For the 7th year in a row, Granite teammates participated in the Boston Children's Hospital #CorporateCupChallenge a fundraiser for #BostonChildrens that promotes fun and friendly competition within the business community through a series of field day events. The event raised over $1 million! Yesterday our team played for Adrian! After his first birthday, Adrian's family went to Boston Children's where they discovered he had a spinal muscular atrophy type 2 (SMA type 2), a rare genetic disorder that affects the nerve cells that control voluntary muscles. It can impact the movement of a child's legs, arms, hands, head and neck, and can affect breathing and swallowing. Boston Children's researchers had just conducted a clinical trial, which showed that a new drug called Spinraza could help the muscles and nerves of SMA patients work more normally. It was the first FDA-approved SMA treatment - and Adrian's doctor prescribed it immediately. The treatment was life-changing. Today, Adrian is nine years old and continues to visit the hospital every four months for injections to slow the disease and he's joined a groundbreaking clinical trial to remove the bad proteins that prevent his muscles from growing. Adrian loves to race friends in his wheelchair and is a natural entertainer! Donate today! https://lnkd.in/exxXgD7X
Congrats, Team Granite!
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1moWhat a great effort for a special boy. Well done!