Inventia Life Science’s Post

The iXCells Rare Disease Awareness Workshop is LIVE NOW! We're already underway at The 2nd iXCells Rare Disease Awareness Workshop, but there's still time to dive in with us! This is your chance to be part of an impactful gathering, featuring a lineup of distinguished speakers and groundbreaking sessions. Here's why you should join us: Dynamic Sessions: Engage in three compelling segments offering fresh perspectives from pioneering parents, insights on iPSC-Derived CNS Models, and the power of industry collaboration. Expert Insights: Hear directly from renowned leaders like Dr. Don W. Cleveland, Dr. Tim Yu Dr. Yael Weiss, Julia Vitarello, Dr. Gene Yeo, Dr. Jeanne Loring, Winston Yan, MD PhD, Dr. Christopher Hart, and many more. Their experiences and knowledge are not to be missed! Networking Opportunities: Connect with academic leaders, patient advocacy champions, and key industry players in the rare disease ecosystem. Expand your network and collaborate on advancing rare disease solutions. 🗓️ TODAY: February 8, 2024 | 11:00 am – 5:00 pm PST ✅ Last Chance to Register: Secure your spot NOW and be part of this transformative event. Your opportunity to contribute to the rare disease community and drive forward solutions is just a click away. Register here: https://lnkd.in/gh5AvkxY Michaelle Jinnette, MA, LMFT Nianwei Lin Amber N. Freed Wayne Vaz #RareDisease #Innovation #Webinar #Healthcare #Leadership #iXCells #DrugDevelopment #PersonalizedMedicine #StemCellsResearch #RegenerativeMedicine #Biotech #RareDiseaseAwareness #ASODevelopment #Neuroscience #CNSDiseases #PatientFocusedTherapy

The 4th International Symposium on Interstitial Lung Disease (ILD) in Rheumatic Diseases will convene virtually on January 12-14. Intended for scientists and clinicians who focus on rheumatic diseases like #scleroderma, this meeting aims to draw attention to #ILD and share recent progress by the world's top researchers and clinicians. We're pleased to share that CONQUEST, the SRF-driven platform clinical trial, will be featured in this event. The goal of CONQUEST is to rapidly evaluate potential treatments for scleroderma-associated ILD. Dr. Dinesh Khanna of the University of Michigan (pictured right) and Dr. Toby Maher of Keck School of Medicine (pictured left), the co-chairs of the CONQUEST steering committee, will share a presentation that discusses this groundbreaking clinical trial. Through CONQUEST, the SRF is spurring vital therapeutic innovation. In short, it's a game-changer. We are so grateful for the opportunity to share this work with the greater scientific and medical community—collaboration is essential to making progress. ➡️ Learn more & register for the symposium: https://lnkd.in/gAhFadTn ➡️ Learn more about CONQUEST: https://lnkd.in/gex9KYwq #sclerodermaresearch #srfcure #conquest #sayscleroderma

🌟 Calling All Patients, Caregivers, and Medical Professionals! 🌟 If autoimmune diseases are part of your life or professional practice, we value your insight more than ever. 🧬 👥 We are in the process of launching a project titled "ImmuniFriend," aimed at directly engaging individuals affected by autoimmune diseases, as well as caregivers and experts in the field. Your unique perspectives are key to deepening our collective understanding and enhancing the support for the autoimmune community. 🎓 leading our efforts is a dedicated team affiliated with institutions such as ESCP Business School, PwC, University of Heidelberg, Sorbonne Université, Goethe University Frankfurt, and the German Cancer Research Center (DKFZ). 👉 We invite you to share just 15 minutes of your time for our survey, contributing to a meaningful cause that aims to improve autoimmune disease care and advance research.💚 🔗 To participate, simply scan the QR code provided in the image or follow the link here: fm.addxt.com/f/?t=hnovGw. #AutoimmuneAwareness #PatientCare #MedicalResearch #Healthcare #CommunitySupport

Knowing that cancer runs in your family is scary. It can feel like your future has already been decided but Your genetics could be your best ally to potentially mitigating your cancer risk. Genetic testing revolutionizes the fight against cancer, offering early detection and personalized strategies to reduce your risk. Breakthroughs in genetic testing, such as identifying BRCA1 and BRCA2 mutations (breast cancer) and Lynch syndrome (colorectal cancer), are empowering individuals with knowledge and actionable strategies to mitigate their cancer risks. With advancements like polygenic risk scores and multi-cancer early detection tests, we're not just fighting cancer on a personal level; we're shifting towards a culture of preventive healthcare. Check out this blog post by my colleague and co-founder, William Stanford MD, PhD that dives into more detail on how cancer risk awareness coupled with action is an important component in the fight against cancer. https://lnkd.in/ggV8yQGW #CancerPrevention #GeneticTesting #PrecisionMedicine #ProactiveHealthcare #EarlyDetection #PersonalizedMedicine

