect patient data can drive new clinical trial models. Tania Simoncelli Heidi Bjornson-Pennell Anne Claiborne
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Yesterday our Chief Regulatory Officer Deven McGraw spoke at the launch of the FDA Rare Disease Innovation Hub. We must find ways to use patient data collected in routine clinical care and in their day-to-day lives for the approval of rare disease drugs. Otherwise we will not make a dent in curing the over 10,000 rare diseases.
Yesterday I was grateful for the opportunity to speak at the launch of the FDA Rare Disease Innovation Hub hosted by Reagan-Udall Foundation for the FDA. While we were excited when this Hub was initially announced by FDA earlier this year, there were too few details at the time to understand how meaningful this effort would be for the rare disease community. After yesterday's meeting, I am more optimistic about the potential for "the Hub" to: improve FDA interaction with the rare disease community; increase acceptance of RWD and other innovative trial designs for rare therapies under consideration by either of CDER and CBER; achieve greater consistency of medical product decisionmaking in rare by the different divisions; enhance transparency to all stakeholders about decisions impacting rare. It was clear from both CDER and CBER leadership that they are committed to making change - and that two of the busiest people at the FDA were present through the entire program speaks volumes to the priority they are placing on this initiative. Whether this makes a real difference or not remains to be seen - but based on yesterday's launch, I am more than cautiously optimistic. The docket for submitting public comments regarding the Hub is open until October 31. chrome-extension://efaidnbmnnnibpcajpcglclefindmkaj/https://lnkd.in/eSQHft3f
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Another wonderful Global Genes event, meeting and working on big ideas with Patient Advocates driving cures forward for rare diseases. Yael Weiss Charlene Son Rigby Sunitha Malepati Pangkong Fox Shelley Frappier Jennifer Tjernagel Nasha Fitter Bina Maniar Deborah Requesens Daniel Levine Nicole Boice
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Presenting our Citizen Natural History Data at the FOXG1 Research Foundation Adboard meeting to assist in selection of endpoints and scales for the upcoming FOXG1 syndrome gene therapy clinical trial. Elizabeth Berry-Kravis Eric Marsh Elli Brimble Steve Hille Nasha Fitter Pam Ventola
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Citizen Health is Hiring: Director of RWD Business Development! 🚀 As we expand into new disease areas, we're looking for a dynamic Director of RWD Business Development to join our team. This role involves engaging with a diverse ecosystem of stakeholders, including biopharma, academia, and patient advocacy groups. If you're passionate about helping patients use their own data to accelerate drug development for rare diseases, we want to hear from you! Learn more and apply here: https://lnkd.in/gUHEyHCQ Join us and be part of a transformative movement in healthcare! 🌍💡 #Hiring #BDDirector #RareDiseases #HealthcareInnovation #Biotech