World Child Cancer’s Post

My learnings have showed me that largely the problem in healthcare for Rose and the millions of other children is how we have organized our healthcare system. We have catered to single large profit drugs, as opposed to many small profit drugs. We are entering an age where personalized genetic treatments require a new model. It’s imperative that we continue to spread TCAR’s mission and innovative approach, as the need is great, but the workers are few. Your dollars could be doubled. We have a $30K match on the table, so please help give anything you can: https://lnkd.in/diJ8BrdE #yearendgiving #tcar #tocurearose #raredisease #hnrnph2 #donations #genetictreatment #nonprofit #children #childhooddisease

When you donate to DS research, you’re helping advance scientific knowledge that can also benefit the broader community. For example, Alzheimer’s disease is a medical condition affecting 40-80% of people with DS who live to be in their 50s and 60s. Knowing Alzheimer’s disease progresses faster in those with DS vs. those who don’t have DS, it’s important to understand the genetic component further. By doing so, the hope is to uncover scientific discoveries that one day slow or cure the progression of Alzheimer’s. Imagine what this means not only for those with DS but for millions of others who will be diagnosed with Alzheimer’s in the future. Step up and become our partner for change! With a monthly gift of $21 or more, you’ll help us rewrite the future for people with DS and their families. Donate Monthly: https://lnkd.in/grFBAWmW #nonprofit #research #downsyndrome #downsyndromeresearch

Hey everyone! Here is an easy way to support unmet patients need > support my friend Sophia and other kids impacted with #MCOPS12 💞 Your #support means we are step closer to finding an adequate therapy 💊💉 Learn more on the post below 🔽 #championforacure #givingtuesday #curemcops12

Can you imagine having your daughter fighting for her ability to breathe on her own every single day? Casey suffers from a rare genetic disorder, Hereditary Myopathy with Early Respiratory Failure, (HMERF) that affects the muscles and her ability to breathe. As her mom, I am constantly inspired by Casey's resilience and strength in facing this challenge every day. At The Foundation For Casey's Cure, we're on a mission to find a cure for rare diseases that affect thousands of lives. This month, we're launching a crucial fundraising drive and we need YOUR help! 🔹 Why Now? Research and treatments for rare diseases are underfunded and often overlooked. Your monthly donations will provide consistent support to our scientists and medical professionals working tirelessly to find life-saving solutions. 🔹 Every Dollar Counts! A small monthly donation can make a big difference. It helps ensure that our labs stay open, our clinical trials continue, and most importantly, it offers hope to those living with rare diseases. 🔹 How You Can Help: Donate: Set up a monthly donation, even $5 can make an impact. Share: Spread the word by sharing this post with your friends and family. Engage: Follow us for updates on our progress and join the conversation using @CaseysCure. Together, we can bring hope, fund research, and find a cure. 🌟 Thank you for your support and generosity! https://lnkd.in/ezxfVqCs #CaseysCure #Fundraising #RareDiseaseAwareness #HopeForACure #RareDisease #HMERF #MedicalResearch #HealthcareAdvocacy #RareDiseaseCommunity #MedicalFundraising #GeneticDisorder #HealthcareInnovation #PatientAdvocacy #CureResearch

Every day we receive messages of thanks from those we have supported. Those who had nowhere else to turn. Families who were feeling overwhelmed and worried about their child's diagnosis of Juvenile Idiopathic Arthritis (JIA). With the information and resources that we provided them with and with 1:1 support from our volunteers and access to a peer-to-peer support network, they were given the information and strength they needed to carry on. Many of our resources are recognised as being world-leading resources being translated and used all around the globe. Our awareness initiatives are leading the way in making a real difference to improving earlier diagnosis and helping those with JIA feel less alone. Our own research has been published in scientific journals, presented at international conferences and we have worked with countless other research teams on collaborative projects. All of this has been achieved by our amazing volunteer team in the 6 years since Juvenile Arthritis Research began. But... Our small team of volunteers are so busy doing all these vital areas of work that despite the difference we are making, finding the funding to do all that we do remains our biggest challenge. We currently have an urgent need for funding for a new resource that will save lives. Doctors, medical professionals, volunteers, parents and patients have given their time to create this essential new resource. We now urgently need the funds to get it printed and distributed to reach where it is most needed to make a difference. If you can help introduce us to any funding opportunities such as corporate sponsors or wish to make a donation specifically to make this resource a reality, please get in touch by emailing kipo@jarproject.org #JIA #JuvenileArthritis #JuvenileIdiopathicArthritis #JuvenileArthritisResearch #Kipo #Arthritis #ChildhoodArthritis #ChronicIllness #AutoimmuneDisease #JARProject #JIAWarrior #ArthritisAwareness #charity #CharitableCause #NonProfit #Donate #Support #causes #fundraising #philanthropy #KidsWithArthritis #KidsGetArthritisToo #DontBeAloneWithJIA #InstaCharity #RaiseAwareness #ThinkJIA #AwarenessIsEverything 

