Today we spotlight on the strength and courage of those facing rare diseases. Every individual impacted by a rare condition has their own unique journey, yet together, form a powerful community united by hope and determination. On this Rare Disease Day, we raise awareness about the challenges faced by patients and their caregivers, advocates, and families. It is a day to celebrate victories, big and small. We acknowledge the ongoing efforts in the pursuit of better treatments and cures. By continuing to spread awareness, we have the power to foster compassion, inspire reach, and drive tangible change. #RareDiseaseDay2024 #RareDiseaseAwareness #HopeForACure #RareDiseaseCommunity #Duchenne #DuchenneMuscularDystrophy #DuchenneAwareness #MuscularDystrophy #CureDuchenne #RareDiseaseCommunity #Mdawareness
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Every year, Rare Disease Day is celebrated on the last day in February, recognizing the millions of people globally who are living with a rare disease. Did you know that less than 6% of the global population live with a rare disease, amounting to over 300 million people? Organizations such as National Organization for Rare Disorders, Inc. (NORD) and Rare Disease Day help support, advocate and spread awareness for the diseases and the people living with them. Help us show support today by #showyourstripes if you or someone you love lives with a rare disease! #healthcare #rarediseaseday2024 #rarediseaseawareness #patientadvocacy #healthcareheroes #rarediseaseday
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⚡ #ParkinsonsAwarenessMonth is coming to an end, a month dedicated to raising awareness for Parkinson’s Disease (PD), the people affected by it, and treatment methods. PD affects more than 1.2 million people in Europe, but many misconceptions are still prevailing – here are some popular myths about PD: https://lnkd.in/dUT9AHgb #BSCEMEA #DeepBrainStimulation #DBS
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Did you know March Is Multiple Sclerosis Education and Awareness Month? Educating ourselves and others about this chronic disease can make a significant impact on those living with it. Join us in spreading knowledge and support for #MSAwarenessMonth! #MultipleSclerosisEducationAwareness #MSWarrior #ShareYourStory #SupportMSResearch #EndMS #FindACure
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This #HSAwarenessWeek we’re bringing attention to #HidradenitisSuppurativa (#HS)—a disease that may impact as many as 1 in every 100 people worldwide. This week and always, join us in supporting the HS community by learning more about this disease and its impact. By increasing conversations and awareness, we can all help people living with HS get to diagnosis faster. Learn more: https://lnkd.in/erSdw25R
Learn More About the Impact of HS
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Did you know 300 million people worldwide live with rare diseases, along with their families and caregivers? While the conditions may be rare, the impact is still widespread: 〰️ In the UK, 3.5 million people live with a rare condition 〰️ 1 in 17 people will be affected by a rare condition at some point in their lives 〰️ On average, it takes over four years to receive an accurate diagnosis of a rare disease This year #RareDiseaseDay takes place on a RARE day...29th February. But we'll be posting all week to generate conversation and discussion. Join us as we look to help generate change for the 300 million people worldwide living with a rare disease, and their families and carers. #RareDiseaseDay #MarketAccess #FindYourRedThread
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Calling all rare disease stories! We invite you to submit your unique experiences and wisdom through a series of quick and insightful questions. In bringing your story into the spotlight, we help share information on rare diseases and support the community. Lumanity is committed to amplifying the voices of people living with a rare condition, and using our '29 stories' initiative, we seek to alleviate feelings of isolation, drive awareness for rare diseases, and facilitate more open and authentic conversations about the impact on patients and families. If you or anyone you know would like to submit a story, visit #rarediseases #raredisease #29stories #patientadvocacy #rarecondition #shareyourstory
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Calling all rare disease stories! We invite you to submit your unique experiences and wisdom through a series of quick and insightful questions. In bringing your story into the spotlight, we help share information on rare diseases and support the community. Lumanity is committed to amplifying the voices of people living with a rare condition, and using our '29 stories' initiative, we seek to alleviate feelings of isolation, drive awareness for rare diseases, and facilitate more open and authentic conversations about the impact on patients and families. If you or anyone you know would like to submit a story, visit #rarediseases #raredisease #29stories #patientadvocacy #rarecondition #shareyourstory
My Rare Disease Story
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Weekends often bring family gatherings and moments of togetherness. If you haven't already, consider using this time to engage in a vital conversation about your family's health history. This discussion can help you evaluate your individual risk of developing #ovariancancer. The more informed we are, the nearer we come to ensuring #NoWomanLeftBehind in the fight against this disease. 🌼🩺 #OvarianCancerAwareness #WorldGODay
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Did you know that each year, approximately 6,000 people in the U.S. are diagnosed with Lou Gehrig's disease, also known as ALS? It's a tough topic to discuss, but it's crucial that we do. We often hear about this devastating disease affecting famous personalities, but did you know it can also hit closer to home - to our loved ones? If you have aging parents, take some time to learn more about the signs of Lou Gehrig's disease today. (973) 650-2720 marc@seniorassistedsolutionsva.com https://lnkd.in/dDpAA9u #seniorcare #seniortransition #caringforyourlovedone #seniorliving #seniorlivingcommunity #assistedlivingcommunity #independentlivingcommunity #memorycarecommunity
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