Indo US Organization for Rare Diseases (IndoUSrare)’s Post

Today we celebrate World Rare Disease Day, join us today on our IG live @rarediseaseng as we discuss Rare Diseases in Nigeria by 5pm W.A.T For more information, kindly reach out to @rarediseaseng @cardiaccommunity @ffnsng #rarediseaseday #rarediseasedayofficial #rarediseasenigeria #rarediseaseday2024 #cardiaccommunity #neuromusculardystrophy #rarediseaseawarenesssupportfounfation EURORDIS-Rare Diseases Europe National Organization for Rare Disorders

Inflammatory rheumatic diseases can also occur over 50! A nice summary from the film intro… #MedPalaceRheumatologyClinic #elderly #over50 #musculoskeletaldisease #rheumaticdisease #inflammation

As we mark #WorldLupusDay, IGM recognizes the millions of people worldwide impacted by #lupus, including their families and friends. We are inspired to advance our research in SLE, RA, myositis, and other autoimmune diseases.  #MakeLupusVisible; #LupusAwarenessMonth; #IGMLupus

Good morning 🤍 If you’re interested in learning more about the new therapy for one of the ultra-rare diseases, ENPP1 Deficiency, a type of #rickets, join this very interesting session provided by Prof. Zulf Mughal at the MENA Congress for Rare Diseases Please let me know if you have any questions about that as well. #Raredisease #ENPP1

📢The Rare Autoimmune Rheumatic Disease Alliance (RAIRDA) are conducting a survey to help improve care for people with rare autoimmune rheumatic diseases, and ensure they remain a priority. If you have a RAIRD condition please take part in this vital campaign by completing this survey https://bit.ly/3UINacg #RAIRDaware #RareDisease #RheumaticDisease #Rheumatology #RheumatologySurvey #HealthSurvey

Here are some very important FACTS about RARE DISEASES ! Did you know that for the 95% of the Rare Diseases, currently there is no treatment and it can take more than 10 years to get an accurate diagnosis? Currently there are 300 million people worldwide affected by a rare Disease & 30 million people are estimated in Europe alone. Almost 500.000 people are affected in Greece ! It is time to act  #raredisease #rarediseases #rarediseaseday #takeda #HealthEquity4Rare

e-Clinic & Diagnostics Ltd is inviting you to a Zoom Webinar. . TOPIC: PEPTIC ULCER DISEASES (TYPES AND ALL YOU NEED TO KNOW. . Date: 30th September, 2023 Time:10:00 AM West Central Africa Register in advance for this Webinar: Click the link below; https://lnkd.in/dxpU9FFV... After registering, you will receive a confirmation email containing information about joining the meeting. #eclinicnigeria #eclinicanddiagnostic #eclinicabuja #eclinicanddiagnostics #webinar #ulcer

📢 Read our Review paper 📚 #Antioxidant Activity of #Panaxginseng to Regulate #ROS in Various Chronic Diseases 🔗 https://lnkd.in/g9_MP8mc 🏫 Kyung Hee University @Islamic University 👨🔬 by Mr.   Md Niaj Morshed et al. #oxidativestress #ginsenosides #secondarymetabolites #chronicdisease MDPI Encyclopedia MDPI

NAAF leadership met with National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) to discuss alopecia areata initiatives and impact on the community. Learn more here: https://lnkd.in/eBrKdktD

Today is #RareDiseaseDay, a time to raise awareness about the millions of people worldwide who suffer from rare diseases. Did you know that over 6000 rare diseases affect between 3.5% to 5.9% of the population, or roughly 300 million people? Rare diseases are characterized by a broad diversity of disorders and symptoms that can vary not only from disease to disease, but also from patient to patient suffering from the same disease. It is estimated that 72% of rare diseases are genetic, and 1 out of 5 cancers is rare. We at STADA Group are supporting initiatives aimed at caring for people's health and finding treatments for these rare diseases. #stada #caringforpeopleshealth #rarediseaseday