Celebrating the incredible strength and resilience of cancer survivors today and every day. Your courage inspires us all, and your journey is a testament to the power of hope and perseverance. Together, we honor your fight and support your ongoing triumphs. Share this post on your story to help raise awareness. #SamaritanFundFoundation #nationalcancersurvivorsday #cancersurvivor #HealingWithSamaritans #PeaceOfMindToHeal #financialmedicalassistance #Financialpeace #Hopeforhealing #Medicalcosts #Chronicconditions #Healthcaresupport #Communitycare #Financialrelief #Supportingfamilies #NonProfitOrganization #cancersurvivors #celebratestrength

Uniting in Impactful Giving: Your Donations Forge Pathways of Support and Hope 1.Acknowledging that each donation, irrespective of its size, not only extends support but also serves as a potent catalyst in spreading awareness and assisting those in dire need. 2.Your steadfast support enables us to dismantle obstacles and facilitate closer community connections, ensuring that assistance and care reach those who need it most. 3.Let's continue to harness our collective energies, maintaining and amplifying the momentum toward making a tangible difference in the realm of holistic cancer care. With your invaluable support, we are not just making a difference — we are breaking barriers, uniting communities, and infusing hope into every aspect of our mission. Let’s sustain this compassionate momentum. #DonateForChange #GivingBack #CommunitySupport #TogetherWeCan #HelpingHands #ImpactMatters #SpreadKindness #ChangeMakers #SupportingEachOther #PayItForward

Alzheimer’s isn’t stopping, and neither are we. This year, I’m participating in the Walk to End Alzheimer’s, a cause close to my heart. The resilience and courage of those affected by this devastating disease inspire me every day to take action. By walking, I’m not just raising funds; I’m helping to support the critical work of the Alzheimer’s Association. They provide 24/7 care and support for families facing Alzheimer’s and other dementias, and they’re at the forefront of research to find a cure. But I can’t do this alone. I need your support to make a real impact. Here’s how you can help: Donate: Your contributions fund essential care, support, and research efforts. Register: Join me as a participant and start your own fundraising efforts. Share: Spread the word about this important cause and encourage others to get involved. Together, we can bring hope to millions and work towards a future free from Alzheimer’s. Please consider supporting my walk by making a donation or joining me in this cause. Your support means the world to those impacted by Alzheimer’s. Let’s make a difference together. Support my walk here https://lnkd.in/gFS_b9NE #WalkToEndAlzheimers #EndAlz #AlzheimersAwareness #JoinTheFight #Community #Hope

It's not just grandma and grampa we need to save on National Donation Day. It's all of us! June 20th, The Longest Day, is the day with the most light and the day we fight! I shine a light on the fight to end Alzheimer’s for my wife, Beth Anderson, who I lost to this terrible disease at the age of 50, and those who are yet to be diagnosed.  Please partner with me on The Longest Day, June 20th; I’ll be running nine miles around Bachman Lake in honor of my wife, the six million Americans currently living with Alzheimer’s, and the eleven million people who provide unpaid care to Alzheimer's patients to raise vital research funds and awareness. I'm asking for your support by donating to my fundraiser at:  https://lnkd.in/dExbwWRk. Last year, we had 100 people donate $50 to reach $5,000. This year, my goal is to get 120 people to contribute $50, for a total of $6,000. Here is our story: https://lnkd.in/gqEkRaPp Alzheimer’s Facts: 1. 55 million people worldwide are living with Alzheimer’s. 2. 1 in 3 seniors dies due to Alzheimer’s or another dementia. 3. 1 in 9 people aged 65 and older has Alzheimer’s. 4. Alzheimer’s kills more people than breast cancer and prostate cancer combined. 5. Two thirds of Americans with Alzheimer’s are women. 6. Eighty-three percent of the help provided to older adults in the U.S. comes from family members, friends, or other unpaid caregivers. 7. In 2023, Alzheimer’s and other dementias will cost the nation $345 billion, and by 2050 the cost is estimated to be $1 trillion.  #ENDALZ

From start to finish, the DTRF "Together We Will" Weekend is about connection and collaboration. During a special "Meet the Doctors" Networking Breakfast, researchers and clinicians will answer patients' and caregivers' questions about treatment options, tumor locations, and research. Patients in attendance will also have the opportunity to meet each other and share experiences. ☑️ Register today for all of the Weekend's signature events from Sept. 20-21: https://bit.ly/2024tww. ☑️ Don't forget to register separately for the RFA Walk on Sept. 22: https://bit.ly/2024RFAwalk. ✨ Please note: Each desmoid tumor case is unique. These conversations are not intended as medical advice for any individual problem, or as a diagnosis, treatment plan, or recommendation for a particular course of action, and should not be used as a substitute for professional medical advice and services. #togetherwewillweekend2024 #togetherwewillweekend #RFA24 #DTRF #Desmoidian #RFA #RFAwalkthewalk #crazysocks #desmoidtumorresearchfoundation #desmoidtumor #desmoidawareness #fundacure #fundraising #donate #desmoidresearch #RFA24