ClinicalMind’s Post

From Advocacy to Action: 3 Ways Patient Advocates Drive Patient-Centric Healthcare Innovation 📱 1️⃣ Amplifying Patient Voices & Experiences 2️⃣ Promoting Inclusive & Accessible Design 3️⃣ Driving Policy & Systems Changes –– 🔑 Key Insights: Patient advocates provide crucial guidance in developing patient-centric healthcare innovations because they... ✚ Possess intimate knowledge of the patient experience, which is essential in shaping successful innovations that truly improve patients‘ lives. ✚ Are dedicated to changing the status quo to improve patients‘ healthcare navigation experiences and health journeys. ➡️ Let's recognize the value of including patient advocates and leveraging their expertise in the healthcare innovation process! –– #patientadvocacy #healthcareinnovation #patientengagement #patientcentricity #medtech #digitalhealth

2 Common Problems with creating a Better Patient Experience 1. Lack of Communication 2. Lack of Respect 1 is because of 2. If proper respect, communication comes naturally. #patientcare #patientexperience #patientsatisfaction #communication #respect #pressganey Emerus Holdings, Inc.Shannon Medical Center WellSpan Health Journal of Patient Experience Patient Experience Symposium Patient Advocacy Patient SatisfactionPatient Satisfaction Plus, LLC Patient Experience Resources Patient Experience at DRHC Patient Experience - SVMPharma PX Innovation Summit | Patient Experience HCAHPS Expertise - The Patient Experience

Prioritize your program participants by empowering them to choose their own ending 👥 Launch polls to let your audience choose the patient case studies they would like to focus on for better engagement and retention. Try it for your: 🔸National Broadcasts 🔸Regional Events 🔸Peer to Peer Programs 🔸Medical Affairs Programs 🔸Case Insight Programs Contact us here to change the dynamic of how your content is delivered 👉 https://lnkd.in/e5YrPDtA #HCPengagement #medicalaffairs #healthcare #communications

Ever have a protocol feedback assessment (PFA) done? We should talk about what that is and how it can benefit you. Just need a few bits of information, and you can think of it as running like a diagnostic test on your trial. And then we can take a look at our Global Recruitment Partner Network because recruiting is super hard. These are 100+ traditional recruitment companies, patient advocacy groups, pharmacy, healthcare, patient engagement platforms, marketing and diagnostic orgs. One-(you)-to-many-(them) on a pay-for-performance model for us to share the risk. Let's assess!!

In the realm of Medical Affairs, it's not just about actions; it's about impact. The theme of the recent MAPS EMEA meeting centered on understanding our biases, kindness, and the crucial need for Healthcare Providers (HCPs) to see beyond the disease and truly understand the patient. Our purpose? Science and partnership, all for the patient's benefit. But are we aligning our actions with this purpose effectively? Are we engaging with stakeholders—HCPs, Patient Advocacy Groups (PAGs), and patients—meaningfully? Are we measuring our impact accurately? These questions drive us towards co-creation, collaboration, and metrics that matter. Let's ensure our actions in Medical Affairs are not just tasks but meaningful contributions towards a healthier, more informed future for patients. #MedicalAffairs #HealthcareLeadership #PatientCentricity #MAPSEMEA24 #JointheMovement

Rare Patient Voice continues to hold the #goldstandard and be the go-to for patients & family caregivers to share their voice! #rarepatientvoice #patientadvocacy #familycaregivers #shareyourstory #shareyourvoice

Setting the Gold Standard in Patient and Caregiver Advocacy! . . We are the go-to platform for patients and caregivers to share their thoughts and shape the future of healthcare. . . Whether we are connecting clients with patients and family caregivers for participation in patient journey market research, medical market research, Medical Affairs projects, or clinical trials, the goal at Rare Patient Voice is to provide the highest quality service possible. . We put patients and family caregivers at the forefront, ensuring their voices are heard and valued in shaping healthcare. . Through surveys and interviews, we actively engage our patients and caregivers to gather valuable insights, contributing to the enhancement of medical practices. . Whether you're a patient or caregiver, we welcome you to join our community that understands and values your unique perspective. . It's not just about opinions; it's about making a difference. #rarepatientvoice .

People overcomplicate patient empowerment. Listen, if you're a healthcare organization: Avoid: - Token gestures of engagement without real partnership - Strict hierarchies where only clinicians make decisions - Opaque systems that block patient access to information - Assuming you know what patients need without asking them Instead: - Provide education and tools for patients to direct their care - Implement shared decision-making models - Integrate patient voices through councils and advocacy - Promote transparency by increasing access to records - Focus on this for the first year. - Build from there to a truly patient-driven system. Empowerment starts by stepping back power. Meet patients where they are - as experts in their conditions. Guide and support their autonomy. But let their voices lead. This transformation won't happen overnight. Take incremental steps to put patients first. The rewards will be immense. #patientengagement #patientempowerment #patientexperience

Happy after a day of insightful and challenging discussions at the Patient Centricity and Engagement Conference in beautiful Amsterdam, with Kevin Santo, Shivangni Tandon, and Dominique Rüedi, MBA! I enjoyed representing ZS and speaking on global patient advocacy efforts, how we need to take an honest look at our work today, and where we need to turbocharge PAG empowerment efforts so our patients can live lives that aren't constantly eclipsed by uncertainty and fear. Three reflections from our conversations ... 1. PAGs are diverse in origin, size, and capabilities, but they all have strong positive intent and tangible impact - how can we work together to enhance solutions and expand reach? 🤔 2. As we partner across the healthcare ecosystem, we need to acknowledge the core strengths of PAGs, i.e., trust and credibility. So, how do we generate urgency around starting conversations with them sooner? As early as Phase 1? ⏰ 3. Standalone solutions built in a vacuum do not work. Can we reframe our way of thinking, and harness tech and digital to build strong solution foundations, while retaining the human-led aspects of patient offerings? 🙋🏻♀️ We need to create a safe space for PAGs and patients to share experiences, even the tough-to-hear parts, and move away from our current checklist approach of assessing the relevance and uptake of treatments and solutions. True co-creation requires bravely stepping out of the echo chamber, and trusting our abilities to pivot and improve, so patients are not waiting years for a diagnosis, or delaying treatment because they don't understand the impact on life. The patient advocacy revolution is (finally) upon us! Thanks to Gila Allswang, Victoria L. Summers and Pranav Srivastava for support and guidance on this talk. Reach out to learn more about the team’s latest thinking and our patient co-lab! #patientcentricity #patientadvocacy #healthcare

Bring challenging ideas to the table! 💡 I had a very nice discussion today about patient engagement and how it should look in different settings. What is missing? How can we aim towards patient partnership? What’s the holdup in uptake? One of the barriers that came through was the fear of bringing challenging ideas to the table. In the end this is not even related to patient engagement. This is human nature. We tend to “know” how to get the job done and we don't need any help. The problem there is that people don’t know what they don’t know. Bringing challenging ideas to the table might seem difficult to deal with and people might ask themselves “Why make my life difficult when I already know what needs to be done?” But do you? Is your perspective wide enough? Can you look at the problem from all possible angles? Don't get me wrong, not all challenging ideas are good. But knowing what NOT to do, which way NOT to go is just as importat. Not bringing challenging ideas to the table limits perspective and, as a consequence, impact and uptake of the result. The more stakeholders involved, the more ideas at the table, the richer and adapted to more needs the results are. ❓ Do you agree? #patientengagement #patientpartnership #Challenge #patientadvocacy