Daniel Phillips’ Post

What are the needs of patients we barely consider when planning clinical trials? Less Visits? Less Procedures? Fewer Miles to Travel? More Time with their loved ones? Someone to Take Care of their Kids? A Space at the Site to continue work and make money so that they can pay the medical bills? More Attention? What else can YOU think of? (Please share in the comments 👇🏽 ) This is what we discussed with my first guest, Carole Scrafton, in my mini-series about the importance of understanding the local #StandardOfCare #PatientPathway before starting any trial. Why Carole? Carole co-founded FibroFlutters, an advocacy group for chronic and rare illnesses. She champions patient engagement and multidisciplinary healthcare approaches, emphasizing early involvement in research. Carole regularly speaks at global conferences and advocates for improved medical communication and education, drawing on her experience with Ehlers-Danlos syndrome and fibromyalgia. She actively works with companies on best practices to engage patients and implement these insights. This quote is one of many lessons Carole shared with me on Trials with Maya Z - my podcast dedicated to bringing different stakeholders' perspectives on making research more efficient, faster, and cheaper. The link to the full conversation is in my comments, and an article is coming soon too! #patientfirst #clinicaltrials #RWD #clinicalresearch

Patiently emerged as our answer to the silent question many patients ask: What does this mean for me? Born from countless hospital stays and inspired by the resilience of families on their health journeys, our platform is designed for anyone who’s felt overwhelmed by the complexity of medical language. My own path through the healthcare system began much earlier than most. Born prematurely and facing asthma from a young age, hospitals were as familiar to me as playgrounds are to other children. These early experiences taught me not just resilience but highlighted the deep divide between medical professionals and patients—a gap where jargon breeds confusion and fear. Watching my 3-year-old, Dr. Yam, in her play, serves as a poignant reminder of Patiently’s core mission: to render healthcare information not only accessible but meaningful for everyone, irrespective of their medical literacy. We invite you to join us in reenvisioning a healthcare system where no one feels like an outsider in their own health journey. We’re transforming the experience of health. #Patiently #EmpathyInAction #HealthcareReimagined #PatientCentered #FamilyDrivenInnovation #KosherStartup #MadeInIsrael

While in senior management at the Greenville Health System years ago, we created a hospital-doctor affiliation system that is worth revisiting because it may help us understand our current medical care situation and a way to prioritize patient well-being going forward. If we define medical care as the perception patients have of our healthcare system, then our situation is dire as 70%-90% of the populace have an unfavorable opinion of their medical care. As we have established, lack of availability, corporatization, depersonalization, exploitation of non-clinicians and poor communications seemingly conspire to undermine patient well-being. And while all of these are important, none is probably more contributory than the clinical burnout experienced by doctors who have lost autonomy and the sense of meaning in their work. This brings us to the hospital-doctor affiliation classification I helped create, and one that grants various degrees of doctor autonomy.

Could a medical error happen to you? I was reflecting on a recent panel discussion on patient empowerment and thinking about the stories the panelists and audience shared with me about their experiences with medical error. Having lost one friend to a medical error and nearly lost another, these stories resonated with me. I’m grateful to the teams at Littleton Road Philanthropy, NBC, Peacock, Dr. Death and The Atlantic for taking a provocative case of medical misconduct to shine a light on patient empowerment. While the story in Dr. Death is fascinating and well told, it is an extreme example - one that few of us will ever encounter. On the other hand, many people don’t realize that, well meaning health professionals make mistakes every day. Medical errors are one of the leading causes of mortality in the United States. While many of the attempts to address this issue have been centered around health professionals, Patients can also empower themselves. As part of this collaboration, we created free resources to help people in their health journey. You can find them here https://lnkd.in/diJrt5vk If you feel comfortable sharing, please comment below about your experiences with medical error. Together we can raise awareness, increase, empowerment, and reduce harm.

Many of us with children know the behaviors that occur if they do not have our attention. Our need to be heard starts when we are young, but does not end. Whether it is through social media or traditional conversation, being heard is a societal concept that allows people to feel respected and even allows us to have common ground. It is also an aspect of our patient satisfaction scores; scores that are becoming more and more important to the business of medicine. Listening, involving our patients in shared decision making, and their participation in their care may improve the interaction and empowerment of our patients in their healthcare. It then may improve our patient’s perception of their experience if they feel valued and respected. Food for thought as we look into patient partnerships in the perioperative period.

Check out this article by Chief Medical Information Officer, Dr. Will O'Connor, featured in Medical Economics on the importance of building patient trust. Link: https://buff.ly/3UdSYd6 #PatientTrust #PatientExperience #HealthcareInnovation

As my mother grows older, my role as a caregiver continues to put in high regard the value of a support network. It can come in various ways: family, friends, nurses, support programs, and, undoubtedly, patient organizations.   Patient organizations are vital in shaping the future of healthcare. They amplify patient voices and engage stakeholders to improve treatment options and contribute to a better quality of life. At J&J, we believe when these organizations are prepared to embrace said future, they can advocate effectively for a better healthcare journey for patients with diverse conditions.   This vision led to #AdvocatesForum, a space co-created by patients and for patients to connect, learn, build community, and engage with the constant evolution of disease care. This year, we gathered 38 patient organization leaders from 11 countries in Latin America to discuss evidence generation, regional partnerships, collaborations with scientific societies, and technology assessment so they can also lead in the future.    Patients' and patient organizations' unique journeys inspire us to work together and continue leading where medicine is going.   A big shout out to the Communication & Public Affairs team for making this happen. Rocío Castañares, María Fernanda Franco Esquivel, Monica Rivas Chedraui, Maria Paula Rodriguez Cardozo, María Eugenia Gesualdi, Valeria Donado Levy

In our recent survey of clinicians leaving the field we asked: “What would you improve about the industry as a whole?” We heard some thoughtful answers and suggestions. Their responses hit on some major themes: - Expanding the non-clinical education that clinicians receive during school - Improving and rethinking the current reimbursement models - Offering more alternatives to these models for generating revenue - Educating the wider healthcare industry about what PTs do and its importance across patient care - Increasing public awareness on the benefits of rehab therapy for various health issues and overall well-being Thank you once again to The Clinician Transition for making this survey possible, and for the invaluable perspectives they shared! We’re hoping these insights and opinions can lead to productive conversations on these topics and contribute to positive change in our industry. Find the full report on why clinicians are leaving traditional patient care, linked in the comments.

During medical appointments, patients often understand only part of what their doctors explain—a situation that occurs more often than it should. The use of complex medical language, which is clear to professionals, can confuse, mislead and stress patients, hindering their active participation in their healing journey. Read a great article written by our Greybeard Healthcare Associate Michele Brailsford, our Expert in Case Studies and Articles on this topic. #healthcare #healthcareconsulting #communication #healthcommunication #patientexperience #patientsafety #patientsatisfaction #healthcareleadership #healthcareexcellence https://lnkd.in/gKRaAqwa

By supporting your care teams with reliable and comprehensive clinical resources that synthesize information and summarize the benefits and risks of a decision, clinicians can get the answers they need at the point of care.