Happy Clinical Trials Day! 🎉 Today we celebrate the dedicated scientists, researchers and healthcare professionals who contribute to groundbreaking health studies globally. We honor the patients and participants who play a vital role in advancing health research. We recognise the dedicated teams that work tirelessly, pushing boundaries to enhance patient outcomes and shape health policies. Our incredible trials team is currently running nine randomized controlled trials (RCTs) in general practice testing novel interventions covering cancer prevention, risk-based screening, pharmacogenomics, and early cancer diagnosis in primary care 💪🏼 It is essential to continue advocating for the importance of clinical trials in enhancing patient care. Photo features (from top left to right): Dr Sibel Saya, Prof Jon Emery, Dr Dulashi (Anna) Withanage Dona, Georgia Ramsay, Sophie Chima, Eliza Zmislja, A/Prof Jennifer McIntosh, Dr Javiera Martinez Gutierrez She/Her, Floriana La Rocca, Matt Thoenig, Afaf Humam, Madeline Luke and Sandra Sursock #HealthResearch #PatientCare. #ClinicalTrials #HealthcareInnovation #ClinicalTrialsDay #CTD2024

I get to talk about AI quite a bit in my professional life, but today, it’s Rare Disease Day, and the real reason AI excites me. A few years ago, my family was fortunate to be chosen to participate in the Rare & Undiagnosed Program at Mayo Clinic. And, while this isn’t a “club” anyone wishes to belong to, I have hope that by studying my family’s complete sequenced genomes, as well as other families like mine, more discoveries will be made providing critical answers.  I see a better tomorrow where AI will help facilitate the discovery of currently unknown genetic conditions, faster diagnoses, improved treatments, and one day, a cure!   You probably don’t really think about rare diseases after all, they’re rare, right?!  However, when it impacts you or someone you love everything changes in an instant. For us, our lives were forever changed in 2015 and as a parent the feeling of helplessness can feel overwhelming at times💔 But, to my little fighter, I firmly believe one day things will look brighter. You’ve taught me real superheroes are children fighting battles unseen with the bravest, most determined hearts of all. Rare Disease Day is a globally coordinated movement working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for the 300 MILLION people living with a rare disease. So today, on this rare date of February 29th, please join me in raising awareness, funding, empathy, and advocating for the people living with a rare or undiagnosed disease, as well as those tirelessly searching for solutions. #RareDiseaseDay #Awareness #Science https://lnkd.in/gZns_zi3

Looking forward to joining Dr. Glenn Phillips and Dr. Albert Whangbo on this webinar discussing an approach to quantifying glucocorticoid toxicity in real-world data from large data sets - an approach custom-made for HEOR (health economics outcomes research) studies. Registration link below. #steritas #HEOR #glucocorticoidtoxicity #steroids #GTIMD #PatientData #HealthcareCosts

Cancer and chronic health issues can affect anyone. But for too long, medicine has ignored queer and trans people's unique needs. At Summit 2023, speakers gathered to discuss how to improve the representation of our communities in research. Check out the panel for yourself: https://lnkd.in/gPi4CNAV

Join us for the third dialogue in WHAM's 3Not30 Virtual Roundtable Series, as we focus on accelerating research, innovation, and investment in women's health over the next three years!    This month, we're turning our attention to autoimmune disease. With autoimmune disease disproportionately affecting women, comprising 80% of patients, it is crucial to address the substantial gaps in awareness, funding, and innovation surrounding these chronic conditions. Esteemed leaders in this field will delve into the current landscape and unveil our ambitious goals for the next three years.   🔗 REGISTER NOW: https://lnkd.in/e6ZUetb2   📆 Date: Thursday, March 14th, 2024 ⏰ Time: 1-2 pm ET   The call for change in 3Not30 is here, and together, we actively shape the future of women’s health. Don't miss this opportunity to be a part of the conversation and drive meaningful impact! ⁠ Thank you to everyone who contributed to the creation of the 3Not30 goals:  Michael Annichine (Magee-Womens Research Institute & Foundation), Tom Cassels (Rock Health), Dr. Janine Austin Clayton (The National Institutes of Health), Esther Dyson (Wellville), Jessica J. Federer, Laurie Fenton Ambrose (GO2 for Lung Cancer), Dr. Lori Frank (The New York Academy of Medicine), Maria C. Freire, Ph.D., Dr. Elizabeth Garner (Ferring Pharmaceuticals; American Medical Women's Association (AMWA)), Dr. Julie Gerberding (Foundation for The National Institutes of Health), Stacy Pagos Haller (BrightFocus Foundation), Marsha Henderson (FDA), Dr. Hadine Joffe, MD MSc (Brigham and Women's Hospital; Harvard Medical School), Sasha Kelemen (Leerink Partners), Sheila Ann Mikhail (Asklepios BioPharmaceutical, Inc. (AskBio)), Melissa Gong Mitchell (Global Coalition on Aging), Dr. Stacey E. Rosen, MD, FACC, FACP, FAHA (Northwell Health), Dr. Erica Ollmann Saphire (La Jolla Institute for Immunology), Ashraf (Ash) Shehata (KPMG), Dr. Ellen Sigal (Friends of Cancer Research), Ramita Tandon (Walgreens)   #WHAMnow #3Not30 #WomensHealth #HeartHealth #Research #Innovation #Investment #VirtualRoundtable #HealthcareFuture

Hello, please consider joining another great webinar lead by my team concerning Lipoprotein(a), a cardiovascular risk enhancing factor. 1 in 5 people have elevated Lp(a) and Lp(a) levels are primarily genetically determined. The Importance of Lp(a) Screening and Testing, with Dr. Keith C. Ferdinand Register: https://lnkd.in/ejUNmrRU 6/18, 12pm-1pm CT Participants will learn how to: 1. Understand the evidence for Lp(a) as an independent and causal risk factor for cardiovascular disease 2. Understand the worsening disparities in U.S. life expectancy 3. Appreciate clinical considerations for Lp(a) screening and testing