Platelet Disorder Support Association - PDSA

Complete our “Bleeding and Hospitalization in ITP” patient registry survey today and help unlock the mysteries of ITP! If you or your child have experienced a nosebleed, blood blisters in the mouth, easy bruising, petechiae, or other bleeding due to your ITP, or have been hospitalized because of bleeding or a low platelet count, we want to hear from YOU. This survey is part of our ITP Natural History Survey Registry and completing it helps us better understand how and why bleeding happens, who is at risk for more serious bleeding, and who gets hospitalized, how often and for how long: pdsa.org/registry.

We are now accepting submissions for the American Society of Hematology Friday Morning ITP Breakfast! Join us for an exciting series of sessions focused on the latest advancements in ITP research and treatment. This is a fantastic opportunity to share your insights, network with peers, and contribute to the future of hematology. #itp #hematology #platelets #itpresearch #itpadvancements #improvingoutcomes #submityourabstract #callforspeakers

You know about PDSA, but does your hematologist? Our health care provider resources include treatment guidelines and clinical management considerations, patient education resources, and information on clinical trials. Learn more at pdsa.org/hcp.

PDSA President and CEO, Caroline Kruse, was honored to join more than 70 advocacy leaders in Southern California for the 2024 Amgen Stakeholder Summit Embracing the Exciting AI Revolution: A Uniquely Human Experience. This was a great opportunity to join in a dialogue with other patient advocates and Amgen leaders about how we can all better serve patients! Thank you to the Amgen team for hosting including Linda Murakami and to Shola Richards for the insightful keynote address. #PatientVoice #ImprovingOutcomes #CommunityEngagement

YOU can help PDSA make a difference in the lives of ITP patients! Hosting a fundraising event is an inspiring and uplifting way to raise awareness and connect the ITP community. And whether it’s a bake sale, benefit concert, marathon, or anything in between, PDSA is here to help you every step of the way! Learn more: https://lnkd.in/eTBaNZ_e.

If you missed this year’s conference in San Antonio or want to dive back into some of the sessions, select recorded content from ITP Conference 2024 will be available to PDSA Members starting September 1. Become a member today and kick off ITP Awareness Month with exclusive conference content: pdsa.org/membership.

You know about PDSA, but does your hematologist? PDSA has resources designed for health care professionals, to help your care team take better care of YOU! Our HCP resources include patient-centered research guidelines, the International Consensus Report on ITP, and educational booklets for patients. Learn more at pdsa.org/hcp.

ITP Conference 2024 is only TWO weeks away! PDSA’s annual conference is the premier patient event and provides valuable opportunities to hear the latest information about ITP, meet other patients and caregivers, and ask the experts your questions. We can’t wait to see everyone in San Antonio July 26-28! Learn more at pdsa.org/conferences.

Happy Canada Day! Did you know that PDSA became a Canadian non-profit in 2019 and hosts several ITP programs specifically for our Canadian patients?! Be sure to join our mailing list and check out pdsa.org/canada for the latest advancements. More information coming soon on our Fall 2024 programs! #itp #PDSAcanada

Don’t miss your chance to meet world-renowned ITP specialists and connect with the ITP community at ITP Conference 2024! The deadline for our early bird reduced registration rate if July 3. General registration will remain open, and walk-up registrations are welcome. The ITP Conference reduced room rate at the Westin Riverwalk is good through July 3 as long as rooms are available. To make this premier patient event more accessible to the ITP community, PDSA offers need-based partial scholarship to PDSA Members who may have concerns about cost. The deadline to apply for a scholarship is July 1. Register today at pdsa.org/conferences.