🧬Why bring ATMP research, development and access issues to the EU agenda today? 🎙Hear what our Steering Group had to say on the need to tailor incoming EU legislation to the specificities of ATMPs. Martine Pergent from IPOPI - International Patient Organisation for Primary Immunodeficiencies and Giovanni Migliaccio from EPTRI joined us last month for the annual TRANSFORM MEP Interest Group Conference, alongside other patient, clinician, academic and industry representatives from the Alliance. 🇪🇺Multistakeholder dialogue is a core value for TRANSFORM and a key tool in the development of future-proof policy that can drive patient access to innovative therapies across the EU. ➡️Visit our website to read the full event report: https://lnkd.in/e5XfpZRH #MEPsforATMPs #EuropeanParliament #orphanmedicines #competitiveness #raredisease #cellandgene
TRANSFORM Alliance’s Post
More Relevant Posts
-
Our CEO at GIRPSCC2024: Driving Collaboration for Medicine Access 💊 As active contributors to critical conversations shaping the future of healthcare, we are proud that our CEO, Katarina Gabrielson, Vice President of the Managing Board of GIRP, participated at one of the expert panels during the recent GIRPSCC2024 Congress*. The session, titled "Building Medicine Stockpiles: A Collaborative Approach Across Europe," brought together key industry and regulatory leaders to address the complexities of ensuring access to essential medicines across Europe. 💡 Katarina shared valuable insights on the practicalities of cross-border collaboration, emphasizing the importance of harmonized efforts to ensure equal access to medicines for patients across Europe. Her contributions, as both Oriola’s CEO and a GIRP board member, underscore our commitment to playing a pivotal role in these important discussions. At Oriola, we believe that addressing crisis preparedness is not just a national responsibility but a shared effort that requires collaboration among authorities and private sector. More information about the GIRPSCC2024 Congress to be found here at GIRP - European Healthcare Distribution Association #medicineaccess #supplychainresilience #GIRPSCC2024 #healthforlife Image from GIRP
-
-
ASPiH President & Executive Committee Member at Association for Simulated Practice in Healthcare (ASPiH) Deputy Director- Simulation at Guys & St Thomas’s
Do sign up and find out more about the standards how they developed and how they can help us all in our simulation practices
Sharing their experience developing the ASPiH Standards for Simulation-Based Practice, ASPiH President Colette Laws-Chapman, Past Presidents Michael Moneypenny and Makani Purva, and SESAM Chair of the Scientific Committee Cristina Diaz-Navarro will talk with SESAM Secretary Kirsty J Freeman - FSSH, PhD(c), MHPE in a special webinar. Monday 13 May 1500 CET Meeting link: https://lnkd.in/ehnpyk3A Francisco Maio Matos, Pier Luigi Ingrassia, Tamara Skrisovska, Pedro Cartaxo Cintra, ASPiH Simulation #simulation #standards #healthcare
-
-
Is it feasible to develop and utilise standard lists of reasons for changes in participant involvement in trials? Great session on participant retention and follow up at #ICTMC2024 , including work by Will Cragg at Leeds Clinical Trials Research Unit (Leeds CTRU) reviewing case report forms from a range of clinical trials units (including MRC Clinical Trials Unit at UCL) to explore current practice for collecting data about participants changing their level of involvement in trials. #clinicaltrials #missingdata
-
-
We’re counting down to #ISOQOL 2024! Ready to elevate your #COA research? Meet our COA expert team at the conference and discover how our tailored strategies can drive patient-focused outcomes for your next clinical program. Connect with Chloe Tolley, Claire Burbridge, Stacie Hudgens, Helen Doll, or Jennifer Beaumont, and learn how COS can take your research to the next level. #ClinicalResearch #PatientOutcomes #ISOQOL24 #COAExperts
-
-
I am thrilled to share I contributed to the newly released WCG 2025 Clinical Trial Trends & Insights Report! Read my articles, "Diversity in Clinical Trials: A Scientific Imperative for 2025" and “Elevating Site Preparedness: Trends and Strategies for 2025.” The WCG 2025 Clinical Trial Trends & Insights Report dives into the most critical trends and innovations currently transforming the development and delivery of therapies and actionable ways to stay ahead in the #clinicalresearch landscape! Check it out now at https://lnkd.in/gSTaWPGk #WCG
