Juneteenth reminds me of the ongoing fight for freedom and equality. In Alzheimer's care, this means addressing disparities affecting underserved communities, particularly those of African descent. Historically, these communities lack access to resources, awareness, and care for Alzheimer’s disease, reflecting systemic inequities. We can bridge these gaps by connecting underserved communities with care options and ensuring new advances reach these communities. As we move toward precision medicine, it is crucial to include diverse populations in clinical research to ensure findings are representative of the U.S. population, especially those bearing a disproportionate burden of these diseases. The scientific community must be accountable for ensuring our research represents all Americans. We must elevate voices and perspectives that challenge exclusionary systems, bringing us closer to a healthier future.
Wesley Horton’s Post
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Suffering from a rare form of a debilitating neurological disease myself, I have first-hand experience of the devastating effects they can have on a person’s health and quality of life. Therefore, I joined the Community Advisory Board of the European Federation of Neurological Associations (EFNA) to advocate for the ‘millions missing’ – for the improved health of millions of people missing from school, from work, and from everyday activities due to neurological illnesses – and for the ‘millions missing’ in financial funding to advance biomedical research to find biomarkers and cures for those illnesses where none currently exist. The World Health Organization reports that over 1 in 3 people are affected by neurological conditions, making them the leading cause of illness and disability worldwide. So as countries work towards achieving the United Nation's 2030 Sustainable Development Goals, we need to ensure that no patient with a neurological illness is left behind. We can do this by voting for decision-makers who commit to uphold our basic human right to health.
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With lead RST investigators Ikenna Ebuenyi and Julie Faieta, faculty at the Master of Rehabilitation Technology program at the University of Pittsburgh School of Health and Rehabilitation Sciences are investigating the use of rehabilitation in Alzheimer's Disease and Alzheimer's Disease Related Dementias, as well as factors that influence the practice and perspectives of stakeholders in the United States. Learn more about this project and others at the link below! https://loom.ly/ACqzjac #AssistiveTechnology #MRT H2P 💛💙
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The Lancet Commission adds two factors to their model for #dementiaprevention. If you add 6 factors (but remove air pollution since individuals can rarely modify this) you have our Dementia Prevention Model with a personalized checklist you can take today. Read about these factors in our book.https://https://lnkd.in/eeuXMWHK Follow this link to the free Dementia Prevention Checklist: https://lnkd.in/gMtcGiRD
Lancet Commission now has 14 #dementiaprevention factors, just in time for August, what I call Dementia Prevention Month (since it precedes September as Alzheimer's awareness month).
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A lot of amazing speakers in this Science at Child Mind Institute series talking youth, technology, and mental health from various angles. I talk with Yuki Kotani, MBA about evidence-based digital treatments for mental health or "digital therapeutics" for youth. We talk ethics, equity, and the state of this developing area. Check it out, and scope out the other speakers including Jessica Schleider, PhD Candice Odgers Amy Green Mitch Prinstein #digitalhealth #mentalhealth
Can new digital mental health interventions bridge gaps in care and address challenges to access for underserved or excluded groups? Stephen Schueller, PhD, of the University of California, Irvine, and Yuki Kotani, MBA, of the Child Mind Institute, discuss the opportunities offered by youth-specific digital therapeutics and the work required to make these promises a reality: https://lnkd.in/dsR2FQbY
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Associate Project Lead at Thermo-Fisher Scientific | Black Women In Clinical Research Brand Ambassador 🔬
It was President Ronald Reagan that first designated November as #NationalAlzheimerDiseaseAwarenessMonth in 1983. The term is named after German psychiatrist and pathologist, Dr. Alois Alzheimer who was the first person to describe the disease in 1906. Alzheimer can begin in people over 65 years old but up to 10% of cases are early onset. Unfortunately, studies have shown that it affects women more often than men. Black Women In Clinical Research ®advocates for more inclusion and diversity for not just clinical research roles but also for clinical trials. As more research is done, more can be discovered on how to prevent and treat Alzheimer for all those affected by this degenerative brain disease 💜 #alzheimerawareness #findacure #clinicaltrials #prevention
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Hope you can join this informative and important discussion about brain health and dementia care!
📣Attention healthcare professionals and leaders! 👩⚕️👨⚕️ Join us next week on Thursday, June 20th for an exclusive panel on the latest advancements in brain health and dementia care. 🧠✨ 🗣️ Moderated by Emmy award-winning national mental health correspondent for Spectrum News, Dr. Nicole Clark, PhD, this event benefits the Alzheimer's Association, Capital of Texas Chapter. 🌟Featured Panelists: 🎤 Alyssa Aguirre, MSW, LCSW-S 🎤 John A. Bertelson, MD, FAAN 🎤 Jennifer Prescott, RN, MSN, CDP 🎤 Kim Rodriguez 🎤 Andrea Taurins 📍 UT Austin Thompson Conference Center 🕒 3:30 PM Registration | 4:00 PM Live Panel | 5:00 PM Cocktail Hour 🔗 Register here: https://ow.ly/EQyP50Scso8 #BrainHealth #DementiaCare #AlzheimersAwareness #BrainCheck Dell Medical School at The University of Texas at Austin The University of Texas at Austin Blue Water Homecare and Hospice Alzheimer's Association®
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To advance brain health, we need collaboration, data integration, and intersectoral action, says Katrin Seeher - World Health Organization at Canadian Science Policy Centre Conference 2024. The WHO drives this with tools like the Dementia Research Blueprint and new #BrainHealth frameworks. Learn more about our ongoing symposium + workshop #ScalingResearchforImpact https://bit.ly/3UQoHkV
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Recently, Oxford Health NHS Foundation Trust Director of Research and Development Professor Vanessa Raymont featured on the BBC, discussing the new READ-OUT dementia study, which opens at the Trust this month. The READ-OUT study is a national multi-site study in collaboration with Alzheimer's Research UK, Alzheimer's Society, the NIHR (National Institute for Health and Care Research) and Gates Ventures https://lnkd.in/e-sZ9THq
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