The "ultimate Independence Day." On July 4, 2010, St. Jude patient Tess celebrated the completion of 18 months of intensive treatment for stage IV high-risk neuroblastoma with a No More Chemo party – a day her mom describes as their family's "ultimate Independence Day." Though Tess is now 18 years old and cancer-free, she and her family continue to fundraise for the St. Jude mission through fitness events.
St. Jude Children's Research Hospital - ALSAC’s Post
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For patients with trigeminal neuralgia, laughing can be excruciating. Comedian and WGN News Host Pat Tomasulo, along with wife Amy, explain why it’s critically important for sponsors like Northwestern Medicine to join their mission in raising awareness of this neurological condition. To them, a comedy fundraiser is the perfect way to do it. Learn more at laughyourfaceoff.org. #NMBetter
Laugh Your Face Off | Pat and Amy Tomasulo
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• 𝐅𝐥𝐮𝐜𝐭𝐮𝐚𝐭 𝐧𝐞𝐜 𝐦𝐞𝐫𝐠𝐢𝐭𝐮𝐫 ((She) is tossed by the waves but doesn't sink) - 𝑆𝑦𝑚𝑏𝑜𝑙𝑖𝑠𝑒𝑠 𝑟𝑒𝑠𝑖𝑙𝑖𝑒𝑛𝑐𝑒 𝑎𝑛𝑑 𝑒𝑛𝑑𝑢𝑟𝑎𝑛𝑐𝑒. • 𝐏𝐞𝐫 𝐚𝐬𝐩𝐞𝐫𝐚 𝐚𝐝 𝐚𝐬𝐭𝐫𝐚 (Through hardships to the stars) - 𝐴𝑐ℎ𝑖𝑒𝑣𝑖𝑛𝑔 𝑔𝑟𝑒𝑎𝑡𝑛𝑒𝑠𝑠 𝑑𝑒𝑠𝑝𝑖𝑡𝑒 𝑑𝑖𝑓𝑓𝑖𝑐𝑢𝑙𝑡𝑖𝑒𝑠. • 𝐂𝐚𝐫𝐩𝐞 𝐝𝐢𝐞𝐦 (Seize the day) - 𝐸𝑛𝑐𝑜𝑢𝑟𝑎𝑔𝑒𝑠 𝑙𝑖𝑣𝑖𝑛𝑔 𝑖𝑛 𝑡ℎ𝑒 𝑝𝑟𝑒𝑠𝑒𝑛𝑡 𝑚𝑜𝑚𝑒𝑛𝑡. There are many well know Latin proverbs which one can adopt in life. However, the three above encapsulate how my daughter, Josie (7), embraces each day (whether see realises it or not!) as she lives with the progressive, untreatable, and incurable muscle wasting condition - Ullrich Congenital Muscular Dystrophy. Taking heed of the above and to follow the footsteps of the conquering Romans, the Chubbs Crusade marches on in its quest to increase awareness and generate much needed funds for Muscular Dystrophy UK and my daughter’s specific rare condition. The latest challenge will cover 𝟖𝟒 𝐦𝐢𝐥𝐞𝐬 (𝟏𝟑𝟓𝐤𝐦) coast to coast of Hadrians Wall. The team taking on this challenge was forged within the walls of Perform Group (now DAZN) and the University of Portsmouth (myself, Ed Abis, Dan Grey, Harry Collison, Adrian Wilcox, Henry Lucas and Chris Owen) who will attempt to complete the distance within 𝟐 𝐝𝐚𝐲𝐬 (𝟑𝟏𝐬𝐭 𝐀𝐮𝐠 - 𝟏𝐬𝐭 𝐒𝐞𝐩) of hiking, a journey which is advised to be walked in 4-9 days! As of today, the Chubbs Crusade has raised over £𝟒𝟎𝐤 for Muscular Dystrophy UK and my daughter's cause. The aim of this latest campaign is to surpass the £𝟓𝟎𝐤 mark for funds raised and your continued support to raise awareness and donate would be greatly appreciated. All contributions would positively impact Josie in her daily life and the Muscular Dystrophy UK mission: https://lnkd.in/eYPmXtBG To learn more about my daughter's progressive, incurable condition and Muscular Dystrophy UK please use the link above. #MusclesMatter #UllrichCongenitalMuscularDystrophy #HadriansWall #ChubbsCrusade #JosieChubb #MDUK
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Chief Operating Officer at Partners Credit & Verification Solutions (Formerly Old Republic Credit Services)
A peak into my personal life to share with my professional community something that means so much to me. I'm so proud to share that I've been asked to be a champion for The Magnificent - a 10 week fundraising competition for The Cystic Fibrosis Foundation with #TeamLuke. Please take a look at why this cause is so incredibly important to me and consider supporting me doing all I can for my buddy Luke. https://lnkd.in/gB5aaUQK Facts about CF: -CF is a rare, incurable condition that causes an array of attacks on various organs. As a result, anyone with CF has to undergo a variety of daily therapies to battle the effects of this deadly condition. -The life expectancy of someone with CF 30 years ago, was age 30. Because of funding towards research and medical advancements, today many are living to age 50. -Lung transplants used to be expected for someone with CF, the need for these has decreased in the modern day population thanks to all the progression of the science and treatment modalities. -There are only 44,000 cases of CF in the United States which is why donations to this cause are crucial.