-
-
// ISOQOL 31st Annual Conference // Have we made ePRO better for study sites and patients? Join us on October 13 for the symposium on "Have we truly progressed with optimizing the collection of patient-reported outcomes in clinical trials?" to explore where we really are in terms of optimising PRO data collection, where we should be, and what the path towards optimality looks like. #kayentis #eCOA #clinicalstudies #ISOQOL
If you're attending the International Society for Quality of Life Research #ISOQOL Annual Conference this year, be sure to join C-Path's Scottie Kern as he moderates the Digital Health and eCOA Special Interest Group Symposium, discussing the progress and challenges in optimizing patient-reported outcomes in clinical trials. The session, 'Have we truly progressed with optimizing the collection of patient-reported outcomes in clinical trials?,' promises to be a compelling conversation among leaders in the field. This is a must-attend for anyone invested in the future of digital health and electronic clinical outcome assessments. 📅 October 13, 2024 ⏰ 4:30 p.m. 🔗 https://lnkd.in/gqnYsF9Z #CPath #RDCOA #Innovation #RareDiseaseResearch #COA #ISOQOL202
-
-
ASPiH President & Executive Committee Member at Association for Simulated Practice in Healthcare (ASPiH) Deputy Director- Simulation at Guys & St Thomas’s
The ASPiH national simulation survey was launched yesterday to help us determine how simulation has changed and impacted on health and care and beyond over the past ten years. Please complete the survey for us for your service or department. And please share the link to the survey widely as we want responses from the UK and Ireland and also more widely! #ASPiH #simulation
As part of its 15th anniversary celebrations, #ASPiH is delighted to launch the ASPiH national #simulation survey The intention of the ASPiH national simulation survey is to take a snapshot of how, where and when simulation activities are being used in the United Kingdom and Ireland (and more widely). Data from the ASPiH national simulation survey will be contrasted with the results from the 2014 National Simulation Development Project which was conducted 10 years ago (link below in comments). The outputs from the ASPiH national simulation survey will be used to make recommendations for educators, clinical teams, regulators, commissioners and other national bodies to support the wider adoption and utilisation of simulation within healthcare education and clinical practice within health and social care settings. Complete here: https://lnkd.in/eMBzgBEi The survey will be open for the next 4-6 weeks Hear more from #ASPiH Executive Committee member Kevin Stirling:
-
Attending ISOQOL? Did you know you can schedule a meeting with our eCOA experts to explore how electronic Clinical Outcome Assessments can enhance your studies? Don’t miss the opportunity to dive deeper into the future of patient-centered research with our team. 📅 Book your meeting today and let's discuss how we can support your next project! #ISOQOL #eCOA #ClinicalResearch #PatientOutcomes #MeetOurExperts
// ISOQOL Annual Conference // Will you be in Cologne next week? 📆 Meet our team Estelle Haenel and Andrea Murison at the ISOQOL 31st Annual Conference: https://bit.ly/4cNEjNs 💡 Join the October 13 Digital Health & eCOA Special Interest Group Symposium on "Have we truly progressed with optimizing the collection of patient-reported outcomes in clinical trials?" and gain insights from study sites and patients through Estelle's presentation on "Have we made ePRO better for study sites and patients?" #kayentis #eCOA #clinicalstudies #ePRO #ISOQOL
-
-
We’re at the RCGP Annual Conference and Exhibition #RCGPAC in Liverpool today and tomorrow! 😎 👏🏽 The must-attend event of the year for GPs, showcasing the latest clinical and policy developments in primary care. 👩🏽⚕️ 👨🏽⚕️ If you’re also in attendance, and keen to learn more about how we are positively impacting patient care by enabling access to new medicines, come and have a chat! 🤔 #RCGP #ClinicalResearch #ClinicalTrials #ResearchMatters #GlobalAES #PatientCare #Innovation #Medicine #BePartofResearch
-
