Equity in healthcare is a big issue for people with rare diseases who are often diagnosedafter many years of not being believed, of unexplained symptoms and with misdiagnosis - known as the 'diagnostic odyssey'. Watch Helga share her story of her diagnosis with FCS. We support #HoFH and #FCS on #RareDiseaseDay EURORDIS-Rare Diseases Europe
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Today, we raise awareness for rare diseases, standing in solidarity with those affected. Let's shine a light on their journey and advocate for better understanding and support. Check out our blog for more information: https://lnkd.in/gdihz8kS #SLMCH #Savinglives #srilalithambigai #DRMGR #MGRERI #RareDiseases #RaiseAwareness #MedicalResearch #GeneticDisorders #HealthcareChallenges #PatientAdvocacy #PrecisionMedicine #RareDiseaseAwareness #SupportPatients #MedicalInnovation
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Did you know that autoimmune diseases are often considered disabling by the SSA? Learn more about the conditions that may qualify you for SSDI benefits on our blog. Read more - https://lnkd.in/g5xHqHNw #RooseAndRessler #MoreThanANumber #SocialSecurityDisability #WoosterLawyers #ToledoLawyers #MansfieldLawyers #LorainLawyers #TopOhioLawFirms #OhioSocialSecurityDisabilityLawyers
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Did you know that autoimmune diseases are often considered disabling by the SSA? Learn more about the conditions that may qualify you for SSDI benefits on our blog. Read more - https://lnkd.in/gZy6z-UY #RooseAndRessler #MoreThanANumber #SocialSecurityDisability #WoosterLawyers #ToledoLawyers #MansfieldLawyers #LorainLawyers #TopOhioLawFirms #OhioSocialSecurityDisabilityLawyers
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Tune in tomorrow for an online webinar as experts go over the risk and burden of vaccine-preventable diseases in patients with #COPD and #asthma. Sign up now. ☝️ Link in Bio. #Pulmonary #Pulm #Pulmonologist #DiseasePrevention #Respiratory
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Diagnosing rare diseases can be challenging due to limited knowledge among doctors. These conditions affect multiple organs and systems, complicating detection and treatment. Equitable access to diagnosis and specialized care is crucial for individuals living with rare diseases. #BehindTheMystery #RareDiseaseDay #RareDiseaseDay2024 #UnveilingTheMystery #InspiringHope #RareDiseases #RareDisorders #ShowYourStripes #CareForRare #RareDiseaseAwareness #UnityInRareness #MedicalEquity #HealthcareAccess #HealthEquity #PatientAdvocacy #EqualityInHealthcare
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Learn how we are dedicated to advancing new therapies through innovative approaches for the treatment of #inflammatory, #fibrotic and #autoimmune diseases. https://bit.ly/3pRUJAu #NKT #idiopathicpulmonaryfibrosis #systemiclupuserythematosus
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Rare diseases affect fewer than 1 in 2000 people. They are anything but rare though! Worldwide there are 300 million people living with a rare disease. Rare diseases pose unique challenges to these individuals: 📍Those living with a rare disease often experience a significant delay in getting an accurate diagnosis. 📍Inequalities and access barriers make it difficult to get the care and treatment they need once they are diagnosed. 📍Because of a lack of awareness and knowledge about rare diseases, it can be difficult to connect with the right care team. As we approach Rare Disease Day on February 29th, how will you help support the #raredisease community?
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Medical Writing | Clinical Research | Scientific Writing | Health Communication | Medical Content | Anesthesiologist
Today is Rare Disease Day! A special day to raise awareness around the world, improve access to treatment and support patients and families 💜 What are rare diseases? All of those that affect less than 1 in 2000 people, it is estimated that 300 million people live with a rare disease worldwide 🌎 The principal challenges for patients living with rare diseases are the lack of information, which leads to a delay in the diagnosis, and the limited access to treatment and care How can we help? Get involved in Rare Disease Day activities, spread the word, and share knowledge 💚 Unite for change! Unite for equity! #RareDiseaseDay #LightUpForRare
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What is the incidence of blast-phase disease in myelofibrosis according to anemia severity and ruxolitinib treatment? Read our summary of a study by Palandri et al. to learn more: https://loom.ly/1bKUXU8 #MPN #MPNsm #MedicalEducation
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Watch this interesting video on how community support can enable TB treatment continuation and together we can #endtb
It takes a whole community’s support for an individual to defeat TB, and Khushipur’s story stands as a testament to this. Chandraprakash’s diagnosis was met with the power of collective support and encouragement, ensuring he gets the proper treatment. From offering him comfort to ensuring his nutritional requirements were fulfilled - the efforts from his community to fight #TogetherAgainstTB helped him defeat the disease. The road to recovery for a TB patient can be challenging. Symptoms and treatment, along with stigma around the disease, can make the journey very difficult. But care and compassion from people around can make an impactful difference. Watch the video to learn more about Khushipur’s inspiring story of becoming TB-free. #WorldTBDay #WorldTuberculosisDay #Tuberculosis #TBFree
