It is a dream come true; I know it sounds like a shallow soundbite, but it is anything but… 6 years ago I had such a dream. The dream of patients being in control of their data, being able to measure how they are doing in a way that is understood by healthcare providers and being able to be to part of any decision that affects their lives. Not out of pity or compassion; but because they have the data and the evidence to prove their point. 6 years ago the #EHDS was not even at the horizon; however there is a tremendous opportunity for synergies now. The Pan-European Observatory can serve as a forum to achieve consensus on what can be measured digitally in routine care in order to improve care and fuel the EHDS with standardized outcome data. At the same time, the data access framework developed through the H2O project offers a blueprint on how to manage data by relying on the Patient Agreement. H2O through the leadership of the Pan-European Health Outcomes Observatory can pave the way on how to build the EHDS on the foundation of 'Data Trusts' and multi-stakeholder consensus on what to measure and how.
📢Following the launch of the pan-European Health Outcomes Observatory, we are thrilled to introduce the newly appointed members of the Board. Congratulations to: 🔹 Dr Jørgen Schøler Kristensen (Chairman of the Danish Medicines Council), who will serve as Chair 🔹 Dr Linetta Koppert (Dutch H2O), who will serve as Vice-Chair 🔹Andreas Christodoulou (European Patients' Forum Board Member), who will join the Board as Treasurer; and 🔹Board Members Dr Matthias Rose (German H2O), Dr Pilar Rodriguez Ledo (Spanish H2O), and Héctor Röthlisberger. This marks a significant milestone for the H2O initiative, now including the pan-European Observatory and national observatories in Austria, Germany, the Netherlands, and Spain. We are eager to expand further, promoting patient empowerment and advancing health research across #Europe and beyond. Read our press release on the launch of the pan-European Health Outcomes Observatory 👉 https://lnkd.in/eMnc8WTF Innovative Health Initiative (IHI), EFPIA - European Federation of Pharmaceutical Industries and Associations, European Patients' Forum, Trial Nation, JDRF International, Teamit #InnovativeHealthInitiative #HealthcareInnovation #DataAnalytics #HealthOutcomes #HealthResearch #DataDrivenHealthcare #InnovateHealth #HealthcareRevolution
You have been a visionary Meni - and I have witnessed your efforts and dedication to make this project become a reality and a success! Ad maiora.
Congratulations to H2O, and to Meni for her sustained and highly practical brand of think-and-do leadership :)
Congratulations Meni!! You have been such a champion for this vision for the last 6 years! Dreams can come true!
Well done Meni for this achievement ! What a journey!
A warm welcome to the board of this new organisation. And thanks to all who supported this milestone come true!
Many Congratulations Meni on this awesome achievement. You are a true visionary and I am proud to have played a very small part in the H2O story. Wishing you and the team all the very best.
Bravo Meni Styliadou and all the team. What an important milestone!!!! This is a critical to give patients autonomy by using their data. Bravo
Thank you Meni for your vision and for offering us to be a part of it. I still remember the first few times I heard you talk about H2O - it was (and of course still is) truly inspiring.
Well done Meni - turning the vision into reality.
Global Leader, Value, Evidence, Access -- Vice President, Global Head of Health Economics at Takeda
2moThat’s because you are a visionary, Meni Styliadou ! Your dream became a solid vision with the H2O project, and that vision has excited many of us… to this day and beyond. As you often say, the underlying idea is logical and also fair— Patients should be able to utilize their data in conversations with their healthcare providers. It is the simple and the logical idea that eventually prevails.. like the ideas beyond Uber, Amazon, Google, Airbnb, are simple today, yet they were not easy to implement when they were envisioned. It’s my hope that one day ten years from today, we can look back and say it was the right thing to do. Thanks to your leadership and perseverance, H2O project is moving forward very strongly today. Congratulations to everyone on this major milestone! Héctor Röthlisberger Brandon Boyle, PharmD And cheers to the H2O team for paving the way to build a safe, trustable data system as a platform, promoting patient empowerment and advancing health research across Europe and beyond.