CDC National Center on Birth Defects and Developmental Disabilities (NCBDDD)

Did you know? Sickle cell disease (SCD) is a group of inherited blood disorders. Abnormal hemoglobin is produced. source: Centers for Disease Control and Prevention & CDC National Center on Birth Defects and Developmental Disabilities (NCBDDD) #SickleCellDisease #SickleCellAwareness #sicklecelldata #sicklecellwarrior #coloradosicklecell

🌟 January is National Birth Defects Awareness Month 🌟 AMCHP is excited to announce the launch of our new Referral to Service Activities Framework for Birth Defects Surveillance Programs, developed in collaboration with the National Birth Defects Prevention Network (NBDPN) and CDC National Center on Birth Defects and Developmental Disabilities (NCBDDD). This tool aims to support better referrals and services for those impacted by #BirthDefects. Check out our blog post to learn more about this important project and access the resource: bit.ly/NBDAM25 #EveryJourneyMatters

Episode 82 of The MotherToBaby Podcast is now available! 🎧 In this latest episode, we explore CDC’s work addressing fetal alcohol spectrum disorders (FASD), featuring insights from experts at the Centers for Disease Control and Prevention. This episode offers critical information on alcohol and other substance use during pregnancy, FASD, and reaching healthcare professionals. 🎓 Earn continuing education credits while staying updated on this important topic. Listen now: https://lnkd.in/g3mZ4DXR . . #EveryJourneyMatters #BDAM #FASDResearch #ContinuingEducation #HealthcareProfessionals #MaternalHealth #FetalAlcoholSpectrumDisorders #MedicalEducation #PublicHealth #FASDPrevention #BirthDefects #FASDNPN

Join us for the next Virtual Thalassemia Grand Rounds. Dr. Sayani will discuss the clinical management of thalassemia in patients over the age of 50. Register: https://bit.ly/3VRLdKr

Primary care providers: Would you like to create meaningful change for families with deaf/hard of hearing children while enhancing your leadership skills? The Early Hearing Detection and Intervention Emerging Leaders Program provides mentorship, networking, and training that support systems change in early hearing detection and intervention. Applications are due January 31! https://bit.ly/42bDomR

FEMA Assistance is Available for Individuals Affected by the Wildfires in California - On Wednesday, President Biden approved a Major Disaster Declaration to supplement recovery efforts. Los Angeles County residents who have disaster-related needs due to the fires may be eligible for financial assistance. Damage assessments are continuing in other areas, and more counties and additional forms of assistance may be designated after the assessments are completed. FEMA disaster assistance is intended to meet the basic needs of your household for uninsured or underinsured necessary expenses and serious needs in order to jumpstart your recovery. If you have insurance and are applying for FEMA disaster assistance, you must file a claim with your insurance company first. By law, FEMA cannot duplicate benefits for losses covered by insurance. If insurance does not cover all your damage, you may be eligible for federal assistance. Please review the information ℹ️ provided in the document 📄 below. ⬇️ and share with your networks and communities affected by the disaster. Thank you.

Dr. Dana Meaney-Delman has accepted the role as the inaugural principal deputy director for NCBDDD. Dr. Meaney-Delman began her career at CDC in 2012 as the senior advisor for preparedness in the National Center for Emerging and Zoonotic Infectious Diseases. In that role, she coordinated all preparedness activities for the center and served in all emergency responses exercises and responses. From 2016 to 2017 she co-led the Zika Pregnancy and Infant Task Force and co-founded the Zika Pregnancy and Infant Registry. This registry served the basis for the formation of SET-NET, the Surveillance of Emerging Threats to Mothers and Babies Network. During the COVID-19 response, she served as the principal deputy incident manager, and Vaccine Task Force lead. She also served as the lead for maternal COVID-19 immunization response and led the prioritization of vaccine for pregnant persons, co-founding the V-Safe Pregnancy Registry. Most recently, she served as the chief of the Infant Outcomes Monitoring Branch in the Division of Birth Defects and Infant Disorders. Dr. Meaney-Delman continues to model the call to serve in our CDC readiness and response activities by recently advising and participating in mpox, dengue and Oropouche responses. NCBDDD is happy to welcome Dr. Meaney-Delman to this new role.

HCPs: Inhibitors can be a dangerous and expensive complication of having a bleeding disorder. CDC’s and American Thrombosis and Hemostasis Network (ATHN)'s Community Counts (CC) program provides free inhibitor testing for people living with a bleeding disorder who participate in the program. Learn more about CC and how it can benefit your patients and the bleeding community: https://bit.ly/3zWWJfw

Alcohol use during pregnancy can lead to serious birth defects. As part of #BirthDefectsAwarenessMonth, we’re offering valuable insights through a special podcast series featuring experts from the Centers for Disease Control and Prevention and FASD United (formerly NOFAS). This series provides crucial information on the risks associated with exposure to alcohol before birth, including the impact on fetal development and the prevention of fetal alcohol spectrum disorders (FASD). It’s essential for healthcare providers, educators, and anyone involved in prenatal health to stay informed. 🎧 Earn continuing education credits while learning from leading experts in the field. Subscribe to The MotherToBaby Podcast to access this important resource and help raise awareness about preventing birth defects. 🔗 https://lnkd.in/gNRgezuk #EveryJourneyMatters #BDAM #ContinuingEducation #HealthcareProfessionals #MaternalHealth #FASD #FASDPrevention #HealthyPregnancy #BirthDefectsAwareness #ProfessionalDevelopment #PublicHealth #MaternalAndChildHealth #Podcast #MedicalEducation

CDC’s National Center on Birth Defects and Developmental Disabilities had many impactful successes in 2024. Our partners and colleagues help us do things better and reach our goals. And last year was particularly successful; we exceeded all our goals! It was a year filled with particularly productive collaboration. We have so many important partnerships that have lasted through the years, helping us help families. Click here to read about these and other accomplishments: • CDC’s Milestone Tracker app exceeded its milestone goal with more than 2.3 million downloads by year’s end • CDC published the first national estimates in more than a decade of the number of adults with ADHD • Innovations with our state teams provide new hope for young families living with sickle cell disease.