"This model of care should be the standard."
While I don't have a close connection with hemophilia specifically, I love and care for someone with a chronic illness that affects every part of their life. The entire time I was at the Hemophilia Center, I had chills down my arms and tears ready to fall from my eyes. I couldn't help but think about how big a difference a place like this could make in our lives.
Having a chronic illness is challenging in ways that go far beyond the symptoms of the condition. It affects your ability to work and go to school, your social life, and your physical mobility. It's a constant, loud thought that rings through your head every hour of every day.
To manage this, individuals often require a large team of specialists. Each specialist needs to be familiar with the condition, which makes assembling this team extremely difficult. Oftentimes, those with a chronic condition are left to assemble this team on their own—an almost impossible task. And don't even get me started on dealing with insurance companies.
The Hemophilia Center of Western Pennsylvania understands these challenges and meets them head-on. They use a comprehensive care approach. In one building, they have physicians, physical therapists, and social workers. While each of these professionals is an expert in their own field, they are also well-versed in caring for patients with hemophilia. It’s hard to explain just how special that is.
Living with a chronic illness can beat you down. Caring for someone with a chronic illness can be heartbreaking. But, man, this place has given me hope for what the future of care can look like.
At Vitalant, our mission extends beyond providing essential blood products; it encompasses supporting individuals throughout their entire journey. Since 1975, our Hemophilia Center of Western Pennsylvania has been a beacon of hope for those with #hemophilia and other bleeding and clotting disorders.
For patients like Conor, the Hemophilia Center has been a vital resource to help his family navigate his journey. When his mother, Emily, was pregnant with Conor, she sought out the Hemophilia Center after researching her family's medical history and realizing his risk for hemophilia.
Thanks to the dedicated Hemophilia Center team, they receive unwavering support every step of the way. Learn how the center’s comprehensive, multidisciplinary approach and dedication to #HealthcareExcellence has made a life-changing difference for Conor and his family.
Strategy and Optimization Director, GPO Services
6moThank you for reposting my sons story! The more awareness the better! 💜