Epilepsy Foundation

We’re stronger when we lift each other up. Our monthly virtual support groups are a safe space to share, listen, and connect with others who understand the epilepsy journey. Let’s build each other up and move forward, together. https://bit.ly/3YFCMDR

Living with epilepsy can feel overwhelming at times, but Oneli encourages others with epilepsy to stay hopeful. Remember, epilepsy doesn’t define you. It's your strength and courage in facing it that shapes your journey. Read Oneli's story: https://lnkd.in/eX6y96MV

If you have lost a loved one due to epilepsy, you're not alone. Join the Adult Bereavement Virtual Support Group for people 27+ and connect with others who have experienced loss. The next meeting is on Sunday, November 3, at 4 p.m. ET. Email SUDEP@efa.org for info.

Open enrollment for #Medicare health and prescription drug plans runs through December 7 for coverage beginning on January 1, 2025. Each year plans make changes to benefits and costs, and new plans become available, so your current plan may or may not be the best plan for you in 2025. It is important to use this time to compare your coverage options and find the plan that best suits your needs. Read an FAQ on Medicare Part D enrollment at https://bit.ly/PartD25FAQ. You can compare plans at medicare.gov/plan-compare. Visit medicare.gov or call 1-800-MEDICARE (1-800-633-4227) to learn more and enroll. #MedicareOE

You are not alone in your epilepsy journey. Our 24/7 Helpline is staffed by experts ready to answer your questions about epilepsy, treatments, and safety. Reach out anytime for the information and support you need! If you need assistance finding resources or support, our 24/7 Helpline is here for you at 1-800-332-1000 (1-866-748-8008 en español). https://lnkd.in/ervpFRBJ

My name is Tylor. I live in Bowling Green, KY, and work as a Refugee Advocate for Warren County Public Schools. I started having seizures when I was 14 years old and continued to have uncontrollable seizures for 23 years. In 2015, at the age of 36, I had a life-changing brain surgery that helped me to become seizure-free and get my life back. Even though I am blessed to be seizure-free now, I will always be an epilepsy advocate and support the Purple Pumpkin Project. My motto has always been “Knowledge is power” and there are still so many people who are uneducated about epilepsy and seizures. I hope by sharing my I can help others who may be suffering to never give up hope! 💜

Registration is now open! The Partners Against Mortality in Epilepsy (PAME) 2024 conference is happening in Los Angeles, CA, on Thursday, Dec. 5. Join patients, families, researchers, and clinicians to explore the latest in epilepsy research, awareness, and education. Don’t miss the special Family Day on Wednesday, Dec. 4, dedicated to supporting and connecting bereaved members of the epilepsy community. https://lnkd.in/gVQ2RvGs

Two years ago, I woke up one morning to find my mom freaking out because I had a seizure. We rushed to the hospital where doctors found a mass in my brain. I was scared for my life, and a couple of days later, I was diagnosed with epilepsy. I started taking anti-seizure medication and gradually felt safer. I am now proud to say that the last seizure I had was about a year ago. I was so fearful for my future, but I found comfort in knowing I wasn’t alone, connecting with others who shared my condition. I also realized how grateful I am to have my family by my side. You’re not alone either if you have epilepsy. Have faith, and always have an optimistic spirit. Read more stories or share yours: https://lnkd.in/eFc-upyj

During my last seizure, I remember talking to one of my students in class before school started. I woke up on the floor and could hardly breathe. The principal was on one side, a teacher was on the other, and both were reassuring. I was disoriented, but I knew what happened, even though it took me a moment to remember where I was. All I thought about was my students, and I was overwhelmed with sadness that I may have scared them. Stress and lack of sleep during the pandemic were my triggers. I am so thankful I have a supportive community, work environment, and proactive students to get me through this.

Understanding what seizures are and how to help if you ever see someone having a seizure minimizes misconceptions and inspires action. Get #SFAready in 30 minutes from anywhere at any time. https://lnkd.in/eWEmDh-Q