Focusing on readability and plain language can improve the materials your organization develops for families to improve health literacy. #HealthLiteracyMonth For more resources, visit https://lnkd.in/eTyzgYVn.
Family Voices, Inc. - National
Public Health
Concord, MA 796 followers
We promote partnership with families at all levels of health care in order to improve services and policies for children
About us
Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN. We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.
- Website
-
www.familyvoices.org
External link for Family Voices, Inc. - National
- Industry
- Public Health
- Company size
- 11-50 employees
- Headquarters
- Concord, MA
- Type
- Nonprofit
- Specialties
- Family Engagement, Policy, Family Leadership, CYSHCN, Pediatrics, Disability, Autism, Autism Awareness, Disability Awareness, Patient Engagement, Youth Engagement, and Pediatricians
Locations
-
Primary
Concord, MA, US
Employees at Family Voices, Inc. - National
-
Melissa Vickers
Retired Family Voices Projects Director at Family Voices
-
Nikki (Charisse) Montgomery, MA, MEd, GPAC
Patient Advocate | Patient Safety Author | Health Literacy | Equity & Inclusion
-
Allysa Ware, PhD, MSW
Nonprofit Leader & Advocate 🕬 | Improving Health Care Access & Driving Systems Change for Children with Special Health Care Needs and Disabilities &…
-
Steph Lomangino, LMSW
Macro social worker & systems thinker
Updates
-
Did you know? Black autistic girls sit at the intersection of multiple health disparities that can affect them throughout their lives. In our work funded by WITH Foundation we listened to Black autistic girls and women and developed tools for self-advocates, families and providers to help navigate the transition to adult health care. Learn more at https://lnkd.in/e4AqXYTX.
-
Nationwide, 1 in 3 children had inadequate insurance or a gap in coverage during the past year. Find more child health data from the National Survey of Children’s Health at childhealthdata.org.
-
As a part of the Coordinating Center for the Enhancing Systems of Care for Children with Medical Complexity initiative, we recently held a rescore of the Family Engagement in Systems Assessment Tools (FESAT) for each demonstration site. In partnership with AcademyHealth we are proud to help the sites continuously assess and improve their work with their advisory boards and family leaders.
-
Family Voices is excited to be working with the American Association on Health and Disability (AAHD) to help families of children with special health care needs improve health care. Family Voices created a Pediatric Disability Consortium to help discuss how research can help families. Learn more at joinallofus.org.
-
October is Spina Bifida Awareness Month. Adolescents and young adults living with #SpinaBifida may face unique challenges as they shift from pediatric to adult care. See these Health Care Transition Support Videos (available in English and Spanish) from the AAP to learn more. #SBAM2024 https://lnkd.in/e_r3ZsCH Learn more about health care transition and how to navigate the challenges at https://lnkd.in/eMNFaUXC.
-
Kassondra, Wenxi, Dulce, Wendy, Sierra, and Ginger answer a few questions giving a glimpse into the importance and meaningful impact family leaders have in systems work. Read about it here: https://lnkd.in/ev7ApdHz
-
It's World Mental Health Day, and it's important to focus on children's and caregivers' mental health. Find resources on mental health at https://lnkd.in/enUVGTWd.
-
Do you have questions about language access in healthcare? We've created a new curriculum just for you. Sign up today for "My Language My Care". Available in Mandarin, Spanish, English, and ASL. Follow this link to register: https://lnkd.in/eTyzgYVn. The course launches this month.
-
Family Voices recently co-hosted the kickoff for the Children & Youth with Special Health Care Needs National Research Network (CYSHCNet)'s 2024-25 Emerging Investigator Program! We are excited to welcome this cohort of researchers and support them in ensuring a meaningful partnership with their lived experience partner within their study team. Learn more about the EI program here: https://lnkd.in/gs_ysEm9