Launching the Parkinson’s Pathway Alliance: Your Support Needed Dear Friends, Family, and Advocates, I am Frank, and I live with Parkinson’s disease. Today, I am reaching out to you with a heartfelt request to support the formation of a non-profit organization that is very close to my heart—the Parkinson’s Pathway Alliance. Why We Need Your Help: The journey with Parkinson’s is challenging, and the need for a unified advocacy group is critical. The Parkinson’s Pathway Alliance will be a pillar of strength and a voice for change, but we cannot do it without your help. The Power of Your Donation: Your donations are the cornerstone of our non-profit’s formation. With your support, we can: Establish the legal and operational framework for the Parkinson’s Pathway Alliance. Begin our mission to educate, support, and unite the Parkinson’s community. Advocate for impactful policy changes and increased research funding. A Call to Action: This is more than a fundraiser; it’s a call to action for all who believe in making a difference. Your contribution will not only help establish the Parkinson’s Pathway Alliance but also mark the beginning of a new era of Parkinson’s advocacy. Thank you for considering a donation to help bring this vision to life. Together, we can create a legacy of hope and progress for the Parkinson’s community. With sincere appreciation, Frank https://gofund.me/87ea8193 #Parkinson's Advocacy #Parkinson's Pathway #Parkinson's
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Meet Elizabeth, our Board President at the Endo Forward Foundation! 💛 In this video, she shares her excitement about where some of the funds raised during NTX Giving Day will go—and it’s all about pushing forward education and awareness for endometriosis. For Elizabeth, this mission is personal. After spending 14 years searching for answers and being told by over 40 doctors that everything she was going through was “normal,” she finally learned the truth—it wasn’t normal, and she had endometriosis. That’s why she knows firsthand how critical it is to spread education and awareness about this disease. With the funds from NTX Giving Day, we’ll be creating educational resources, raising community awareness, and pushing for better care so that no one has to go through what Elizabeth and so many others have endured. Your support is helping us break the cycle of misdiagnosis and misinformation, and it’s changing lives. Thank you for standing with us. Together, we’re making sure every Endo Warrior has the knowledge and care they need. 💛 Donate Here: https://lnkd.in/gfseREfv #northtexasgivingday2024 #endometriosissurgery #endometriosissupport #patientadvocate #endoforwardfoundation #endosupport #nonprofitlife #EffEndo #endometriosiswarrior #nonprofit #endometriosisawareness #makingadifference #youmatter #chronicillnesswarrior #endostrong #dallas #texasnonprofit #dfwnonprofit #austin #austinnonprofit
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🗓️ Save the date! The 15th May is Flying Doctor Day. Learn more about the incredible service delivered by Royal Flying Doctor Service (WA)
Wherever life takes you, the Flying Doctor is never far away 🌲🌊🌾 This year's Flying Doctor Day (15 May) recognises those who live, work and travel around Western Australia, and shines the spotlight on three RFDS patients; Leanne, Leia and Parker. Over the next month, you'll hear more from these incredible individuals who had their whole lives changed within moments ⏳ If you live, work or travel across our great state, or know someone who does, please consider making a donation on or before 15 May and see your donation doubled by our Matched Giving Partners CBH Group, IGO Ltd and Westgold Resources Limited 🎉 Donate at www.flyingdoctorday.com.au ❤️ 💙
RFDS WA | Flying Doctor Day 2024
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🧠 Today is #WorldMSADay, a crucial time to raise awareness about a disease with a misdiagnosis rate as high as 20%. ⚕️ Multiple System Atrophy (MSA) is a progressive neurodegenerative disorder affecting the central and autonomic nervous systems. It causes movement difficulties, balance and coordination issues, and autonomic dysfunction. The disease progresses rapidly, leading to increased disability and often necessitating walking aids. 👁️ A crucial aspect of #MSA is eye movement dysfunction, caused by degeneration in brainstem structures that control eye movements. Diagnosing MSA is particularly challenging: 🩺 MSA is categorized as an atypical parkinsonian syndrome due to its resemblance to Parkinson's disease. It’s frequently misdiagnosed as Parkinson's or progressive supranuclear palsy, complicating research efforts across all three conditions. 🩺MSA presents in two distinct forms: MSA-P (parkinsonian type) and MSA-C (cerebellar type), each with unique clinical features, progression rates, and treatment responses. These 2 forms are hard to distinguish. New research highlights the potential of eye movement monitoring to revolutionize MSA diagnosis and care. It offers the ability to: 🔬Improve diagnostic accuracy, reducing the need for unnecessary invasive tests 🔬Enhance patient selection for clinical trials, ultimately speeding up the development of new treatments 💪Today, let's raise awareness and work towards better outcomes for those living with MSA. Bas Bloem Marcel Verbeek Bart van de Warrenburg Multiple System Atrophy Trust Mission MSA International Parkinson and Movement Disorder Society National Organization for Rare Disorders #biomarkers #neuroscience #eyetracking
The purpose of World MSA Day is to raise awareness about multiple system atrophy (MSA), a rare and progressive neurodegenerative disorder that affects the body's autonomic functions. Join us in acknowledging the strength of those impacted by MSA. Our Path to a Cure 5K fundraising event series is our way of spreading awareness, raising crucial funds, and bringing the community together to drive progress towards a future without this rare disease. Thank you to those who have donated or are taking part in our events, whether you joined us in Dallas last weekend, our Chicago 5K this Sunday, or our virtual 5K that kicks off today! Your involvement helps us make an impact! To make a contribution, click here: https://lnkd.in/gazd5Xbu #WorldMSADay #MSA #multiplesystematrophy #MissionMSA #donation #donate #raredisease #rarediseaseawareness #msaawareness #PathtoaCure5K #PathtoaCure #Dallas #Chicago #Virtual #5K #fundraiser #fundraising #getinvolved #contribute