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Our Founder Kate Heine, and Lived Experience Advisor, Hailey Barber attended the first inaugural MCRI Acquired Brain Injury Flagship meeting yesterday. This wonderful new initiative, led by our research partners, Murdoch Children's Research Institute, as well as Royal Children's Hospital and Melbourne University, joined key community partners including Heads Together, TAC, AFL, Stroke Foundation, Brainwave, Synapse, and Brain Injury Australia, to develop key priorities for research to impact positive change for young people with acquired brain injuries and their families. It was an incredible day of sharing experiences, ideas and possible solutions and there was a strong feeling in the room that this could be the beginning of some profound changes in how we work with young people and families, and with each other, to create the best possible pathways for recovery and building lives of meaning and opportunity for young people with brain injuries and their families. #ABI #TBI #braininjuryawareness #headstogetherforabi #headstogetherforbraininjury #nonprofit #braininjury #acquiredbraininjury #headinjury #traumaticbraininjury #braininjurysupport #mentalwellbeing #braininjuryadvocacy #inclusivity #LivedExperience #Volunteering #ABIAwareness #ABISurvivor #TBISurvivor #braininjurysurvivor #YouCantBeWhatYouCantSee #UnderstandMeUnderstandMyBrainInjury #YouCantUnderstandWhatYouDontKnow #understandingbraininjury #20yearsHeadsTogether
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Early detection is key. Please familiarize yourself with the Ten Early Signs of Alzheimer's and Dementia -- https://lnkd.in/gE_C7DKE -- it could make all the difference in the world. #alzheimersinamerica
We're proudly participating in the Alzheimer's Association®'s Walk to End Alzheimer's! The event is held annually in more than 600 cities nationwide, and we'll be walking in Philadelphia on Saturday November 11th. This Walk is the world's largest fundraiser for Alzheimer's care, support and research. Please support our efforts with a contribution, or better, join #teamcapstan and walk with us! https://lnkd.in/eAsCPzRi
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Think about what our health means to us and those around us..... Health is, across the board and across the world the one consistent driver of our activities, capabilities and longevity. Some may say it is the key to happiness; as physical and mental health are the foundation to a life well-lived. EVERY person on earth will experience a health issue in their lifetime - whether fleeting or chronic. It is only then that we think about the need for hospitals and quality healthcare. But the need is always there - people suddenly unwell, having been in accidents, and diagnosed with devastating conditions. That's the reason we exist; to ensure every person who becomes a patient has access to the best care at Prince of Wales Hospital. We work to deliver support for research and innovation that goes directly towards improving patient care, and goes beyond the physical walls of the hospital. The research we support doesn't just sit on a shelf, it is translated to service patients in need. We are all about delivering real, tangible change that enables better healthcare. Innovation that saves lives. Innovation that can be adopted across the world. In this, our 20th year of raising funds to raise care at Prince of Wales Hospital, we are celebrating our achievements and impact. But above all, we celebrate the amazing, resilient and caring staff who make this hospital so special. Visit our website to learn about the innovations, research and education we provide and how we have refocused to support staff wellbeing, to ensure a better system for all. AND, if you're in a position to share your gift of $20, it will go a long way to supporting the wellbeing of staff, hospital-wide. #innovation #philanthropymatters #donatetoday #20yearsstrong #futurefocus #healthcareheroes #research #doctors #nurses #alliedhealth #thankyou
We started from humble beginnings in 2004 with a small but meaningful donation to fund a wheelchair accessible bus for the transportation of spinal unit patients and their carers. Over the past two decades we have been able to raise over $65 million to fund groundbreaking research and medical innovation across cardiovascular health, cancer, mental health, diabetes, kidney, and many other areas for a healthier tomorrow. Today, we’re celebrating 20 years of pioneering new ways of prevention, early detection, and treatments to save lives. None of this would be possible without the incredible support of our community of supporters and donors and we express our gratitude as we continue to evolve and grow to meet the everchanging needs of healthcare at POWH. The NRMA The NELUNE Foundation The Lewis Foundation Icon Group Randwick City Council Lindt & Sprüngli Australia Medtronic Australia and New Zealand Stryker Fundraising Institute Australia Swiss Concept Australia Rotary Clubs Randwick Rotary Club of Maroubra Rotary Club of Kings Cross Evolution Surgical NuVasive The Lowy Family James N Kirby Foundation
