Platelet Disorder Support Association - PDSA

Shout out to the Amgen Team for sporting their purple for platelets and their continued support for spreading ITP Awareness!

Global ITP Awareness Week has found its way to Capitol Hill where Congressmen Darin LaHood of Illinois provided the attached message. Congressman LaHood is one of many congressional champions on medical research, public health, and patient care for the community, even leading bipartisan letters requesting additional funding and dedicated federal activities. Thank you Congressman Darin Lahood from the Platelet Disorder Support Association - PDSA and the Bleeding and Clotting Disorders Institute. #ITP #ITPAwarenessMonth #Global4ITP #RareDiseaseChampion #PDSA

Join us in Burlington, Ontario for the 4th Annual Regional Meeting on ITP. Registrations is free for PDSA members: https://lnkd.in/gxtVjtXw

Last year, Behind the Mystery had the honor of speaking with Caroline Kruse, President and CEO of the Platelet Disorder Support Association - PDSA, and Glenna Shen, VP of Corporate Affairs at Sobi. Caroline shared her personal journey as an ITP warrior, explaining how it has shaped PDSA’s mission to support those with ITP by fostering meaningful connections and offering valuable resources. With September being ITP Awareness Month, it's the perfect opportunity to spread helpful information, share resources, and uplift our ITP warriors. #BehindTheMystery #ITP #ITPawareness #RareDisease #RareDiseaseAwareness

September is ITP Awareness Month! And at PDSA, we’ll honor this special month by spotlighting the ITP patient experience, increasing awareness of ITP, and ensuring patients and caregivers have access to our growing network of resources and support. The theme for ITP Awareness Month 2024 is Paint the Town Purple, and we invite YOU to join us all month long as we highlight advancements in the understanding of ITP and celebrate the strength of our community. Our ITP Awareness Month page is a great place to get started – check it out for ways to participate in ITP Awareness Month activities, including our ITP Awareness Month social media toolkit! This toolkit provides ways to engage with PDSA on social media and offers a selection of downloadable content for you to share on your own social media pages. We hope you’ll join us this September in our mission to raise awareness and empower ITP patients. Learn more about ITP Awareness Month and ways to participate at https://lnkd.in/gNmMe-FE.

PDSA Canada events are coming to Ontario! Registration is now LIVE! Lace up your sneakers and join us on Sept 28th for a 5k walk in London to Pump It Up For Platelets! But that’s not all! The excitement continues with a one-day meeting on Sept. 29th in Burlington, where we’ll dive into the latest updates on ITP. Let’s come together, make a difference, and create unforgettable memories! Visit pdsa.org/canada to register. #itp #PDSAcanada #London5k #ITPawareness

Did you know PDSA has a collection of FREE educational booklets available to download at PDSA.org? These booklets are written in patient-friendly language to help you expand your knowledge and improve your control over ITP. Check out our full collection at pdsa.org/booklets.

Complete our “Bleeding and Hospitalization in ITP” patient registry survey today and help unlock the mysteries of ITP! If you or your child have experienced a nosebleed, blood blisters in the mouth, easy bruising, petechiae, or other bleeding due to your ITP, or have been hospitalized because of bleeding or a low platelet count, we want to hear from YOU. This survey is part of our ITP Natural History Survey Registry and completing it helps us better understand how and why bleeding happens, who is at risk for more serious bleeding, and who gets hospitalized, how often and for how long: pdsa.org/registry.

We are now accepting submissions for the American Society of Hematology Friday Morning ITP Breakfast! Join us for an exciting series of sessions focused on the latest advancements in ITP research and treatment. This is a fantastic opportunity to share your insights, network with peers, and contribute to the future of hematology. #itp #hematology #platelets #itpresearch #itpadvancements #improvingoutcomes #submityourabstract #callforspeakers

You know about PDSA, but does your hematologist? Our health care provider resources include treatment guidelines and clinical management considerations, patient education resources, and information on clinical trials. Learn more at pdsa.org/hcp.