For this Rare Disease Day, I’d like to share a dream with the Rare Disease #Community and imagine a world: 👉 where all newborns are screened for rare and devastating diseases, no matter where they are born, 👉 where families don’t have to face countless consultations before finding the right diagnosis – which is not only painful for them, but also totally inefficient for healthcare systems. I would like to start seeing #decisionmakers acting with the sense of urgency these babies deserve, acting as if every child in need was their own. See more in the video 👇👇👇 #WeWontRest #imagine #rarediseaseday2024 #raredisease #communityhealth #lightupforrare #Awareness #INSD #NeonatalScreeningMatters #INSD #europeanunion #europeanparliament #europeancommission #eu2024be
Vincent Vanwijnsberghe together with your important work, we are getting closer to making the dream come true. Policy-making and policy change can be slow which is frustrating. But the "big picture" is that progress is being made.
Go Vincent!!!
The Belgian Presidency has definitely the opportunity to make a real impact for babies in need, to ensure an early diagnosis and treatment. Congratulations Vincent Vanwijnsberghe for the work you do to support harmonizing NBS accross Europe!