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To mark #rarediseaseday2024 Costello have launched a pro bono call for projects, aimed at rare disease-focussed non profits! 🥳 See the post below for more details and how to apply 👇🏻 #probono #lightupforrare
Calling all Rare Disease Non-Profits! This year we are celebrating Rare Disease Day by launching our first call for projects focused on rare diseases. We will be providing non-profit organisations free-of-charge support to develop evidence towards or advocate for improved access to healthcare and treatments. Find out more and apply for our support here: https://lnkd.in/eK7y5pqs Applications close on Sunday 7th April (23:59 BST). We look forward to receiving your applications! #rarediseaseday #rarediseases #probono #givingback #nonprofit #charity #charities #patientaccess #evidencebasedcare #heor
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Despite all kinds of complicated math, somehow the numbers are this simple. 12 monthly donors, 12 active participants. If we get more monthly donors, we can immediately approve more folks who have applied. Help us say yes! Every penny of your donation goes directly to fund therapeutic services and supports for our participants. You can now also set up a monthly gift at GiveButter if you prefer them to PayPal! And of course a huge thank you to our one-time donors as well! Every dollar matters. #therapy #psychology #nonprofit #mentalhealth #equityinmentalhealthcare #mentalhealthawareness #healthcareforall
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Your Response Time Matters. Take action today, for a tomorrow. DetecTogether is a nonprofit 501 (c)(3) education and advocacy organization dedicated to saving lives by teaching people how to detect the early warning signs of cancer and take action to save their own lives. Early detection starts with patient action. Take action to help firefighters and others today, so they have a tomorrow by donating: https://bit.ly/475faKN #nonprofit #donatetoday #detectogether #3stepsdetect #earlydetection #earlycancerdetection
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International Day of Charity - Supporting Those Living with Cystic Fibrosis Today, on International Day of Charity, we’re shining a light on the vital work of Cystic Fibrosis Queensland and the impact we’re making in the lives of those affected by cystic fibrosis. Each day, our dedicated team supports individuals and families living with this life-threatening condition. However, less than 10% of our essential funding comes from government grants. That’s why we need your support to continue offering crucial services like clinical care, education, equipment, and advocacy for those in need. Curious about the impact we’re making? Check out our latest Annual Report to see the positive outcomes your donations are helping us achieve. https://lnkd.in/gyap4m-9 Every dollar makes a difference. Join us in our mission to create a world where people with cystic fibrosis can thrive. Donate today: https://lnkd.in/g4h5UvjW #InternationalDayOfCharity #CysticFibrosisQueensland #DonateNow #Charity #Impact
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On this World Blood Donor Day, seize the opportunity to make a real, tangible difference. Your generous act can turn into a beacon of hope for those in need. Your donation can be the difference between life and death, health and suffering. Step up, donate, and be the hero someone desperately needs. #WorldBloodDonorDay #realestate #realestatelife #realrichnews #investmentstrategies #investmentproperty #richlifestyle #InvestmentAdvice #RealRich #donateblood #DonateBloodSaveLife
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Our #GameOnCancerMVP leaderboard is heating up! 🔥 Want to see your physician top the charts? Check out the full team here to see if your favorite doctor is on the list! 💪 ➡️ https://bit.ly/3VXcE51 #GameOnCancer #HenryFordHealth #Fundraising #Nonprofit
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Imagine a world where every child with Duchenne has access to life-changing treatment and support. Your tax-deductible donation can turn this into a reality. Your donation is flexible to you and your financial capabilities, choose to do a one off or ongoing monthly payment. Your donations will help: 💙 Fund vital research into Duchenne treatments, therapies and trials. 💙 Advocate and raise awareness for better healthcare services for Duchenne. 💙 Support families experiencing Duchenne. Donate today and make a tangible difference in the lives of those who need it, via our website: https://lnkd.in/g3KqMjUP. Every donation, no matter the size, makes a difference. Please also help us spread awareness by sharing this post. [Image description: The words “EOFY Tax Donation” in a white box. Underneath it says “Donations over $2 are generally tax and will help fund vital research, advocacy and ultimately change the future for families who are living with Duchenne.” with Duchenne Australia’s logo. To the right of the text is a grey box with a blue card with a white heart being inserted in it.] #DuchenneMuscularDystrophy #DMD #EndDuchenne #CureDMD #FightDMD #SupportDMD #DonateNow #TaxDeductibleDonation #Charity #NonProfit #MedicalResearch #PatientSupport #FamilySupport #MakeADifference #HopeForDMD #CommunitySupport #InclusiveCare #AccessibleHealthCare #DuchenneAustralia #RareDisease #DuchenneCommunity #DuchenneAwareness #Duchenne #Becker #StrongerTogether
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Professional Grant Writer & Crowdfunding Strategist dedicated to helping individuals/businesses and organizations, secure the funding they need. Click here 👇🏽 now if this is you
4moHi Frank Cummins are you open to exploring some strategies that would be effective in increasing your chances of getting donations?