🌟 Attention all Patient Advocates, Site Engagement Leaders, & Diversity, Equity, and Inclusion Professionals in cancer research! 🌟 Did you know that a mere 78 centers are responsible for conducting nearly 94% of the nation's cancer trials? This concentration not only burdens these sites but also leads to unequal access to crucial trials for many patients. At #Leal Health, we're taking action to address this issue head-on. We work directly with oncology patients in the community, ensuring treatment options are accessible to everyone, everywhere. But we can't do it alone. We need your help and expertise to amplify our efforts and create meaningful change. Let's start a conversation about what more can be done to improve access to cancer trials and ensure equitable opportunities for all patients. Together, we can make a difference. 💪 #CancerResearch #ClinicalTrials #HealthEquity #CommunityEngagement #Advocacy https://lnkd.in/ewggErY6
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We're thrilled to partner with #gyncsm, a dynamic community dedicated to advancing education and support for those affected by gynecologic cancers. Smart Patients is committed to empowering patients and caregivers with knowledge, and this partnership magnifies our efforts. Here's why we're excited: -Education & Awareness: We're amplifying crucial conversations around gynecologic cancers to educate and raise awareness. -Community Support: Our platform will serve as a nurturing space for #gyncsm’s supportive network, encouraging stories, support, and connection. - Collaborative Growth: Together, we aim to broaden our impact, driving positive change within the gynecologic cancer community. Smart Patients & #gyncsm are making a difference together. https://ow.ly/sffM50QFVXu #SmartPatients #GynecologicCancer
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City of Hope is headed to SXSW! Thanks to your #PanelPicker votes, City of Hope has been selected to lead a #SXSW 2024 panel. Our “Cancer Innovation and Those Who Are Left Behind” discussion will be hosted by Harlan Levine, M.D., City of Hope’s president of health innovation and policy, in collaboration with Los Angeles Times columnist Anita Chabria and Ysabel Duron, The Latino Cancer Institute founder and president/executive director. Together, they’ll tackle three important questions: - What are the most important rights a cancer patient should have at diagnosis? - How can we reimagine our health system to be designed about what patients value? - What are the existing barriers exacerbating health inequity that can be addressed to close gaps between innovations and those who can access them?
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📣🎗️Exciting Publication Alert! My latest review is just in at Expert Review of Anticancer Therapy (4.2 - IF / 5.2 - CiteScore). It addresses the critical issue of racial and socioeconomic disparities in triple-negative breast cancer (TNBC) treatment. Highlighting the evolution from chemotherapy to advanced treatments like PARP inhibitors and immunotherapy, this work emphasizes the need for personalized, culturally sensitive interventions. Diving deep into the challenges faced by minority populations, especially African American women, it calls for a holistic approach to health equity. Through innovative strategies like mobile technology and community outreach, we aim to bridge treatment gaps and foster early detection. 🔗(https://lnkd.in/db3hzNnQ) #CancerResearch #TNBC #HealthEquity #InnovationInHealthcare
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Cancer affects millions of people each year – we often all know someone who has lived with cancer, or had a family member or friend with cancer. It doesn’t discriminate, which is why collaboration across communities is more important than ever. Although we would like to have all the answers as a company – we don’t! Which is why partnering with other industry and patient groups is crucial. Partners offer insights that improve the work we do, for example strengthening clinical trial design to make more patient-centric or giving patients a powerful voice to inform health policies. We are proud to partner with many other groups and are committed to continuing these partnerships. Together, we can accelerate progress in the fight against cancer. #DaiichiSankyoEurope #Collaboration
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The GOG Foundation, Inc. recognizes that inclusivity is requisite for excellence and for achieving our mission to transform the standard of care in gynecologic cancer. We celebrate diversity as we continue our tireless efforts to improve IDEA (Inclusion, Diversity, Equity, and Acess) in clinical trials. It is critical that all patients have equitable access to cutting-edge clinical trials and that the new medicines we bring to our patients have been studied in ALL patients. #juneteenth #clinicaltrials