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How are Eye7 Eye Hospitals tackling the unmet eye care needs in India? Managing Director Dr. Rahil Chaudhary leads the charge through charitable initiatives, piloting ophthalmological advancements, and social media engagement, striving to ensure no eye is left behind. Founded by Dr. Chaudhary’s father over 30 years ago, Eye7 Eye Hospitals is committed to providing accessible eye care with cutting-edge tech across its 7 centers. Watch now to learn more about their inspiring journey! And follow us for more insightful interviews and updates! #MICETV #MediaMICE
Making a Success of Saving Sight with Dr. Rahil Chaudhary
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Given that the uvea comprises the choroid, ciliary body and iris as per some definitions, maybe attention needs to be placed on the fibrous layer of the retina. Bruch’s membrane which is fibromuscular is negatively charged. By injecting positively charged VEGF and FGF capsules through target microscopic brachytherapy we can correct: 1. Uveitis - release microscopic prednisone with the capsules 2. Macular degeneration - supplying adjacent GF 3. Diabetic proliferation retinopathy - targeted areas of these two compounds - anti in others 4. Preclude retinal detachment by obviating all of above 5. Unblock canal of Schlemm by releasing synthetic lysozyme from Bruch via diffusion and capillaries RCH is clinically the strongest hospital overall including adult hospitals. It’s where I studied paediatrics as a medical student and is no doubt the forerunner worldwide in clinical guidelines. Your biggest fan! Arjun
Almost 40 years ago, Shelley Kline was diagnosed with Uvetis, a debilitating eye condition. At the time, Ophthalmologist Prof Frank Billson AO, or Prof as she affectionately refers to him, was one of the only specialists with expertise in Uvetis in Australia. “Prof Frank Billson has had such a profound impact on my life. He was a brilliant doctor; he always had such a good way of presenting the information and allowing me to make my own decisions with regards to my health,” said Shelley. As a way of honouring Prof's legacy and commitment to treating children with sight problems, Shelley established the Professor Frank Billson Research Scholarship at the The Royal Children's Hospital. Learn more about the scholarship and donate here: https://lnkd.in/dDFYq-2Y * Thank you to Cooper Investors for your ongoing support.
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"Philanthropy can be used to improve the clinical research, the basic science and also the advanced clinical treatments." During an in-depth interview with the US news publication e-Jewish Philanthropy, Professor Yoram Weiss, Director of the Hadassah Medical Organization, extensively discussed the vital role of donations for the hospital. Read more about his key points in our recent newsletter article: https://lnkd.in/g2u--Vhh
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“Tinkers to Evers to Chance”. Maybe the most famous Double Play combination in MLB history! Now granted, that was 1905 to 1910 and perhaps a bit “Dated” for this audience. Maybe a more recent example of Trammell to Whitaker to Any Schmoe, of the 1977 to 1995 Detroit Tigers, who hold the Major League record of 1,918 Double Plays works better for most. Either way, the importance of your Medical Team combination, can not be under stated when fighting for your life. Today's Blog Post - Finding Hope Amidst MSA: The Power of a Strong Medical Team https://lnkd.in/gKYQfyEm When facing a rare and fatal disease like Multiple System Atrophy (MSA), the journey can be overwhelming, filled with uncertainty and fear. But amidst the darkness, there is a glimmer of hope that can shine brighter than ever - a strong medical team. In this post, we'll explore the vital role played by three key players in the fight against MSA: your Primary Care Physician (PCP), your Neurologist, and an experienced Clinical Neurologist who specializes in your rare disease. Sharing this journey isn’t just about me; it’s about raising awareness for MSA and contributing to the incredible work of the Michael J Fox Foundation. https://lnkd.in/g-jqhvQX Won’t you please consider making a donation 😊 Thank you for being a part of my journey. 🙏💪 #MSAawareness #ResilienceInAdversity
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Christian wife/mom, St. Jude mom, #1 fan of my 3 sporty girls, ALSAC/St. Jude supporter, volleyball coach
3wWay to go, Tess!