myFace’s Post

Introducing myFace’s new Senior Director of Programming, Jackie Smith! In this role Jackie is steadfastly dedicated to creating and implementing dynamic programs that foster resilience, promote inclusivity, and address the unique challenges faced by children with craniofacial differences and their families. It’s through both this approach and her bilingualism in English and Spanish that has her especially excited to connect with and support Spanish-speaking families at myFace as well. Jackie is immensely committed to myFace’s mission of celebrating diversity, promoting understanding, and championing the rights of every child to thrive. Welcome to the myFace team, Jackie!

Ask Pat Episode 4 - Why Did My Baby Fail Her Newborn Hearing Test? Pat Chibbaro has had decades of experience as a pediatric nurse practitioner and a beloved member of the myFace family. This week she dives into how being born with a cleft lip and palate can affect a baby's ears, as well as steps to take if your baby initially fails the newborn hearing test. Additionally, she provides a resource that can be found on myFace.org in the Transforming Lives webinar series that specifically covers management of hearing loss associated with craniofacial conditions. If you have a question about craniofacial conditions and the care associated with them that you'd like to see answered, just #AskPat and comment below! #myFace #CraniofacialAwareness #CraniofacialCommunity #HearingLoss

Races for Faces is only FOUR WEEKS AWAY! Are you excited? Two of our Grand Marshals, Logan and Leah, definitely are! Many of you may already know Logan, a talented pianist who's been performing since he was two, including at several of our myFace galas! Hear about why Races for Faces and the work that myFace does means so much to them, and consider donating to Team Logan! You can also register to the event, donate to other teams, or start your own page or team at racesforfaces.org. All of us, from Logan and Leah to the entire myFace family, can't wait to see you there!

Introducing Hapner-Hart Media Inc.'s (media consultants for myFace) new Social Media Manager overseeing myFace's Social Media efforts, Anderson Pleasants, or as many know him, Andy! Andy has been a part of the myFace community for about a decade now and, after all of the support myFace has given him and his family, he is thrilled to have the opportunity to contribute by spreading the myFace message and growing its social media following.  Speaking of HHM, the team will be participating in September's Races for Faces 5k Walk and featuring Andy as their team logo! HHM and the myFace family couldn't be prouder of Andy and his continued efforts on behalf of the craniofacial community.

Ask Pat Episode 3 - Does Health Insurance Cover Care for Patients with Craniofacial Conditions? Pat Chibbaro has had decades of experience as a pediatric nurse practitioner and a beloved member of the myFace family. This week she will go over why insurance claims get denied or delayed, provide informative resources, and share how you can help to ensure that all congenital conditions are covered. If you have a question you'd like to see answered, just #AskPat and comment below! #myFace #CraniofacialAwareness #CraniofacialCommunity #Healthcare

Happy #NationalNonProfitDay! Today we recognize and celebrate the craniofacial community that myFace serves every single day. Not only that, but today is a reminder of all the work and opportunities to better the lives of those with craniofacial differences and their families that lay ahead. One of the biggest of those being our annual 5k walk, Races for Faces, next month! It’s in this spirit that we’d greatly appreciate any and all support for this event! Whether it’s making a small donation to one of the teams, or registering your own team at www.racesforfaces.org and attending, any support will go a long way towards transforming the lives of the community we hold dear to our hearts ❤️

With this year’s Races for Faces right around the corner next month, myFace is excited to share about our partnership with Cleft Rescue Unit! CRU is a volunteer nonprofit rescue for puppies with cleft palates and medical needs. Their mission is to rescue, nurture, and connect these adorable puppies with healthcare agencies and children born with cleft palates and craniofacial differences. It’s in that mission’s spirit that we are thrilled to say that Cleft Rescue Unit will be bringing six of these cleft puppies to Races for Faces! You’ll be able to pet, hold, and if the circumstances are right, even start the adoption process for one of them! Register today for Races for Faces at www.racesforfaces.org and don’t miss out on meeting these precious little pups! #RacesforFaces #CleftPuppy #PuppyRescue #CraniofacialAwareness #CraniofacialCommunity

On this month's myFace, myStory podcast, host Dina Zuckerbeg will be joined by Chelsey Peat, born with Sturge-Weber Syndrome, and recently published author of her memoir, Two Sides to a Face. She will share her journey from childhood, marked by curiosity and challenges due to her condition, to her current achievements and advocacy work within the facial differences community. She hopes to serve as a beacon of hope, encouraging deeper understanding and acceptance for all who feel marginalized due to their physical appearance. #myFacemyStory #myFace #SturgeWeberSyndrome #CraniofacialAwareness #CraniofacialCommunity

Ask Pat Episode 1 - What is a Craniofacial Condition or Difference? Pat Chibbaro has had decades of experience as a pediatric nurse practitioner and a beloved member of the myFace family, and now in this new video series she will be taking all that she's learned and answering a wide variety of questions concerning the care of individuals with craniofacial differences. Whether you're a parent taking care of a child with a craniofacial difference, or someone with a facial difference themselves, myFace understands how challenging and confusing navigating that journey can be. It's our hope that this series can shine a light on that journey and remove those roadblocks of the unknown. If you have a question you'd like to see answered, just #AskPat and comment below! #myFace #CraniofacialAwareness #CraniofacialCommunity

Races for Faces is coming up next month, and so will some familiar faces, like Summer from Team Cat Hat! This will be Summer’s fifth year participating! After being born with Pierre Robin Sequence and undergoing countless surgeries and procedures at NYU, she’s excited for the opportunity to raise awareness and give back to myFace after all the support she and her family have received. You can make a difference in the lives of those with craniofacial differences by donating to Team Cat Hat, or registering your own team at racesforfaces.org! #RacesforFaces #5k #fundraiser #TeamCatHat #PierreRobinSequence