RARE Revolution Magazine’s Post

Raising Awareness & Funds for EDS 🌟 Today, I'm spotlighting a cause close to our hearts: EDS UK, a lifeline for those touched by Ehlers-Danlos Syndrome. One of our own, Imogen, has courageously shared her journey with Classical EDS, enlightening us on the vital support this charity provides. Diagnosed at 25 after years of nebulous symptoms, Imogen's resilience is a beacon of hope. EDS challenges her daily, affecting work and well-being. Discovering mindfulness and a remote work model, she bravely navigates her condition with tenacity. What truly propels her forward is a remarkable work family, offering unwavering backing on tough days. This solidarity is power! Yet, it's EDS UK's pivotal role in raising awareness and fostering a supportive community that underlines the urgency of our fundraiser. This charity champions education and research, illuminating a path for those affected by EDS. For Imogen, and countless others, EDS UK is more than a charity; it's a network of understanding and support amidst the isolation chronic illness can bring. Join us in amplifying their mission. Your contribution can spark change and embody the very essence of community and compassion we cherish. #EDSAwareness #CharitySupport #TogetherStronger 🦓🤲🏼💚

Raising Awareness & Funds for EDS 🌟 Today, I'm spotlighting a cause close to our hearts: EDS UK, a lifeline for those touched by Ehlers-Danlos Syndrome. One of our own, Imogen, has courageously shared her journey with Classical EDS, enlightening us on the vital support this charity provides. Diagnosed at 25 after years of nebulous symptoms, Imogen's resilience is a beacon of hope. EDS challenges her daily, affecting work and well-being. Discovering mindfulness and a remote work model, she bravely navigates her condition with tenacity. What truly propels her forward is a remarkable work family, offering unwavering backing on tough days. This solidarity is power! Yet, it's EDS UK's pivotal role in raising awareness and fostering a supportive community that underlines the urgency of our fundraiser. This charity champions education and research, illuminating a path for those affected by EDS. For Imogen, and countless others, EDS UK is more than a charity; it's a network of understanding and support amidst the isolation chronic illness can bring. Join us in amplifying their mission. Your contribution can spark change and embody the very essence of community and compassion we cherish. #EDSAwareness #CharitySupport #TogetherStronger 🦓🤲🏼💚

🌟 Join Me in Raising Awareness for Endometriosis! 🌟 This July, I’m walking 8000 steps a day to raise awareness and funds for Endometriosis, a condition affecting 1 in 10 women worldwide. This cause is very close to my heart ❤️, as I was diagnosed with Endometriosis at 19 after years of struggling with symptoms. Endometriosis is a chronic illness that affects people differently, and it takes an average of 8 years to get a diagnosis 😔 Currently, there is no cure. 8000 steps signifies the 8-year struggle women endure to get diagnosed. Please support by donating, liking, or sharing to raise awareness 🙏. 📅 Updates will follow... 13 days until the challenge begins! https://lnkd.in/eekXYGn7 #EndometriosisAwareness #CharityFundraiser #8000StepsADay #SupportTheCause #WomensHealth #EndometriosisAwareness #CharityFundraiser #8000MilesADay #SupportTheCause #WomensHealth

Team Abseil for Northern Ireland Chest Heart And Stroke 🧗 On May 19th, some members of our Tarasis Enterprises team – Amy, Amie, Catherine, Danielle, and Mary – are taking on an incredible challenge: abseiling down the iconic Europa building to raise funds for Northern Ireland Chest Heart and Stroke (NICHS). Why Abseil for NICHS? In NI, chest, heart, and stroke illnesses affect countless lives. Did you know they're the #1 cause of death in NI? With 14 deaths per day or 5,268 per year, this is a stark reality that drives us to make a difference. Every penny raised will fund vital research, provide essential services, and support those affected by these health challenges. How You Can Help: 👉 Donate, big or small, here: https://lnkd.in/ej5aAvbe Your generosity means the world to us and makes a real difference in creating a healthier, happier community. #AbseilForNICHS #TarasisEnterprises #CommunitySupport #MakeADifference #TarasisHealthcare #CSR