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#Cancer doesn’t discriminate and neither should cancer care. That is why at Pfizer we are committed to bridging gaps and addressing inequalities in care to help ensure that all people living with cancer can benefit from advances in science. This #WorldCancerDay, we renew our promise to continue building a healthier and more equitable future in cancer care. Pfizer is proud to partner with healthcare providers, patient advocacy groups and other stakeholders to help #CloseTheCareGap through more equitable and inclusive clinical trial designs, programs to reach underserved communities with education, prevention, screening and care, and unique partnerships to accelerate access to our therapies. https://lnkd.in/gDtQYBsD #PfizerProud #WorldCancerDay #CloseTheCareGap
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Patient organizations should lead by example on diversity and inclusion in cancer care because they represent the diverse needs and experiences of patients. By prioritizing diversity and inclusion within their own organizations, they can better advocate for equitable access to care and support for all individuals, regardless of background or identity. Additionally, leading by example fosters trust, credibility, and effectiveness in advocating for policies and practices that address disparities and promote health equity in cancer care. #patientorganisations #patientcare #oncology HungerNdThirst Foundation #leadbyexample #diversityinclusion #diversityequityinclusionandbelonging
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⏰ New paper alert: Meaningful consumer involvement in cancer care Have a read of this newly published paper that summarises the application of co-design in oncology? Thanks for sharing this, Anna Ugalde! The recommendations for researchers are clear and focus on three key areas: 1) selecting appropriate methodology, 2) recruitment of diverse consumers and other stakeholders, and 3) evaluating co-design processes and initiatives. Interestingly only 3 of the 51 studies included in the systematic review reported to seek stakeholder satisfaction/experience with the co-design process. Gathering feedback from participants is so important for learning how the process may have impacted them and understanding how to improve future co-design initiatives. We like to invite 'frank and fearless' informal or ad hoc feedback throughout the process so changes or improvements can be made as we go. We then include an evaluation survey and a reflective debrief session with stakeholders at the end of a co-design process. What other strategies could we implement to improve the way we evaluate a co-design process? #CoDesign #ConsumerEngagement #ParticipatoryActionResearch #HealthTransformation
Are you planning to co-design an intervention or initiative with cancer patients or survivors? We reviewed the literature to develop recommendations for researchers, clinicians, and consumer advocacy organisations for the application of co-design in oncology. Involving people with a lived experience meaningfully in co-design is an opportunity to create high quality research. Let’s do it well! READ THE FULL PAPER HERE: https://lnkd.in/gbXHmDAQ Credit: Associate Professor Nicole Kiss, Hannah Jongebloed, Brenton Baguley, Skye Marshall, Vicki White, Trish Livingston, Kathy Bell, Leonie Young, Sabe Sabesan, Dayna Swiatek, Anna Boltong, Joanne Britto Institute for Health Transformation, Deakin University, Clinical Oncology Society of Australia (COSA) Psycho-oncology Co-operative Research Group, VCCC Alliance, Health Consumers Centre #codesign #oncology #canceradvocate #cancercare #patientinvovement #cancerresearch #healthequity
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Today, on World Tumor Day, we stand together in the fight against cancer! Here are some key facts about tumors: o Millions of people worldwide are affected by tumors each year. oEarly detection and treatment are crucial for improving outcomes. o Advancements in research are leading to new treatment options. We can all play a role in raising awareness and supporting those affected by tumors: o Educate yourself about the risks and symptoms. o Encourage regular screenings based on your age and health history. o Support organizations that fund research and provide patient advocacy. o Share this post to raise awareness among your network. Let's work together to build a future where everyone can live a healthy life free from tumors! #CancerAwareness #CancerResearch #SupportSurvivors #Braintumor
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Did you know patient advocacy groups (PAGs) play a critical role in the fight against cervical cancer? Recently, we convened PAG leaders from across the globe to demonstrate the power of collaboration. Our partners at the Union for International Cancer Control shared an insightful blog by Dr. Matejka Rebolj Jane Rigney of Queens College regarding the power of PAGs in shaping global strategies. ➡️ Read the full blog post to learn how patient voices are driving change: https://ow.ly/3y5B50SHz5V ➡️ Join the conversation! Share your thoughts on the importance of patient advocacy in the comments below. #BetterTogether #CervicalCancer #GlobalHealth
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