Michigan, join us for a virtual state advocacy workshop on October 9!
This content isn’t available here
Access this content and more in the LinkedIn app
The Immune Deficiency Foundation improves the diagnosis, treatment, and quality of life for every person affected by primary immunodeficiency. We foster a community that is connected, engaged, and empowered through advocacy, education, and research. Whether you've been recently diagnosed, have been living with a primary immunodeficiency (PI) for years, or just think you might have a PI, we are here to help. Our programs are meant to create a healthier day, every day, for every person with an immune deficiency.
External link for Immune Deficiency Foundation
7550 Teague Road
Suite 220
Hanover, MD 21076, US
Your voice matters: Shaping policy for the primary immunodeficiency community A united voice can significantly influence public policy affecting health and care access for those with primary immunodeficiency (PI). Here's how you can make a difference: - Receive email alerts when policymakers need to hear from our community. - Customize pre-drafted messages with your personal information. - Send your message directly to designated policymakers with a single click. By participating, you're actively engaging in the democratic process and driving meaningful change for the PI community. Ready to amplify your voice? Sign up for Action Alerts: https://bit.ly/46ySq6w #PIAdvocacy #RareDisease #HealthcarePolicy #PatientVoice #Immunocompromised
It's #NationalNonprofitDay! The Immune Deficiency Foundation is proud to offer resources, education, and support for those with primary immunodeficiency, while partnering with clinicians and scientists to conduct research and promote public policy programs.
These are only a few of the offerings the Immune Deficiency Foundation has created to provide both education and community support to people diagnosed with primary immunodeficiency (PI). Whether you are newly diagnosed or have been navigating PI for years, we're here to help. Visit our website to learn more and get involved! https://bit.ly/3yjup6A
Parents and caregivers of children with primary immunodeficiency (PI): The Immune Deficiency Foundation has created a comprehensive back-to-school guide to support you and your child. This free resource includes: -Key medical information about PI -Special needs considerations -Legal rights overview -Valuable information about resource referrals We understand the unique challenges you face as the school year approaches. Our goal is to empower you with the knowledge and tools to ensure your child's educational experience is safe and successful. Download your free copy today! https://bit.ly/4ff2tRT #PrimaryImmunodeficiency #HealthcareEducation #SpecialNeeds #BackToSchool
Dermatological care is important for those with primary immunodeficiency (PI), according to Dr. Edward Cowen of the National Institutes of Health (NIH) Dermatology Consultation Service. Cowen described how to find the appropriate dermatologist and discussed key dermatology concepts for the PI population during the recent 2024 PI Conference in Chicago https://bit.ly/3yvNJxt
📣 We’re #hiring! 📣 The Immune Deficiency Foundation is looking for Drupal Developer who will develop, improve, and maintain web-based and web-enabled applications! 💻 We’re looking for passionate individuals who are committed to making a positive impact in the lives of people with primary immunodeficiency. Apply here: https://bit.ly/3LLfWUf #webdeveloper #drupal
It's extremely difficult to live with an #invisibleillness, making awareness vital. Folks with primary immunodeficiency (PI), which is often "invisible," spend far too many years undiagnosed and looking for answers. Understanding the complexities of invisible illnesses like PI leads to quicker time to diagnosis, better care, improved support, and fewer feelings of isolation. #chronicillness #invisibleillnessawareness
Nine-year-old Jax Ramirez is the youngest patient undergoing gene therapy for IPEX syndrome, a very rare PI, in clinical trials at Stanford University. “We’re just taking it one day at a time,” said his mother Missy Ramirez. https://bit.ly/4fdkK2i
Immunoglobulin therapy is a lifesaving treatment for people diagnosed with primary immunodeficiency. Watch this video to learn more about what it is and why it's important! #raredisease