Norma Reed Pruitt’s Post

June 21-23, 2024! #TampaFL JOIN SP-Foundation make some NOISE for #spasticparaplegia. A rare disease group needs every member to help grow awareness. The 2024 SPF #HSPandPLS Annual Conference brings together patients, physicians, and researchers to really see YOU! Come share your story with others register online for in-person 21-23, 2024 or virtually! #hspandpls #spasticparaplegiafoundation #awarenesshspandpls #releasecures #curehspandpls #disabilityawareness #patientadvocate #patienteducation #findacure #championcures #releasecures

Help make NOISE for #spasticparaplegia. A rare disease group needs every member to help grow awareness. The 2024 SPF #HSPandPLS Annual Conference brings together patients, physicians, and researchers to really see YOU! Come share your story with others June 21-23, 2024! #hspandpls #spasticparaplegiafoundation #awarenesshspandpls #releasecures #curehspandpls #disabilityawareness #patientadvocate #patienteducation #findacure

Actions and steps taken now at both global and local levels will pave the way towards global implementation of shared decision-making in #heartvalve disease. In consultation with 19 multidisciplinary experts, we identified five key areas for global action and six local calls to action. Learn more about local call to action 1: Develop comprehensive and accessible local-level patient information materials on shared decision-making in HVD - https://lnkd.in/d9iSYrrw #HeartSDM

Delighted to share insights from Lifebit's latest blog showcasing the vital role of patient registries in advancing rare disease research. Uncover the four key benefits propelling progress in healthcare solutions: https://bit.ly/49hJKlo #RareDisease #PatientRegistries #PrecisionMedicine #Lifebit

Discover the future of healthcare with precision medicine at Granger Pharmacy! 🩺✨ Partnering with physicians, we deliver personalized treatments tailored just for you. Experience reduced side effects, enhanced efficiency, and improved disease management. Visit www.grangerrx.com today to learn more. #PrecisionMedicine #GrangerPharmacy #PersonalizedCare #HealthcareInnovation

OM1 #machinelearning amplifies the number of #EDSS scores per patient, greatly improving the ability to track disease progression in #multiplesclerosis. Take a look at all the media buzz from #ACTRIMSForum on findings and impact: 📍NeurologyLive: https://hubs.ly/Q02prXKw0 📍Healio: https://hubs.ly/Q02prXwy0 📍AJMC - The American Journal of Managed Care: https://hubs.ly/Q02prSDL0

Live from #PCRLV: "The roadmap will be a very useful tool to bridge the gap between the patient and the clinician," - Wil Woan, Heart Valve Voice. Read our new roadmap to the successful implementation of shared decision-making in #heartvalve disease now - https://bit.ly/3ucBcwB

It can be overwhelming to receive a pulmonary fibrosis diagnosis, and until patients become involved with the pulmonary fibrosis community or clinic, it can be tough to learn about this disease. CPFF exists to help. Please share this important informational video with your health networks. https://bit.ly/WhatIsPF #PulmonaryFibrosis #PatientSupport

At AstraZeneca, we are continuing to follow the science to further unlock our understanding of complex immune-driven diseases like SLE. If we can recognize and address the underlying drivers of disease, we can tackle key areas of unmet need that remain. On #WorldLupusDay let’s shed light on the urgent need for higher standards of lupus care. Together, we can take action to advance the existing standard of care and help those with lupus lead fuller lives. #MakeLupusVisible #UnlockingLupus #WorldLupusDay #AstraZenecaEgypt

This Rare Disease Month, take direct action in the battle against myasthenia gravis. Urge your MG patients to join the MGFA Global Patient Registry. Your recommendation can make a real difference. Patient data is crucial for advancing MG research and paving the way toward better treatments and a potential cure. Encourage your patients to sign up at mgregistry.org and contribute to meaningful medical progress. #RareDiseaseMonth #MGFA #MGstrong