Ultragenyx

We’re thrilled to participate in the annual ADVANCE Sanfilippo Community Conference, hosted by the Cure Sanfilippo Foundation. The ADVANCE event gathers experts for collaboration, knowledge sharing, and focused learning on #Sanfilippo. This year, our own Dr. Heather Lau MD MS, Executive Director of Global Clinical Development, gave an important presentation on the significance of the accelerated approval process for Sanfilippo patients and their families.     Our partnership with the Sanfilippo community is vital to everything we do. Thank you, Heather and team, for representing us!   Link to Cure Sanfilippo: https://lnkd.in/eb2k93T

This weekend, Colin Farrell, actor and founder of the Colin Farrell Foundation, joined his friend Emma Fogarty in the Irish Life marathon to raise funds for Debra - The Butterfly Skin Charity. Emma has #EpidermolysisBullosa (EB) a rare skin condition that causes fragile skin, leading to painful blisters and in some cases, affecting internal organs. Awareness and research for rare diseases like EB are often lacking, making Colin's efforts all the more important. We applaud his commitment to raising awareness and supporting the #RareDisease community.   Read this inspiring story: https://lnkd.in/gJ6qjTiw

Earlier this month, Our Executive Director, Global Clinical Development, Dr. Heather Lau MD MS attended the FSU Institute for Pediatric Rare Diseases’ inaugural Rare Disease Symposium and delivered a compelling speech highlighting the urgent need for approved treatments for fatal, ultra-rare #NeurodegenerativeDisorders. Dr. Lau emphasized how utilizing biomarkers can support #AcceleratedApproval, paving the way for quicker access to potentially lifesaving therapies. Great job, Heather! #RareDisease

Ultragenyx was excited to join Osteogenesis Imperfecta Federation Europe and the #OsteogenesisImperfecta (OI) community for OIFE’s clinical trial update webinar. Our VP of Global Clinical Development, Stanley Krolczyk presented updates on our Orbit and Cosmic trials.    Link to corporate website: https://lnkd.in/d_Qmm2Dn

Congratulations to Matthew Fust, a valued member of our board of directors, for being recognized as a 2024 NACD (National Association of Corporate Directors) Directorship 100 Honoree! See who else made the list: https://lnkd.in/gC7AtWmn #2024Directorship100 #CorporateGovernance

We're excited to share that Ultragenyx has been recognized once again with the 2024 Top Workplaces Culture Excellence Award! This honor is extra special because it's based solely on feedback from our amazing employees. Thank you, #UltraTeam, for making this possible!  Find out more about us: https://lnkd.in/eM3kuP8C #TopWorkplaces #CompanyCulture

Today, our Employee Resource Group, #UltraProud, held its 4th Annual #ComingOutDay Panel for employees. To celebrate, a group of employees shared their personal stories and insights, fostering awareness and connection among colleagues. We are incredibly grateful to the participants for their inspiring contributions. A big thank you to UltraProud for another successful event and for continuing to support the #LGBTQ+ community! #DEIB

As Hispanic Heritage Month comes to a close, we wanted to share special moments hosted by our LatinX Employee Resource Group (#ERG) that celebrated the rich tapestry of cultures, histories, and contributions that Hispanic and Latinx communities bring to our culture. We carry this spirit of appreciation and understanding beyond the month and promote cultural exchanges every day.     Thank you to everyone who participated in the events and discussions.       #HispanicHeritageMonth #CelebrateDiversity

Today, our employee resource group, UltraMosaic, hosted an event to honor Indigenous Peoples’ Day – their histories and their perseverance. Dr. Deserea Langley of the Susanville Indian Rancheria was in conversation with our very own Brandon Redhawk of the Little Shell Tribe of Chippewa Indians of Montana and Turtle Mountain Band of Chippewa Indians. Together, they shared insights on the significance of Indigenous Peoples’ Day, the impact of the Gold Rush on native people in California, and why knowing and understanding this history is so essential. Huge thank you to Dr. Langley and Brandon for a meaningful session!   #Ultragenyx #DEIB #IndigenousPeoplesDay #EmployeeEngagement

Congratulations to our Vice President of Policy, Government and Public Affairs, Betsy Ricketts, for being honored by the San Francisco Business Times as one of the 75 most influential women in the Bay Area.    Betsy leads the Ultragenyx policy, government and public affairs team supporting policy change that has had an impact on the entire #RareDisease community including leading initiatives to support the diagnosis of rare diseases, regulatory policy to support rare and ultrarare disease drug development and initiatives to expand patient access to approved therapies. See who made the list: https://lnkd.in/eMQsbBvM #SFBTWomen