Epilepsy Foundation

Angelo is 4 years old. He started having seizures around 14 months old. We finally got a diagnosis after two years of testing and seeing different pediatric neurologists. He has bilateral focal temporal and generalized epilepsy. He also has significant developmental and speech delays but uses an AAC device and receives physical and occupational therapy services to support his needs. Angelo has been on medication for three months and is making wonderful progress! We painted purple pumpkins this year to raise awareness and donations to support research and fellowship programs in pediatric neurology. We need more pediatric neurologists with epilepsy training so they can diagnose kids like Angelo early giving them the best chance to be themselves.

Families have the right to access vital information about risks, life-saving care, and important questions to ask healthcare providers. Connect with a supportive community that understands and helps you navigate these challenges. Learn more: https://lnkd.in/dH6CJFCK #OurRisksOurRights #SUDEPActionDay2024

My name is Lauren Evans. I am the President and Founder of the Supporting Epilepsy Awareness (SEA) Club at UCSB. We hosted a #PurplePumpkinProject fundraising event to spread awareness and educate our community about epilepsy. We had a lot of UCSB students participate in painting purple pumpkins. Each mini pumpkin was $1 and all proceeds went directly to the fundraiser. This event was fun and educational, bringing together students going through similar things. It provided a safe space for everyone to talk about their journeys within a community of SEA Members who understand and help one another. We are honored to participate in this amazing project and support the Epilepsy Foundation!

Brooks is in second grade and will turn 8 at the end of the month. Brooks' journey with epilepsy started a week after his first birthday when he suffered from multiple tonic-clonic seizures which led to a life flight and ICU admission. Over the next seven years, Brooks’ epilepsy would go through periods where his seizure activity was controlled to periods of having multiple seizures a day. As of now, he hasn’t had a seizure since March! We are very grateful for this so we decided to mark this milestone by participating in the Purple Pumpkin Project to spread awareness and offer support for all those like Brooks who fight this diagnosis daily. We have always referred to his brain as a “lightning brain," and he painted his pumpkin to showcase that. Brooks has been receiving photos from family members and friends who have painted purple pumpkins to support him. Each one makes him feel so special and allows him to talk about epilepsy. He is our 1 in 26 and the strongest, bravest boy. Our hero is Brooks!

After losing their daughter Melissa in 2022, David and Evonne Schlobohm are dedicated to raising awareness about Sudden Unexpected Death in Epilepsy (SUDEP). This month, they’ve put up three billboards in Minnesota to honor Melissa and encourage others to talk about SUDEP. Learn more about their story and mission to keep her memory alive. https://lnkd.in/eSFeGbsk

Knowledge is empowering. The Newly Diagnosed Toolkit is filled with information, insights, and resources that will help you understand and manage epilepsy. This toolkit is designed to give you the tools you need to make informed decisions. Start your journey with confidence—explore the toolkit today: https://lnkd.in/ezhWCWWd

We’re stronger when we lift each other up. Our monthly virtual support groups are a safe space to share, listen, and connect with others who understand the epilepsy journey. Let’s build each other up and move forward, together. https://bit.ly/3YFCMDR

Living with epilepsy can feel overwhelming at times, but Oneli encourages others with epilepsy to stay hopeful. Remember, epilepsy doesn’t define you. It's your strength and courage in facing it that shapes your journey. Read Oneli's story: https://lnkd.in/eX6y96MV

If you have lost a loved one due to epilepsy, you're not alone. Join the Adult Bereavement Virtual Support Group for people 27+ and connect with others who have experienced loss. The next meeting is on Sunday, November 3, at 4 p.m. ET. Email SUDEP@efa.org for info.

Open enrollment for #Medicare health and prescription drug plans runs through December 7 for coverage beginning on January 1, 2025. Each year plans make changes to benefits and costs, and new plans become available, so your current plan may or may not be the best plan for you in 2025. It is important to use this time to compare your coverage options and find the plan that best suits your needs. Read an FAQ on Medicare Part D enrollment at https://bit.ly/PartD25FAQ. You can compare plans at medicare.gov/plan-compare. Visit medicare.gov or call 1-800-MEDICARE (1-800-633-4227) to learn more and enroll. #MedicareOE