TSC Alliance

Introducing Joshua Cohen, this week’s #TeamTSC athlete! Joshua is running to honor his 11-year-old cousin, Elliot, affectionately known as "Elliot the Superhero" for his unwavering positivity and resilience in facing tuberous sclerosis complex (TSC). Joshua is beyond excited to support his incredible cousin in his fight against TSC. His advice for fellow marathoners? "Just start training! You don’t need a complicated plan or strategy—just get out there and go for it!" Let’s rally behind Joshua as he runs not only for Elliot but for everyone in the TSC community! Support Joshua here: https://ow.ly/WhQu50TG381

Join us in 2025 for Step Forward to Cure TSC®! 🎉 We're hosting walks in 16 locations nationwide to raise funds and awareness for tuberous sclerosis complex (TSC). Together, we've raised over $20 million in 22 years, and we're not stopping! 💪 📅 Registration opens January 1—mark your calendars! Can't wait? You can still make a difference by donating through December 31, 2024 at stepforwardtocuretsc.org. Every dollar supports research, awareness, and critical programs for the TSC community. Together, we’re building hope! 💙 #StepForwardToCureTSC #TSCAlliance #step4tsc

The TSC Alliance announces a funding opportunity for 2024 Biosample Seed Grants to support research using blood, tissue, and/or cells, DNA, or RNA isolated from samples in the TSC Biosample Repository. Learn more: https://ow.ly/oVAU50TEjQI Apply here: https://ow.ly/BuZc50TEjQH

Join us for the final event in the 2024 Regional TSC Conference Series! 📅 On Saturday, November 16, 2024, from 8:30 AM to 4:30 PM at the Hilton Garden Inn Palo Alto, CA, this one-day conference will bring together top researchers and clinicians specializing in TSC. Don't miss this incredible opportunity to connect with other families and individuals, while learning about the latest in: Research and clinical trials TSC-Associated Neuropsychiatric Disorders (TAND) Genetics and gene therapy Women's health issues Seizure types and treatment Kidney involvement and treatment options Registration is just $10, including a boxed lunch! For those facing financial hardship, email Shelly Meitzler at smeitzler@tscalliance.org for assistance. View the conference agenda here: https://ow.ly/EeGc50TBlMg 📲 Register today: https://ow.ly/2lFw50TBflp

Meet Shannon Suarez, this week’s featured #TeamTSC athlete! 🏃♀️ Shannon is running in loving memory of her niece, Andi Perry, who had TSC and passed away in 2014. Her advice to fellow marathoners? “Remember why you’re running—because when the training gets tough, your reason will keep you going.” Let’s rally behind Shannon as she takes on this incredible challenge! Learn more about her inspiring journey and find out how you can support her here: https://ow.ly/2jNI50Tzhsv #TeamTSC #TCSNYCMarathon #2024NYCMarathon

This past weekend TSC Alliance staff members, leading local clinicians and researchers, TSC community members and sponsors came together for the second and final workshop in the TSC Transition Workshop Series in Salt lake City, UT! A special thank you to the following sponsors for making the TSC Transition Workshop Series possible! Presenting Sponsors: Jazz Pharmaceuticals and Nobelpharma America, LLC Champion Sponsors: LivaNova, Marinus Pharma, Neurelis, Inc., UCB and Upsher-Smith Join us for our next conference in the 2024 Regional TSC Conference and Transition Workshop Series in Palo Alto, CA on Saturday, November 16, 2024. This one-day conference will feature leading local researchers and clinicians specializing in TSC and will include networking opportunities to meet other families and individuals from the area. View the conference agenda here: https://ow.ly/qONJ50TvHsp Register and learn more: https://ow.ly/4qAj50TvHso

APPLICATION CLOSES TODAY for the Al Marshall “Commitment to the Future” Fellows Scholarship This scholarship will provide one deserving Fellow an opportunity to attend the 2024 American Epilepsy Society Annual Meeting by covering all travel and registration costs. In order to be eligible you must: Be a clinical or postdoctoral research fellow enrolled at the time of the meeting (December 6-10, 2024) in neurology, neuroscience, or a similar related field that is relevant to epilepsy. Learn more about scholarship eligibility here: https://ow.ly/uor550TeO6A Apply today through Proposal Central: https://ow.ly/yTpc50TeO6z

🎉 Celebrate Team TSC’s 2023 Success! 🎉 We are thrilled to share the amazing achievements of Team TSC at the 2023 TCS NYC Marathon! Nine Inspiring Runners completed the TCS NYC Marathon, including: ✨ 2 individuals living with TSC ✨ 1 dedicated TSC researcher ✨ 4 passionate TSC parents ✨ 1 supportive TSC aunt ✨ 1 dear friend of a TSC individual Together, they raised an outstanding $56,083 to support the TSC Alliance's efforts. What’s next? We're gearing up for Team TSC 2024 as they take on the TCS NYC Marathon on November 3, 2024! 🏃♂️ Stay connected and support our amazing Team TSC athletes here: https://ow.ly/WyKf50Trh6Q #TeamTSC #TCSNYCMarathon #NYCMarathon2024

🌟 Be a Part of TSC Alliance History! 🌟 Celebrate 50 years of progress and the promise of the future! Purchase an honorary name listing in our 50th Anniversary Commemorative Program Book and make your mark on this milestone moment. ✨ 📖 Featured at our 50th Anniversary Gala on October 25, 2024, at Cipriani 42nd Street in NYC, this special keepsake will honor the past 50 years of TSC Alliance history. Can’t attend? We’ll mail the program book to you! Secure your place in TSC Alliance history—purchase your name listing TODAY! 🌟 Buy your name listing here: https://ow.ly/iPs350TriKi #50Forward #tscalliance

📢 Join us in celebrating 50 years of the TSC Alliance! Purchase an advertisement or honorary name listing in our 50th Anniversary Commemorative Program Book, to be featured at the TSC Alliance 50th Anniversary Gala: An Evening of Progress and Promise on October 25, 2024, at Cipriani 42nd Street, New York City. If you purchase an ad or honorary name listing and can’t attend the event, the TSC Alliance will mail you a copy of the program book. This milestone evening will honor those from our past and present who have driven the progress to date and inspire the promise of tomorrow. Secure your ads, tickets and honorary name listing here: tscalliance.org/50gala 🚨 Limited tickets available. 🚨 📸 Featuring moments from our 40th and 45th Anniversary Galas.