Babies Cry, You Can Cope: ICON Week 2024 ICON is a charity that supports parents, offering advice and raising awareness about infant crying. ICON stands for: I - Infant crying is normal C - Comforting can help O - It's OK to walk away N - Never shake a baby Find out more on our website: ⚠️ This article discusses the dangers and consequences of shaking babies. ⚠️ https://lnkd.in/eyXWkGfy

🤹 Day 19 of the #47Challenge! On day one, I committed to juggling 47 balls by day 47. Spoiler alert: I can barely manage three! Time to step up my practice… Why? As diagnoses related to #Chromodiversity (DNA differences) and #Neurodiversity (developmental differences often linked to DNA) surge: - Families often find themselves juggling multiple challenges—managing medical appointments, navigating school support, coordinating therapies, and dealing with financial pressures. - Unfortunately, many are left without the necessary access to information and resources, while awareness among medical professionals and schools remains insufficient. 👉 This is why your support is crucial. Donations of $4.70 or $47, or whatever you can afford, are essential to continuing our mission to help kids with differences thrive! 🌟 Join our #47Challenge and make a difference! • US, UK, Australia, Canada: Donate via our Facebook link. https://lnkd.in/dv8JTc8R • EU Supporters: Contributions can be made through our GoFundMe page. https://lnkd.in/dkS7H6Md • All Regions: raise awareness with your own 47 Challenge! https://lnkd.in/dBewwiRh My XXY | Chromodiversity Foundation #ItsInOurDNA

🔷 Spinal Cord Injury Awareness Day 2024 🔷 Today is Spinal Cord Injury Awareness Day (#SCIAD24), a crucial day to raise awareness about the devastating impact spinal cord injuries (SCIs) can have on individual lives. SCIs can happen to anyone, at any age, due to accidents, falls, or even illness. The effects can be life-changing, affecting mobility, independence, and overall well-being. At ILS Case Management, we're highlighting some of the fantastic charities supporting #SCIAD24, which includes Spinal Injuries Association (SIA), Aspire Back Up and Horatio's Garden, to name a few. These organisations are dedicated to: 👉 Raising awareness about SCIs and their impact. 👉 Supporting those living with SCIs and their families. 👉 Advocating for research into prevention, treatment, and a cure. How can you get involved? 🔹 Share this post to spread awareness about #SCIAD24. 🔹 Learn more about the work of these amazing charities. 🔹 Check out their fundraising initiatives. #spinalcordinjury #spinalresearch #support #SCI

🌟 October is Joubert Syndrome Awareness Month! 🌟 Today, we want to shed light on Joubert Syndrome, a rare genetic disorder affecting the cerebellum, the part of the brain that controls balance and coordination. Individuals with Joubert Syndrome often face challenges with motor skills, breathing, vision, and developmental milestones. But with the right support, they continue to show remarkable resilience and strength. 💚 Why is awareness so important? Because raising awareness means earlier diagnosis, better treatment/ therapy options, and more support for affected families. It means pushing forward in research, education, and providing resources for the community. This month, we have a special opportunity to make a difference. Your contribution, no matter how small, helps fund essential research and support services for those living with Joubert Syndrome and related disorders. If you’re able, we encourage you to donate and help spread awareness. Together, we can create a world where individuals with Joubert Syndrome receive the care and opportunities they need to thrive. 💙 Donate today to help us reach our goal this month! Let’s stand together and support the Joubert Syndrome community this October! 💫 #JoubertSyndromeAwareness #RareDiseases #SupportResearch #DonateNow

When you give to Effect Hope, where does your money go? Here are just a few of the practical ways your donation can be used to transform the lives of people affected by NTDs: 📚 Teaching students and community members about NTDs so they can recognize symptoms and get help more quickly. 🤝 Creating peer support groups to improve mental wellbeing for those struggling with NTDs. 📊 Funding research to continue to improve NTD treatment and interventions. 🔍 Screening for NTDs in remote areas so no one is overlooked. 💵 Investing in the small businesses of people impacted by NTDs to help them regain an income after their illness. 🩹 Providing important medical supplies such as gauze and bandages to prevent infection. Your generosity brings tangible change to individuals, families, and communities through these important projects. See real impact numbers and donate to keep this essential work going at www.theimpactofhope.ca 📸 Tom Bradley Photography #EffectHope #ImpactReport2023 #DonateWithImpact #DonateForRealChange #NTDTransformation