Clutch’s Post

Want to navigate ethical research with confidence? The Institutional Review Board (IRB) is in place to protect participants, but we know the process can feel overwhelming. That's why I'm excited to support the CEACR program as they break down the key components of ethical research in a free event! Join us to demystify the process and empower your research journey. Sign up now! #EthicalResearch #IRB

Black Pearl Awards 2025 Nominations are now open for the EURORDIS Black Pearl Awards taking place next February 2025! Ten awards are available, recognising the significant achievements and dedication of rare disease advocates, patient organisations, policymakers, scientists, companies, and more. These awards cover a diverse array of topics, including volunteering, scientific innovation, and impactful awareness-raising projects. Do you know someone who goes above and beyond for the community? Nominate them for an award to be recognised at an evening filled with celebration, learning, experience-sharing, and inspirational artistic performances! As we call for nominations, we take a look at the history of the Black Pearl Awards, their evolution over the past thirteen editions, and what the annual ceremony means to participants. Rare Barometer The Rare Barometer survey on the impact of rare diseases on everday life is now open. This new survey is investigating the societal obstacles encountered by people living with a rare disease in various aspects of their lives, from a human rights perspective. If you are impacted by a rare disease,  share your experiences by taking this survey, available in 25 languages!

Looks like the best session is at 15:20 to 15:50

Thanks for watching my presentation Kerry! Such an informative day, I've definitely learned lots about education that I can apply to my own practice :)

Fantastic initiative, and a real pleasure to be part of it. Hearing about the experiences of other centres across the globe makes clear how important but also how incredibly fragile the whole field is: most centres lack robust infrastructure support and investment, making it difficult to run and maintain activities and, especially, to build and secure the next generation(s) of scholars in the area. For example, for any PhD student we would like to support at the Centre for the Study of Philanthropy & Public Good, we need to find and secure a total funding of around £75,000-£120,000. Thereafter, to fund a single postdoctoral position one is looking at a minimum of £50,000 per annum (including National Insurance, pension, in costs, etc.) that need to be raised. Then, in the absence of any permanent positions in the area over here, all that investment, time, support, and the expertise that has been built over that period, currently often do not even benefit the Scottish (and at times European) philanthropy research field as early career colleagues are faced with an infinitesimally small number of national and international opportunities that might arise but, more likely than not, do not, leading to exits and brain drain from the field in general. So, assuming that one considers the field and its contributions to be important, there is some real work to be done about making it more sustainable in general, but also more attractive and accessible for younger researchers... Just some of the many issues that will need to be explored as part of our forthcoming workshop series “Together for Good: crafting Scotland’s philanthropic journey” - https://lnkd.in/e5tXgmZR

Tomorrow marks the 4th of July, a day to celebrate America's independence and the innovative spirit that has fueled our nation. Here at BioHub Maryland, we're proud to carry that torch forward by fostering collaboration and accelerating talent in the life sciences industry. Celebrate with us by answering one of these questions in the comments below: • What scientific discovery are you most grateful for? • How do you see science shaping the future of America?

WEBINAR PEDIATRIC BONE HEALTH Are you a researcher working with OI or other rare bone conditions? Check out this free webinar hosted by the International Society for Children's Bone Health. #osteogenesisimperfecta

Ready to learn how Europe's unique R&I environment and public private partnerships are enabling life-changing innovations? 🎧 Listen here (12 mins): https://bit.ly/MTOAS4E2 Listen in as Johnson & Johnson's Global Head of Strategic Partnerships and Resource Group (SPRG), Mark Lloyd Davies, PhD, shares his insights from his longstanding experience working in collaborative research and innovation in Europe, and what makes the EU environment unique. We cover important topics like the potential of public private partnerships, practical advice on participating in the Innovative Health Initiative (IHI), and reflections on a new multistakeholder project IDERHA.

On the morning of May 21st, Dr. Wang Jinzhao, Executive Vice President of CIKD met with Dr. Carlos Correa, Executive Director of South Center. The two sides had in-depth exchanges on topics including the Global Development Initiative (GDI), South-South cooperation, and Global Development Report (GDR) and discussed future cooperation on research and knowledge exchange. https://lnkd.in/g-KCgEx5

Hemant Rathi is attending the Global Evidence Summit (GES) in Prague. Please use the link below to schedule a meeting with him We look forward to meeting everyone and learn/share more about the latest advancements in Evidence Synthesis. https://lnkd.in/d6s5PvgQ #GES2024 #SkywardAnalytics #SLR #SystematicReview #LiteratureReview