Spastic Paraplegia Foundation, Inc’s Post

June 21-23, 2024! #TampaFL JOIN SP-Foundation make some NOISE for #spasticparaplegia. A rare disease group needs every member to help grow awareness. The 2024 SPF #HSPandPLS Annual Conference brings together patients, physicians, and researchers to really see YOU! Come share your story with others register online for in-person 21-23, 2024 or virtually! #hspandpls #spasticparaplegiafoundation #awarenesshspandpls #releasecures #curehspandpls #disabilityawareness #patientadvocate #patienteducation #findacure #championcures #releasecures

Help make NOISE for #spasticparaplegia. A rare disease group needs every member to help grow awareness. The 2024 SPF #HSPandPLS Annual Conference brings together patients, physicians, and researchers to really see YOU! Come share your story with others June 21-23, 2024! #hspandpls #spasticparaplegiafoundation #awarenesshspandpls #releasecures #curehspandpls #disabilityawareness #patientadvocate #patienteducation #findacure

Actions and steps taken now at both global and local levels will pave the way towards global implementation of shared decision-making in #heartvalve disease. In consultation with 19 multidisciplinary experts, we identified five key areas for global action and six local calls to action. Learn more about local call to action 1: Develop comprehensive and accessible local-level patient information materials on shared decision-making in HVD - https://lnkd.in/d9iSYrrw #HeartSDM

Delighted to share insights from Lifebit's latest blog showcasing the vital role of patient registries in advancing rare disease research. Uncover the four key benefits propelling progress in healthcare solutions: https://bit.ly/49hJKlo #RareDisease #PatientRegistries #PrecisionMedicine #Lifebit

#ICYMI: We presented at #JPM24 last week and shared the latest on Tenaya’s progress across our pipeline. Watch the presentation here: https://bit.ly/3tZ8hfA

OM1 #machinelearning amplifies the number of #EDSS scores per patient, greatly improving the ability to track disease progression in #multiplesclerosis. Take a look at all the media buzz from #ACTRIMSForum on findings and impact: 📍NeurologyLive: https://hubs.ly/Q02prXKw0 📍Healio: https://hubs.ly/Q02prXwy0 📍AJMC - The American Journal of Managed Care: https://hubs.ly/Q02prSDL0

At AstraZeneca, we are continuing to follow the science to further unlock our understanding of complex immune-driven diseases like SLE. If we can recognize and address the underlying drivers of disease, we can tackle key areas of unmet need that remain. On #WorldLupusDay let’s shed light on the urgent need for higher standards of lupus care. Together, we can take action to advance the existing standard of care and help those with lupus lead fuller lives. #MakeLupusVisible #UnlockingLupus #WorldLupusDay #AstraZenecaEgypt

Discover the future of healthcare with precision medicine at Granger Pharmacy! 🩺✨ Partnering with physicians, we deliver personalized treatments tailored just for you. Experience reduced side effects, enhanced efficiency, and improved disease management. Visit www.grangerrx.com today to learn more. #PrecisionMedicine #GrangerPharmacy #PersonalizedCare #HealthcareInnovation

📅 Save the Date! Join us from October 2nd to 5th, 2024, for the KRA Conference under the theme: Improving Outcomes in Patients with CKD. This event will bring together experts (both local and Internation), practitioners, and thought leaders to explore innovative approaches and strategies to enhance the care and management of Chronic Kidney Disease (CKD). Make sure to mark your calendars for this insightful event! #KRAConference2024 #CKD #HealthcareInnovation #PatientOutcomes #MedicalConference

Patient access programs thrive when they are supported by actionable data and the right technology. Learn how UBC’s success for rare disease patients is evolving and impacting patients: https://hubs.li/Q02zmC5z0 #PatientsFirst #PatientAccess #PatientSupport #RareDisease