Winette van der Graaf’s Post

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Head of Dpt of Medical Oncology, Netherlands Cancer Institute; Professor at Erasmus MC #Sarcoma #AYA; President EORTC; Chair Dutch AYA 'Young & Cancer' Network; Board member European Cancer Organisation

Diagnostic trajectories in #sarcoma and #rarecancerpatients-in-general are often complex with delays at different levels due to the unfamiliarity of people, (the later)patients, and doctors with the disease and the heterogeneity in histologies and clinical presentations. This may lead to late diagnoses and frustration at all levels and reduced HRQoL of patients. Olga Husson presented at #ESMOSarcomaRareCancers meeting in Lugano results of a study in the Netherlands on diagnostic trajectories of rare cancer patients and Emily Holthuis, PhD student of our team, presents a poster today with interesting results of symptoms reported by patients to their GP prior to their #sarcoma diagnosis. The discussant yesterday highlighted results of our QUEST study in which we compare diagnostic trajectory data between the UK and The Netherlands in #Sarcoma (Vicky Soomers). More results will follow the coming time. Grateful to the hard work of our research team #AYASARCOMA The Netherlands Cancer Institute Olga Husson. Hopefully this work will give us hints for the future in solving part of this difficult to crack multifactorial delay-in-diagnosis issue.

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Gijs Geleijnse

Data Science, Innovation and Strategy

7mo

Congratulations to Emily Holthuis, Catarina Simões Padilla, Olga Husson, Winette van der Graaf and team for these important contributions. Their passion and energy are very inspiring. Dimitris Katsimpokis, Pauline Vissers -- it would be very good to learn from Emily's work making use of linkage between GP data and the cancer registry

Emily Holthuis

PhD-student bij het Nederlands Kanker Instituut - Antoni van Leeuwenhoek

7mo

Many thanks Winette van der Graaf and Olga Husson !! And great team work on the pre-diagnostic study of sarcoma patients; Isabelle Bos Marianne Heins Winan van Houdt Yvonne Schrage Anne Miek Koenen Cas Drabbe Stephanie van der Kleij Annemarie Uijen Tim olde Hartman!

Dr. Rakesh Chopra

Medical Oncologist & Haematologist

7mo

Need a lot of clarification

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