If you’re attending the Myasthenia Gravis Foundation of America, Inc.’s 2024 National Patient Conference in Tampa, don’t miss our booth! We look forward to discussing our #MyastheniaGravis research, including the #ClinicalTrial of our potential treatment, CNP-106. Learn more about our study here: https://lnkd.in/eiQcxG8M
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🧠 During #BrainTumourAwarenessMonth we’re taking this opportunity to let patients know how they can discover all possible treatment options with myTomorrows. 💚 Discovering and accessing a clinical trial is just a four-step process with our patient navigators. Know your options here https://lnkd.in/enzyTP4u #BTAM #clinicaltrials #BrainCancer #BrainTumour #BrainAwarenessWeek
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We drive advancements in how this disease is cared for. One way we do this is through our our "International Expert Clinical Case series" (IECC). Launched in 2021, our IECC series helps drive discussion and collaboration amongst the #HHT medical community. Hosted by Cure HHT and held bi-monthly, each virtual meeting focuses on a different and specific topic area of HHT -- from brain to lung to spine to liver and more. Challenging cases are presented, and experts from around the world discuss and debate best practices and standards of care -- all in the name of driving better patient outcomes. Learn more about how we drive impact: https://lnkd.in/gDEyhNP9
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Knowledge is Power! Patients with MDS can learn from Dr. Hetty Carraway in this recent Seattle Patient and Family Conference recording. Families of these patients can understand more, too, by watching here: https://lnkd.in/eSDTbcYA #MDS #bloodcancer
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Strategic Market Access, Biotechnology, Women's Health, and Health Plan Leader specializing in Business Development, Strategic Partnerships, Client Management/Services, etc.
Blood-based CRC screening is easy and less invasive than other traditional methods. Getting screened is so important and anyone age 45+ should get screened and have a baseline for future screenings. Let's get tested and increase survival rates!
Giving people more options to complete recommended #ColorectalCancer screening could help close the screening gap and save lives. A new study from Guardant Health published in NEJM Group shows that a blood test demonstrates results on par with other non-invasive screening methods. Guardant Chief Medical Officer, Dr. Craig Eagle, sat down with our Senior Director of Mission and Partnerships, Erin Peterson, and explained the results of this exciting new study. Thank you for joining us, Dr. Eagle! Read more: https://lnkd.in/gH5wemx6
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Parexel's Rare Disease Patient Advisory Council met last week ─ just in time for #RareDiseaseDay! The Council explored the role of artificial intelligence in rare disease healthcare and clinical trial research — discussing the benefits, challenges and potential concerns of its use. Huge thanks to our amazing patients and advocates for their ongoing collaboration through our Patient Advisory Councils. Your insights help us shape patient-focused trials that prioritize patient needs. 🤝💡 #RareDiseaseAwareness #AIinHealthcare #PatientAdvocacy
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As World Sepsis Day is approaching, we have prepared a dedicated webinar with professors Jean-Louis Vincent and Zsolt Molnar, who will discuss specific treatment options in sepsis. Join us and use the opportunity to address your questions to world renowned experts. See you tomorrow!
📣 Discover a captivating webinar happening on September 13th, #WorldSepsisDay, dedicated to advancing septic shock patient care! 🎤Prof. Jean-Louis Vincent from Brussels, Belgium, and Prof. Zsolt Molnar from Budapest, Hungary, are set to explore topics including individualized therapy, timing and dosing. Elevate your understanding for improved patient well-being. Remember to save the date and spread the word about this event among your medical peers and associates! 👉 Join us: https://lnkd.in/eBTNhzWX #CytoSorbents #Sepsis #WSD2023 #SepticShock
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Have you ever wondered how you can help advance research without participating in a clinical trial? Patient research registries may be the answer! In this blog, Melissa Calise describes the basics of a patient registry, why they are important to healthcare and how you can get involved with our registry - the HEADS Registry. Read now: https://lnkd.in/ekvvRMCN
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Did you know that Rare Patient Voice can recruit rare and non-rare disease patients for clinical trials? Our community is large, always growing, and eager to take part in all kinds of research! #ClinicalResearch #ClinicalTrials #TrialParticipants
Welcome to ClinEco, Rare Patient Voice! RPV was founded in 2013 to provide patients and family caregivers a chance to be heard through taking part in research, including market research studies, online surveys, focus groups, and clinical trials. They have assembled a panel of 125,000+ patients and family caregivers and cover 1500+ diseases and conditions, both rare and non-rare, and span the United States, Canada, United Kingdom, Italy, Germany, France, Spain, Australia, and New Zealand. #patientrecruitmentandengagement #womenshealth Learn more and reach out to the Rare Patient Voice team on ClinEco! Pam Cusick, Tiffany White, Laura Mullen
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Save the date, RSVP, share with your networks to learn more about Nodify Lung and IQLung! #Biodesix #LungCancer #NodifyLung #IQLung
Save the Date, RSVP Open Now: 9/19/23 !!! Dr. Young Chae, MD and Dr. Ajay Wagh, MD will present simple, patient focused, cost-effective solutions to help streamline your lung nodule patients from pre-diagnosis through post-diagnosis to treatment. Local Representatives: Illinois: Nicole Westin & Drew Brauner Wisconsin: Michelle Weber Indiana: Lindsey Shaw & Troy Porter W. Michigan: Nicole Ellis
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With the recent updated FDA guidance on Clinical Trial Diversity - the one thing that stands out for me is the need for DATA. Data Sources, Data Access, Data Quality. Your Epidemiology plan needs to be Data Driven. You will need to have a robust data source of the highest Quality - the FDA WILL review this. You will need to include an overview of your Patient Engagement and Recruitment Strategy - and this has to involve appropriate site selection with a patient community that supports your desired real-world population. Finally, don't forget, it's not just about Age, Ethnicity, Sex, Race........ When we create offerings @Citeline, we ensure they solve a genuine industry need. #FDA #Diversity #ClinicalTrials #Data #Citeline
With the FDA's recent updated guidance, the need for a robust diversity plan has never been greater. Hear Citeline's Claire Riches shares insights about Global Patient Insights, the industry’s most comprehensive view of the worldwide patient landscape, helping you easily locate sites with clinically relevant and diverse patient populations. Learn more: https://ow.ly/Wjpe50SCgLX.
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We look forward to welcoming you this weekend!